Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims.  So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations. For fantastic caregiver resources on these types of topics, go to: https://adscresources.advocatehealth.com/ Some examples of equipment discussed on the podcast:  3 Headed Toothbrush  Weighted Vest  Automatic Nail Trimmer  Hair Clipper   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims.  So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations. For fantastic caregiver resources on these types of topics, go to: <a href="https://adscresources.advocatehealth.com/" rel="nofollow" target="_blank">https://adscresources.advocatehealth.com/</a> Some examples of equipment discussed on the podcast: <a href="https://www.amazon.com/SUPVOX-Toothbrush-Replaceable-Special-toothhugger/dp/B07SJSXS12/ref=sr_1_6?crid=89YKJ937K963&amp;keywords=3+headed+toothbrush&amp;qid=1683660835&amp;sprefix=3+headed+toothbrush%2Caps%2C80&amp;sr=8-6" rel="nofollow" target="_blank"> 3 Headed Toothbrush</a> <a href="https://www.amazon.com/Fun-Functions-Weighted-Compression-Vest/dp/B001TZGIH4/ref=sxin_16_pa_sp_search_thematic_sspa?content-id=amzn1.sym.ea7393e3-de5f-4d19-84a5-8c5fb5c68d5f%3Aamzn1.sym.ea7393e3-de5f-4d19-84a5-8c5fb5c68d5f&amp;crid=26TW3D6VOPBRX&amp;cv_ct_cx=weighted+vest&amp;keywords=weighted+vest&amp;pd_rd_i=B001TZGIH4&amp;pd_rd_r=de919ce1-a634-4f36-8195-fcbc60ab34bd&amp;pd_rd_w=x8eZp&amp;pd_rd_wg=x7X1N&amp;pf_rd_p=ea7393e3-de5f-4d19-84a5-8c5fb5c68d5f&amp;pf_rd_r=MNKHZ0FMG4PW1B1VF158&amp;qid=1683660918&amp;sbo=RZvfv%2F%2FHxDF%2BO5021pAnSA%3D%3D&amp;sprefix=weighted+ves%2Caps%2C84&amp;sr=1-2-2b34d040-5c83-4b7f-ba01-15975dfb8828-spons&amp;ufe=app_do%3Aamzn1.fos.006c50ae-5d4c-4777-9bc0-4513d670b6bc&amp;psc=1&amp;spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyOUE5N0xSREI5TllQJmVuY3J5cHRlZElkPUEwMzQwNTMwMVVTMlVRVjdHQ0hXRyZlbmNyeXB0ZWRBZElkPUExMDI4NTAzM1A1UUpGVTNUWjVUVSZ3aWRnZXROYW1lPXNwX3NlYXJjaF90aGVtYXRpYyZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU=" rel="nofollow" target="_blank"> Weighted Vest</a> <a href="https://www.amazon.com/Clippers-Trimmer-Scissors-Electric-Manicure/dp/B07VSP6DJW/ref=sr_1_1_sspa?crid=8I8UB3663MSR&amp;keywords=automatic%2Bnail%2Bclipper&amp;qid=1683661165&amp;sprefix=automatic%2Bnail%2B%2Caps%2C76&amp;sr=8-1-spons&amp;spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUExVkZIVkNQSk03WjAxJmVuY3J5cHRlZElkPUEwMTA4ODgzMjRCVUlISVg1M0gyTSZlbmNyeXB0ZWRBZElkPUEwMjA2MDI3MzZNMEhERDE3SlJITiZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU&amp;th=1" rel="nofollow" target="_blank"> Automatic Nail Trimmer</a> <a href="https://www.amazon.com/CALMING-CLIPPER-Haircutting-Sensitivity-Right-Handed/dp/B01J2QH9RO/ref=sr_1_2?crid=XLM94MH91L3R&amp;keywords=silent+clipper+scissors&amp;qid=1683661404&amp;sprefix=silent+clipper+scissors%2Caps%2C65&amp;sr=8-2" rel="nofollow" target="_blank"> Hair Clipper</a> If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims)

Andy Nowalk

The official pandemic status may be gone, but COVID still lingers.  Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters.

The official pandemic status may be gone, but COVID still lingers.  Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters.

#158 - Update on COVID (wit Dr. Andy Nowalk)

How do we help people with Down syndrome during times of grief and grieving?  Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif, go to https://rosereif.com/about/. For more information on this topic, check out Dr. Reif's book  https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/. Dr. Reif's recommended this resource by Fred Rogers as well  https://www.amazon.com/s?k=when+a+pet+dies+by+fred+rogers&amp;crid=2E7G8G1J0JF8M&amp;sprefix=when+a+pet%2Caps%2C96&amp;ref=nb_sb_ss_ts-doa-p_1_10 If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

How do we help people with Down syndrome during times of grief and grieving?  Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif, go to <a href="https://rosereif.com/about/" rel="nofollow" target="_blank">https://rosereif.com/about/</a>. For more information on this topic, check out Dr. Reif's book <a href="https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/" rel="nofollow" target="_blank"> https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/</a>. Dr. Reif's recommended this resource by Fred Rogers as well <a href="https://www.amazon.com/s?k=when+a+pet+dies+by+fred+rogers&amp;crid=2E7G8G1J0JF8M&amp;sprefix=when+a+pet%2Caps%2C96&amp;ref=nb_sb_ss_ts-doa-p_1_10" rel="nofollow" target="_blank"> https://www.amazon.com/s?k=when+a+pet+dies+by+fred+rogers&amp;crid=2E7G8G1J0JF8M&amp;sprefix=when+a+pet%2Caps%2C96&amp;ref=nb_sb_ss_ts-doa-p_1_10</a> If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#157 - Understanding Grief and Grieving in People with Down Syndrome

Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you!  We discussed inappropriate word usage, dumping behaviors, and scripting among other topics.   For more information on Dr. Taylor's practice, including potentially scheduling a visit with the practice, visit http://advancebehavior.com/.   To find a behavioral analyst near you, visit https://www.bacb.com/services/o.php?page=101135.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you!  We discussed inappropriate word usage, dumping behaviors, and scripting among other topics.   For more information on Dr. Taylor's practice, including potentially scheduling a visit with the practice, visit <a href="http://advancebehavior.com/" rel="nofollow" target="_blank">http://advancebehavior.com/</a>.   To find a behavioral analyst near you, visit <a href="https://www.bacb.com/services/o.php?page=101135" rel="nofollow" target="_blank">https://www.bacb.com/services/o.php?page=101135</a>.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#156 - Behavioral Analysis (with Dr. Stacy Taylor)

As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country.  For more information on DSAIA, see https://www.dsaia.org.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country.  For more information on DSAIA, see <a href="https://www.dsaia.org" rel="nofollow" target="_blank">https://www.dsaia.org</a>.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#155 - Down Syndrome Affiliates in Action

Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops!  There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we asked Ben to join us to give us some background on why he is so passionate about these shops (and it's not just the coffee!). If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops!  There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we asked Ben to join us to give us some background on why he is so passionate about these shops (and it's not just the coffee!). If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#154 - Bitty and Beau's Coffee Shop

Dr. Lina Patel from the Sie Center in Denver joined the podcast again today.  Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge.  Dr. Patel addressed a listener question on this topic on today's podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Lina Patel from the Sie Center in Denver joined the podcast again today.  Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge.  Dr. Patel addressed a listener question on this topic on today's podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks)

Shannon Frizzell

Unhealthy eating patterns are unfortunately common in people with Down syndrome.  On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Unhealthy eating patterns are unfortunately common in people with Down syndrome.  On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell)

In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!

In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!

#151 - A Conversation with Friends - Happy World Down Syndrome Day!

Tarin Santamaria

Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior.  What's the best approach when your child with Down syndrome has a tendency to throw objects?  And how do you keep everyone else safe? :)  Join us for a conversation on this specific topic as well as  general thoughts on behavior management.  And keep those listener questions coming! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior.  What's the best approach when your child with Down syndrome has a tendency to throw objects?  And how do you keep everyone else safe? :)  Join us for a conversation on this specific topic as well as  general thoughts on behavior management.  And keep those listener questions coming! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria)

This podcast contains information for caregivers and providers regarding Down syndrome.  Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

Jordan Jones

Dr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO.  Dr. Jones has a special interest in working with children with Down syndrome and has published numerous articles on this topic.  He joined the podcast today to discuss a listener-requested topic on juvenile idiopathic arthritis in Down syndrome.  For more information on Dr. Jones, please visit https://www.childrensmercy.org/profiles/jordan-t-jones/.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO.  Dr. Jones has a special interest in working with children with Down syndrome and has published numerous articles on this topic.  He joined the podcast today to discuss a listener-requested topic on juvenile idiopathic arthritis in Down syndrome.  For more information on Dr. Jones, please visit <a href="https://www.childrensmercy.org/profiles/jordan-t-jones/" rel="nofollow" target="_blank">https://www.childrensmercy.org/profiles/jordan-t-jones/</a>.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#149 - Juvenile Idiopathic Arthritis (with Dr. Jordan Jones)

Carissa Carroll

Carissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket.  This organization serves families all over the world, offering a welcome and congratulations to new families wherever they may be.  You can find more information about Jack's Basket at https://www.jacksbasket.org/.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

Carissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket.  This organization serves families all over the world, offering a welcome and congratulations to new families wherever they may be.  You can find more information about Jack's Basket at <a href="https://www.jacksbasket.org/" rel="nofollow" target="_blank">https://www.jacksbasket.org/</a>.   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#148 - Jack's Basket (with Carissa Carroll)

Award winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not.  Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company, Rota6 Films, specializing in documentary and commercial films. As 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive education.  Olivier and his wife Hilda turn the camera on themselves and their child with Down syndrome, as they navigate a byzantine system originally designed to silo children with disabilities. Get more information, including links to the film, at https://www.forgetmenotdocumentary.com/.   If there is a topic that you would like us to cover on the podcast, please e-mail me at DownSyndromeCenter@chp.edu. If you would like to partner with the work that we are doing at the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.  Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Award winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not.  Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company, Rota6 Films, specializing in documentary and commercial films. As 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive education.  Olivier and his wife Hilda turn the camera on themselves and their child with Down syndrome, as they navigate a byzantine system originally designed to silo children with disabilities. Get more information, including links to the film, at <a href="https://www.forgetmenotdocumentary.com/" rel="nofollow" target="_blank">https://www.forgetmenotdocumentary.com/</a>.   If there is a topic that you would like us to cover on the podcast, please e-mail me at <a>DownSyndromeCenter@chp.edu</a>. If you would like to partner with the work that we are doing at the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>.  Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#147 - Forget Me Not - A Powerful Documentary on Inclusive Education

Dr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease.  Seen more commonly in people with Down syndrome, listen to learn more about this important condition. Colorectal Center of Children   https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/colorectal-center-for-children If there is a topic that you would like us to cover on the podcast, please e-mail me at DownSyndromeCenter@chp.edu. If you would like to partner with the work that we are doing at the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.  If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease.  Seen more commonly in people with Down syndrome, listen to learn more about this important condition. Colorectal Center of Children  <a href="https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/colorectal-center-for-children" rel="nofollow" target="_blank"> https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/colorectal-center-for-children</a> If there is a topic that you would like us to cover on the podcast, please e-mail me at <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the work that we are doing at the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>.  If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#146 - Hirschsprung Disease

Scott Quaife, NSCA-CPT, Health and Wellness Coordinator with Down Syndrome Innovations in Kansas, joined the podcast to discuss the importance of exercise in Down syndrome and overcoming potential obstacles to reaching exercise goals. For more in-depth information on this topic, please visit:  https://vimeo.com/753072214 Down syndrome innovations https://kcdsi.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Scott Quaife, NSCA-CPT, Health and Wellness Coordinator with Down Syndrome Innovations in Kansas, joined the podcast to discuss the importance of exercise in Down syndrome and overcoming potential obstacles to reaching exercise goals. For more in-depth information on this topic, please visit: <a href="https://urldefense.com/v3/__https:/vimeo.com/753072214__;!!NHLzug!M2xbCNR55R5BTaYAaOgkSFGq8DGhoLgLxPvqc7e2NHK_-2wPsgNpLsy3EQo4-SrsOwNt6PSSL_G_UV0$" rel="nofollow" target="_blank"> https://vimeo.com/753072214</a> Down syndrome innovations <a href="https://kcdsi.org/" rel="nofollow" target="_blank">https://kcdsi.org</a> If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#145 - The Importance of Exercise in Down Syndrome

Michelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series.   For more information on Global Down Syndrome Foundation  https://www.globaldownsyndrome.org Prenatal &amp; Newborn Pamphlet:  https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/ GLOBAL Adult Healthcare Guideline:  https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/ If you have a podcast topic you would like us to address, please send an e-mail to DownSyndromeCenter@chp.edu.  If you would like to partner with the Down Syndrome Center and the work that we do, including this podcast, please go to https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Michelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series.   For more information on Global Down Syndrome Foundation <a href="https://urldefense.com/v3/__https://www.globaldownsyndrome.org__;!!NHLzug!IKy4BFDDF8Zegs7CqcLzjTePWcTLyC-BSRrA3328HdPGPAg8WJAJ8Szt-Tg8kXUoSUk_aP9wUZ3ZL87Bd9xrSVjPgw$" rel="nofollow" target="_blank"> https://www.globaldownsyndrome.org</a> Prenatal &amp; Newborn Pamphlet: <a href="https://urldefense.com/v3/__https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/__;!!NHLzug!IKy4BFDDF8Zegs7CqcLzjTePWcTLyC-BSRrA3328HdPGPAg8WJAJ8Szt-Tg8kXUoSUk_aP9wUZ3ZL87Bd9xnq61FIQ$" rel="nofollow" target="_blank"> https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/</a> GLOBAL Adult Healthcare Guideline: <a href="https://urldefense.com/v3/__https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/__;!!NHLzug!IKy4BFDDF8Zegs7CqcLzjTePWcTLyC-BSRrA3328HdPGPAg8WJAJ8Szt-Tg8kXUoSUk_aP9wUZ3ZL87Bd9yZvwaS2w$" rel="nofollow" target="_blank"> https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/</a> If you have a podcast topic you would like us to address, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>.  If you would like to partner with the Down Syndrome Center and the work that we do, including this podcast, please go to <a href="http://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#144 - Global Down Syndrome Foundation

Dr. Anna Esbensen, psychologist with the Thomas Center for Down Syndrome at Cincinnati Children's Hospital, joined the podcast to answer a listener question about psychological issues that are seen in Down syndrome.   Thomas Center for Down Syndrome  https://www.cincinnatichildrens.org/service/t/down-syndrome/services Association of University Centers on Disabilities https://www.aucd.org/directory/directory.cfm?program=UCEDD The National Association for the Dually Diagnosed (NADD) http://thenadd.org  Mental Wellness in Adults with Down Syndrome (currently out of print)  https://www.amazon.com/Mental-Wellness-Adults-Down-Syndrome/dp/1890627658/ref=sr_1_3?crid=2ANS38WEA9XWV&amp;keywords=mental+health+down+syndrome&amp;qid=1662478738&amp;sprefix=%2Caps%2C61&amp;sr=8-3 If you have a question that you would like us to address on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with us at the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Anna Esbensen, psychologist with the Thomas Center for Down Syndrome at Cincinnati Children's Hospital, joined the podcast to answer a listener question about psychological issues that are seen in Down syndrome.   Thomas Center for Down Syndrome <a href="https://www.cincinnatichildrens.org/service/t/down-syndrome/services" rel="nofollow" target="_blank"> https://www.cincinnatichildrens.org/service/t/down-syndrome/services</a> Association of University Centers on Disabilities <a href="https://www.aucd.org/directory/directory.cfm?program=UCEDD" rel="nofollow" target="_blank">https://www.aucd.org/directory/directory.cfm?program=UCEDD</a> The National Association for the Dually Diagnosed (NADD) <a href="http://thenadd.org" rel="nofollow" target="_blank">http://thenadd.org</a> Mental Wellness in Adults with Down Syndrome (currently out of print) <a href="https://www.amazon.com/Mental-Wellness-Adults-Down-Syndrome/dp/1890627658/ref=sr_1_3?crid=2ANS38WEA9XWV&amp;keywords=mental+health+down+syndrome&amp;qid=1662478738&amp;sprefix=%2Caps%2C61&amp;sr=8-3" rel="nofollow" target="_blank"> https://www.amazon.com/Mental-Wellness-Adults-Down-Syndrome/dp/1890627658/ref=sr_1_3?crid=2ANS38WEA9XWV&amp;keywords=mental+health+down+syndrome&amp;qid=1662478738&amp;sprefix=%2Caps%2C61&amp;sr=8-3</a> If you have a question that you would like us to address on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with us at the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#143 - Depression, Anxiety, and OCD in Down syndrome

To celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as highlight the ongoing work of DSAP.  The highlight event of the year is the Buddy Walk which is coming up on October 23, 2022 at Schenley Plaza on the University of Pittsburgh campus.    Helpful websites related to the podcast discussion today:  DSAP: https://www.dsapgh.org/ or call/text us 4125659936 Pittsburgh Buddy Walk: https://www.ds-stride.org/pghbuddywalk First Call Program: https://www.dsapgh.org/first-call or call/text us 4125524972 FB: https://www.facebook.com/dsapgh IG: https://www.instagram.com/dsapgh LinkedIn: https://www.linkedin.com/company/down-syndrome-association-of-pittsburgh Twitter: https://twitter.com/dsapittsburgh Shannons blog: https://www.thislifewegot.com  If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

To celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as highlight the ongoing work of DSAP.  The highlight event of the year is the Buddy Walk which is coming up on October 23, 2022 at Schenley Plaza on the University of Pittsburgh campus.   Helpful websites related to the podcast discussion today: <ul> <li>DSAP: <a href="https://urldefense.com/v3/__https://www.dsapgh.org/__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xO4O6QbA$" rel="nofollow" target="_blank">https://www.dsapgh.org/</a> or call/text us 4125659936</li> <li>Pittsburgh Buddy Walk: <a href="https://urldefense.com/v3/__https://www.ds-stride.org/pghbuddywalk__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xI1bcNxT$" rel="nofollow" target="_blank">https://www.ds-stride.org/pghbuddywalk</a></li> <li>First Call Program: <a href="https://urldefense.com/v3/__https://www.dsapgh.org/first-call__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xIEtWoxO$" rel="nofollow" target="_blank">https://www.dsapgh.org/first-call</a> or call/text us 4125524972</li> <li>FB: <a href="https://urldefense.com/v3/__https://www.facebook.com/dsapgh__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xG7upsSD$" rel="nofollow" target="_blank">https://www.facebook.com/dsapgh</a></li> <li>IG: <a href="https://urldefense.com/v3/__https://www.instagram.com/dsapgh__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xPrtzDc7$" rel="nofollow" target="_blank">https://www.instagram.com/dsapgh</a></li> <li>LinkedIn: <a href="https://urldefense.com/v3/__https://www.linkedin.com/company/down-syndrome-association-of-pittsburgh__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xHEBjVNs$" rel="nofollow" target="_blank">https://www.linkedin.com/company/down-syndrome-association-of-pittsburgh</a></li> <li>Twitter: <a href="https://urldefense.com/v3/__https://twitter.com/dsapittsburgh__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xA6WQibw$" rel="nofollow" target="_blank">https://twitter.com/dsapittsburgh</a></li> <li>Shannons blog: <a href="https://urldefense.com/v3/__https://www.thislifewegot.com__;!!NHLzug!OPNSp5TYibgSH3ReVzs5Dg6v1iDs1wuMKMwYVfdFKADhKiP-FtHPSgYAduejnC5a3R_PtrT_vZz6xLTnyWHR$" rel="nofollow" target="_blank">https://www.thislifewegot.com</a></li> </ul> If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#142 - Exciting Upcoming Events with DSA Pittsburgh!

Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome.  You can find more information about NDSS here (https://www.ndss.org).   If you have a podcast topic you would like us to address, please email DownSyndromeCenter@chp.edu. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.   Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome.  You can find more information about NDSS here (<a href="http://www.ndss.org" rel="nofollow" target="_blank">https://www.ndss.org</a>).   If you have a podcast topic you would like us to address, please email <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>.   Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#141 - National Down Syndrome Society (NDSS)

Dr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters. CDC Statement on Omicron Boosters  https://www.cdc.gov/media/releases/2022/s0901-covid-19-booster.html If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Dr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters. CDC Statement on Omicron Boosters <a href="https://www.cdc.gov/media/releases/2022/s0901-covid-19-booster.html" rel="nofollow" target="_blank"> https://www.cdc.gov/media/releases/2022/s0901-covid-19-booster.html</a> If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to <a href="mailto:DownSyndromeCenter@chp.edu">DownSyndromeCenter@chp.edu</a>. If you would like to partner with the Down Syndrome Center, including this podcast, please visit <a href="https://givetochildrens.org/downsyndromecenter" rel="nofollow" target="_blank">https://givetochildrens.org/downsyndromecenter</a>. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.

#140 - COVID Update - Omicron Boosters!

Great resource. Like the concise pertinent information.

Excellent

Great information for parents of children with DS.

Good information!

Down Syndrome Center Podcast

Bryan Gratton

Bryan Gratton joined Dr. Vellody today on the podcast to discuss two of his favorite interests - wholistic financial advising, particularly around people with special needs and the Night to Remember event.  Bryan can be reached at: bgratton@financialguide.com 724-513-9654 https://www.grattonkerrfinancialgroup.com/ The National Down Syndrome toolkits can be found at:  https://www.ndsccenter.org/programs-resources/family-care-toolkit/ https://www.ndsccenter.org/programs-resources/adult-siblings/ Information on Day/Night to Remember can be found at: https://discovertogether.com/a-day-to-remember https://discovertogether.com/anighttoremember

Bryan Gratton joined Dr. Vellody today on the podcast to discuss two of his favorite interests - wholistic financial advising, particularly around people with special needs and the Night to Remember event.  Bryan can be reached at: <a href="mailto:bgratton@financialguide.com">bgratton@financialguide.com</a> <a href="https://www.grattonkerrfinancialgroup.com/" rel="nofollow" target="_blank">724-513-9654 https://www.grattonkerrfinancialgroup.com/</a> The National Down Syndrome toolkits can be found at: <a href="https://www.ndsccenter.org/programs-resources/family-care-toolkit/" rel="nofollow" target="_blank"> https://www.ndsccenter.org/programs-resources/family-care-toolkit/</a> <a href="https://www.ndsccenter.org/programs-resources/adult-siblings/" rel="nofollow" target="_blank">https://www.ndsccenter.org/programs-resources/adult-siblings/</a> Information on Day/Night to Remember can be found at: <a href="https://discovertogether.com/a-day-to-remember" rel="nofollow" target="_blank">https://discovertogether.com/a-day-to-remember</a> <a href="https://discovertogether.com/anighttoremember" rel="nofollow" target="_blank">https://discovertogether.com/anighttoremember</a>

#60 - Interview with Bryan Gratton (Financial Advising tips, Night to Remember Pittsburgh)

Sue Levine

Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome.  Ms. Levine and Dr. Skotko have numerous publications and have lead many national workshops on this topic.  More information on sibling workshops can be found at: https://siblingslearnaboutdownsyndrome.com/ The study referenced in the podcast can be found at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/ Fasten Your Seatbelt Book  https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/ Fasten Your Seatbelt YouTube Channel https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg NDSC Adult Sibling Toolkit https://www.ndsccenter.org/programs-resources/adult-siblings/ Sibling Leadership Network https://siblingleadership.org/   Sibling Support Project https://www.siblingsupport.org/ Adult Medical Issues Podcast  https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued More information on Dr. Skotko and his work: http://brianskotko.com

Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome.  Ms. Levine and Dr. Skotko have numerous publications and have lead many national workshops on this topic.  More information on sibling workshops can be found at: <a href="https://siblingslearnaboutdownsyndrome.com/" rel="nofollow" target="_blank">https://siblingslearnaboutdownsyndrome.com/</a> The study referenced in the podcast can be found at: <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/" rel="nofollow" target="_blank">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/</a> Fasten Your Seatbelt Book <a href="https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/" rel="nofollow" target="_blank"> https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/</a> Fasten Your Seatbelt YouTube Channel <a href="https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg" rel="nofollow" target="_blank">https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg</a> NDSC Adult Sibling Toolkit <a href="https://www.ndsccenter.org/programs-resources/adult-siblings/" rel="nofollow" target="_blank">https://www.ndsccenter.org/programs-resources/adult-siblings/</a> Sibling Leadership Network <a href="https://siblingleadership.org/" rel="nofollow" target="_blank">https://siblingleadership.org/</a> Sibling Support Project <a href="https://www.siblingsupport.org/" rel="nofollow" target="_blank">https://www.siblingsupport.org/</a> Adult Medical Issues Podcast <a href="https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued" rel="nofollow" target="_blank"> https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued</a> More information on Dr. Skotko and his work: <a href="https://www.ndsccenter.org/programs-resources/adult-siblings/" rel="nofollow" target="_blank">http://brianskotko.com</a>

#64 - Sibling Topics (with Sue Levine and Brian Skotko, MD)

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