Luke Rosen

7 Podcast Episodes

Episode 2: Funny Liturgical Moments with Special Guest: Composer, Luke Rosen.

Episode 2: Funny Liturgical Moments with Special Guest: Composer, Luke Rosen.

Our guest on this second episode of the podcast is Catholic Musician & Composer, Luke Rosen. Luke & Craig talk a... Read more

5 Feb 2023

54mins

The Power of a Rare Disease Community - Luke Rosen, Founder of KIF1A.org

The Power of a Rare Disease Community - Luke Rosen, Founder of KIF1A.org

“You know, it's easy to say that default answer that everything's okay, but it's really not. She's lost a lot of her vis... Read more

1 Dec 2022

43mins

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#186 n-Lorem: Nano-Rare Diseases with Luke Rosen and Wendy Chung

#186 n-Lorem: Nano-Rare Diseases with Luke Rosen and Wendy Chung

We are thrilled to share a brand new podcast that Kira Dineen co-produces, the n-Lorem “Patient Empowerment Program”. Th... Read more

27 May 2022

Susannah’s Story with Dr. Wendy Chung and Luke Rosen

Susannah’s Story with Dr. Wendy Chung and Luke Rosen

Dr. Stan Crooke talks to Luke Rosen and Wendy Chung about Luke’s seven-year old daughter, Susannah.  Susannah has a gene... Read more

25 May 2022

49mins

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A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen

A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke Rosen

ONCE UPON A GENE - EPISODE 116A Dads Fight to Survive Cancer and the Heavy Burdens of Rare Disease with Luke RosenLuke R... Read more

6 Jan 2022

49mins

#042: Vocal Care, Advent Edition (with Andre Heywood, ft. Luke Rosen)

#042: Vocal Care, Advent Edition (with Andre Heywood, ft. Luke Rosen)

You and I both know how busy this time of year is. I’ve said it on this program before, and you are feeling it out there... Read more

3 Dec 2018

28mins

048 – Finding a Mouse With Luke Rosen, KIF1A.org

048 – Finding a Mouse With Luke Rosen, KIF1A.org

This week we are joined by former screenwriter/actor, founder of KIF1A.org, and 2018 Rare Champion of Hope Honoree, Luke... Read more

13 Aug 2018

39mins

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