9 Podcast Episodes
Effisode - Rare and Relatable - Rare Disease Stories on Clubhouse with Effie Parks and Bo Bigelow
Effisode - Rare and Relatable - Rare Disease Stories on Clubhouse with Effie Parks and Bo Bigelow
Intro music by Scott Holmes
10 Aug 2021
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4mins
The Disorder Dads (Part 1): Bo Bigelow's Story
The Disorder Dads (Part 1): Bo Bigelow's Story
We are starting a unique 3-part series about a couple of rare disease Dads finding themselves doing things they never ex... Read more
24 Jul 2021
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32mins
Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow
Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow
Amy and Patrick speak with students at Brown University who’ve been working with Save One Life in honor of World Hemophi... Read more
16 Apr 2021
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42mins
Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio
Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio
The Disorder Channel and DISORDER: Rare Disease Film Festival co-founder and rare disease parent Bo Bigelow joins BloodS... Read more
11 Sep 2020
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52mins
Bo Bigelow
Bo Bigelow
Bo Bigelow is the chairman of the Foundation for USP7 Related Diseases (usp7.org). He and his wife are the parents of tw... Read more
24 Jun 2020
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34mins
The Rare Disease Film Festival with Daniel DeFabio and Bo Bigelow
The Rare Disease Film Festival with Daniel DeFabio and Bo Bigelow
Logan chats with Daniel DeFabio and Bo Bigelow, co-founders of Disorder: The Rare Disease Film Festival and fathers of c... Read more
3 Oct 2019
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23mins
Dad to Dad 51- Bo Bigelow, father of two, including a child with Autism and USP7, a rare gene mutation.
Dad to Dad 51- Bo Bigelow, father of two, including a child with Autism and USP7, a rare gene mutation.
In this Dad to Dad Podcast host David Hirsch talks with special father Bo Bigelow, a lawyer, cofounder of Disorder: A r... Read more
28 Mar 2019
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1hr 4mins
Interview with Bo Bigelow: Stronger Every Day
Interview with Bo Bigelow: Stronger Every Day
Sometimes we come across people in our lives who we find incredibly inspiring, who persevere through significant difficu... Read more
14 Nov 2017
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44mins
#68 Bo Bigelow on USP7-Related Disorders
#68 Bo Bigelow on USP7-Related Disorders
Bo Bigelow made national news when he used Reddit and social media to find a diagnosis for the genetic disorder his daug... Read more
29 Sep 2017
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28mins