Sue Levine's guest appearances

Sue Levine

Down Syndrome Center Podcast

Safe Harbor: A Podcast for Parents of Children with Special Needs

Heather Avis

Sean Smith

David Stein

Jen Jacob

Sarah Hill

Linda Russo

Lina Patel

Erin Kelly

Brian Martin

Ruth Brown

Pat Winders

Terri Couwenhoven

Amanda Flint

Todd Otteson

Arvind Srinath

OwlTail

In this episode Theresa talks with Sue Levine, Social Worker, and Co-Founder of Family Resource Associates in Red Bank, New Jersey. FRA is  a not for profit agency that  provides services to people with disabilities across the lifespan, helping them realize their great potential. Sue has spent her entire professional career working with children with disabilities and their families. She has conducted support programs for parents and siblings of children with differing abilities since 1979. Among those programs, Susan has coordinated support groups specifically for parents of children with Down syndrome. She has presented on the needs of siblings at national and regional conferences on Down syndrome, spina bifida, and Rett syndrome, as well as for New Jersey school system parent groups. This episode is packed with information about the special needs of siblings of children with disabilities. Sue emphasizes that siblings need three things: 1) information about their sibling's disability; 2) to be able to express a range of emotions safely; and 3) strategies to solve the problems they are experiencing. Sue offers great tips and provides lots of resources for families. Here are links to the resources discussed in the episode:You can find Family Resource Associates at: Family Resource AssociatesSue has co-authored “Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters” with Dr. Brian Skotko. This book, along with other specialty books related to children with special needs, is currently available at www.Woodbinehouse.com. FYI, this publisher may be going out of business later in 2022. The Sibling Leadership Network | Siblings of people with disabilities is the national sibling network for adult siblings Levine and Skotko also have develop a sibling program which is available here: Down Syndrome Workshops for Siblings (siblingslearnaboutdownsyndrome.com) . As Sue discusses in the webinar, this is not just applicable to siblings of individuals with Down syndrome but can be adapted to any group.  Don Meyer, author of the book "Sibshops", has a  website www.siblingsupport.org that may be of interest. Please join us over in the Safe Harbor Podcast group on Facebook, and email Theresa at safeharborpodcast@gmail.com to get on the mailing list and learn about upcoming projects. Also rate and review the podcast to help others find it. Be sure to subscribe so you don't miss an episode. Thanks for listening!!

In this episode Theresa talks with Sue Levine, Social Worker, and Co-Founder of Family Resource Associates in Red Bank, New Jersey. FRA is  a not for profit agency that  provides services to people with disabilities across the lifespan, helping them realize their great potential. Sue has spent her entire professional career working with children with disabilities and their families. She has conducted support programs for parents and siblings of children with differing abilities since 1979. Among those programs, Susan has coordinated support groups specifically for parents of children with Down syndrome. She has presented on the needs of siblings at national and regional conferences on Down syndrome, spina bifida, and Rett syndrome, as well as for New Jersey school system parent groups. This episode is packed with information about the special needs of siblings of children with disabilities. Sue emphasizes that siblings need three things: 1) information about their sibling's disability; 2) to be able to express a range of emotions safely; and 3) strategies to solve the problems they are experiencing. Sue offers great tips and provides lots of resources for families. Here are links to the resources discussed in the episode: You can find Family Resource Associates at: <a href="https://www.frainc.org/" rel="nofollow" target="_blank">Family Resource Associates</a>Sue has co-authored “Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters” with Dr. Brian Skotko. This book, along with other specialty books related to children with special needs, is currently available at <a href="http://www.woodbinehouse.com/" rel="nofollow" target="_blank">www.Woodbinehouse.com</a>. FYI, this publisher may be going out of business later in 2022. The <a href="https://siblingleadership.org/" rel="nofollow" target="_blank">Sibling Leadership Network | Siblings of people with disabilities</a> is the national sibling network for adult siblings Levine and Skotko also have develop a sibling program which is available here: <a href="https://siblingslearnaboutdownsyndrome.com/" rel="nofollow" target="_blank">Down Syndrome Workshops for Siblings (siblingslearnaboutdownsyndrome.com)</a> . As Sue discusses in the webinar, this is not just applicable to siblings of individuals with Down syndrome but can be adapted to any group.  Don Meyer, author of the book "Sibshops", has a  website <a href="http://www.siblingsupport.org/" rel="nofollow" target="_blank">www.siblingsupport.org</a> that may be of interest.  Please join us over in the Safe Harbor Podcast group on Facebook, and email Theresa at safeharborpodcast@gmail.com to get on the mailing list and learn about upcoming projects. Also rate and review the podcast to help others find it. Be sure to subscribe so you don't miss an episode. Thanks for listening!!

Episode 5 - An Important Conversation about Siblings of Children with Disabilities  with Sue Levine

Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome.  Ms. Levine and Dr. Skotko have numerous publications and have lead many national workshops on this topic.  More information on sibling workshops can be found at: https://siblingslearnaboutdownsyndrome.com/ The study referenced in the podcast can be found at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/ Fasten Your Seatbelt Book  https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/ Fasten Your Seatbelt YouTube Channel https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg NDSC Adult Sibling Toolkit https://www.ndsccenter.org/programs-resources/adult-siblings/ Sibling Leadership Network https://siblingleadership.org/   Sibling Support Project https://www.siblingsupport.org/ Adult Medical Issues Podcast  https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued More information on Dr. Skotko and his work: http://brianskotko.com

Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome.  Ms. Levine and Dr. Skotko have numerous publications and have lead many national workshops on this topic.  More information on sibling workshops can be found at: <a href="https://siblingslearnaboutdownsyndrome.com/" rel="nofollow" target="_blank">https://siblingslearnaboutdownsyndrome.com/</a> The study referenced in the podcast can be found at: <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/" rel="nofollow" target="_blank">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348944/</a> Fasten Your Seatbelt Book <a href="https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/" rel="nofollow" target="_blank"> https://www.woodbinehouse.com/product/fasten-seatbelt-crash-course-syndrome-brothers-sisters/</a> Fasten Your Seatbelt YouTube Channel <a href="https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg" rel="nofollow" target="_blank">https://www.youtube.com/channel/UCwGc9-pY5ACu1t53aIQEKHg</a> NDSC Adult Sibling Toolkit <a href="https://www.ndsccenter.org/programs-resources/adult-siblings/" rel="nofollow" target="_blank">https://www.ndsccenter.org/programs-resources/adult-siblings/</a> Sibling Leadership Network <a href="https://siblingleadership.org/" rel="nofollow" target="_blank">https://siblingleadership.org/</a> Sibling Support Project <a href="https://www.siblingsupport.org/" rel="nofollow" target="_blank">https://www.siblingsupport.org/</a> Adult Medical Issues Podcast <a href="https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued" rel="nofollow" target="_blank"> https://www.chp.edu/our-services/down-syndrome/podcasts/adult-related-issued</a> More information on Dr. Skotko and his work: <a href="https://www.ndsccenter.org/programs-resources/adult-siblings/" rel="nofollow" target="_blank">http://brianskotko.com</a>

#64 - Sibling Topics (with Sue Levine and Brian Skotko, MD)