Daniel DeFabio
13 Podcast Episodes
Adapting Your Mindset In The Face Of Adversity with Daniel DeFabio
Adapting Your Mindset In The Face Of Adversity with Daniel DeFabio
At the age of 12 months, Daniel DeFabio’s first child Lucas was diagnosed with a rare disease called Menkes Syndrome. Af... Read more
14 Jun 2022
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51mins
Parenting Differently When You Expect a Shorter Life with Daniel DeFabio
Parenting Differently When You Expect a Shorter Life with Daniel DeFabio
075: Welcome back to the Special Needs Mom podcast. Today I’m doing something totally different and I have a dad on the ... Read more
10 Feb 2022
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57mins
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A Rare Reality, Episode Two: A Rare Dad’s Powerful Story: A Candid Conversation with Daniel DeFabio
A Rare Reality, Episode Two: A Rare Dad’s Powerful Story: A Candid Conversation with Daniel DeFabio
From Rare Dad, to Global Genes, to The Disorder Channel, to the Rare Disease Film Festival and everything in between, we... Read more
14 Jan 2022
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30mins
The Disorder Dads (Part 2): Daniel DeFabio’s Surprisingly Grateful Response
The Disorder Dads (Part 2): Daniel DeFabio’s Surprisingly Grateful Response
This is part two of our 3-part series about a couple of rare disease Dads finding themselves doing things they never exp... Read more
8 Aug 2021
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37mins
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17. Meet a Partner: The Rare Disorder Podcast X The Disorder Channel ft. Daniel DeFabio, Co-Founder
17. Meet a Partner: The Rare Disorder Podcast X The Disorder Channel ft. Daniel DeFabio, Co-Founder
In this episode, I chat with Daniel DeFabio, a co-founder and co-producer of this film festival and rare awareness event... Read more
16 Jul 2021
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21mins
23 - Menkes Syndrome ft. Daniel DeFabio
23 - Menkes Syndrome ft. Daniel DeFabio
This week's interview is with Daniel DeFabio, whose son had Menkes Syndrome (aka Kinky Hair Syndrome). Menkes is a genet... Read more
15 Jul 2021
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43mins
Beginners Guide to Rare Disease - Anecdotes For Those Early Days of Diagnosis with Daniel DeFabio
Beginners Guide to Rare Disease - Anecdotes For Those Early Days of Diagnosis with Daniel DeFabio
Daniel DeFabio and I are having a parent-to-parent discussion and bringing you guidance if you are a newly diagnosed fam... Read more
14 Jan 2021
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45mins
Dad to Dad 116 - Daniel DeFabio Part 2 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 116 - Daniel DeFabio Part 2 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
On this Special Fathers Network Dad to Dad podcast It's the conclusion of host David Hirsch's conversation with multi me... Read more
18 Sep 2020
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38mins
Dad to Dad 115 - Daniel DeFabio Part 1 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
Dad to Dad 115 - Daniel DeFabio Part 1 - Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease
On this Special Fathers Network Dad to Dad podcast host David Hirsch talks with multi media producer, director and marke... Read more
11 Sep 2020
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35mins
Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival
Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival
Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session... Read more
21 Oct 2019
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1hr 51mins
