Spela Mirosevic's guest appearances

Spela Mirosevic

Dad to Dad  Podcast

Few & Far Between

OwlTail

Our guest this week is Spela Mirosovic. who is a psychotherapist and biopsychologist, working as a researcher at the Medical University Ljubljana.  Her work is focused on exploring unmet needs of cancer survivors and teaching mindfulness programs. Spela is also a mother to 2-year-old Urban who was diagnosed with CTNNB1, a rare autosomal genetic disorder that affects an estimated 1 out of 50,000 children worldwide.  Spela is also co-founded and president of the CTNNB1 Foundation created to help find a cure for this debilitating syndrome.  We’ll hear Spela’s story and much more on this  Special Fathers Network Dad to Dad Podcast.Website – https://ctnnb1-foundation.org Email – spela@ctnnb1-foundation.org LinkedIn -  https://www.linkedin.com/in/spelakrizanec/ Cure CTNNB1 website - https://www.curectnnb1.org Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs.  Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis.  I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs.  The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do.  They simply share their experiences and how they have made the most of challenging situations.  Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA Please support the SFN.  Click here to donate: https://21stcenturydads.org/donate/

Our guest this week is Spela Mirosovic. who is a psychotherapist and biopsychologist, working as a researcher at the Medical University Ljubljana. Her work is focused on exploring unmet needs of cancer survivors and teaching mindfulness programs. Spela is also a mother to 2-year-old Urban who was diagnosed with CTNNB1, a rare autosomal genetic disorder that affects an estimated 1 out of 50,000 children worldwide. Spela is also co-founded and president of the CTNNB1 Foundation created to help find a cure for this debilitating syndrome. We’ll hear Spela’s story and much more on this Special Fathers Network Dad to Dad Podcast. Website – <a href="https://ctnnb1-foundation.org" rel="noopener nofollow" target="_blank">https://ctnnb1-foundation.org</a> Email – <a href="mailto:spela@ctnnb1-foundation.org">spela@ctnnb1-foundation.org</a> LinkedIn - <a href="https://www.linkedin.com/in/spelakrizanec/" rel="noopener nofollow" target="_blank">https://www.linkedin.com/in/spelakrizanec/</a> Cure CTNNB1 website - <a href="https://www.curectnnb1.org" rel="noopener nofollow" target="_blank">https://www.curectnnb1.org</a> Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through." SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: <a href="https://21stcenturydads.org/about-the-special-fathers-network/" rel="noopener nofollow" target="_blank">https://21stcenturydads.org/about-the-special-fathers-network/</a> Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - <a href="https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA" rel="noopener nofollow" target="_blank">https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA</a> Please support the SFN. Click here to donate: <a href="https://21stcenturydads.org/donate/" rel="noopener nofollow" target="_blank">https://21stcenturydads.org/donate/</a>

Dad to Dad 196 - Spela Mirosevic of Ljubljana, Slovenia, Co-Founder Of The CTNNB1 Foundation, Mother of Two, Including A Son With CTNBB1

Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few &amp; Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.

Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few &amp; Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.