Hi, friends! Thanks so much for joining me on this podcast! I feel like each time I do a podcast now, I’m apologizing for not being consistent in the recordings. I was doing so well before COVID, and even early on during the pandemic.  Then what happened? Well, virtual school happened, my work life was thrown upside down on its head, and I started experiencing extreme anxiety. I’ve battled with anxiety for nearly all of my life, but everything really just imploded.  I had to take a step back to focus on getting healthy, being there for my family, and keeping my business afloat. It was a lot, but I feel like we’re on the other side and I’ve been able to start getting back into the swing of things…and have even added a few more projects to my plate. Not sure my mother agrees with this, but these projects are ones that feed my soul, and give me energy…so that’s good, right? So, I wanted to take some time to do a reintroduction and an update on what has actually been going on. There are so many exciting things happening, and I really do feel like there has been a shift in mindset. I live in Kentucky with my amazing husband Cameron, and the beat of my heart, my son, Alex. He’s NINE years old now and in the third grade. That sounds so unreal. I’m not sure where all the time is going! Several months ago, My Autism Tribe hosted an event at one of our local hotels in the community. It was just a fun event, but while having fun, we also educated our community about the autism spectrum, and Alex even took the microphone, introduced himself, and we shared some back-and-forth Q&amp;A. I had absolutely no expectations on how the evening would go, but there were so many great questions asked, relationships that were developed, and Alex was amazing! So that kinda kicked off our reintroduction with the nonprofit. Then, another amazing thing happened! We were connected with a local sheriff's department wanting to provide autism training to their officers. So, after a few meetings and several months later, My Autism Tribe partnered with them to create a video series that can be uploaded into their system so that officers can watch them in their spare time. Why is this important? Well, you can’t take all the officers off the road at the same time to conduct in-person training, so with the videos, all of them can still participate in the training…which is absolutely critical in the education and awareness of how first responders need to provide service in emergency situations with those on the spectrum. And because of this partnership, we have also now been contacted with other surrounding counties to provide the same. And if any of you listening know of someone that would like more information on how we created the video segments, reach out and let us know! On a slightly different path, but with the passion coming from the same place and the inspiration being my son, I’ve also been working on creating a children’s book series. It all started about four years ago, when I wrote a couple of stories for my son to help explain differences and challenges he was experiencing. I was told by several people that I should write more, so I did. Well, this eventually led to the creation of this series called DinoSprout, and is published by Rainbow Sparrow Books. Through the DinoSprout book series, the overall mission is to provide children, parents AND teachers/therapists with resources that cultivate healthy conversations. I really wanted a way to provide children with a mirror and a window into the special needs world. A mirror would provide children with special needs to see and learn about themselves, and a window would provide children without certain special needs to learn about others. And it’s an A-Z collection of dinosaurs! So you have the first two books, “Stella, the Sweet and Spunky Stegosaurus”, and Toby, the Terrific and Talented T-Rex”. Stella is nonverbal, Toby has sensory processing challenges, and other dinosaurs in the A-Z are also woven through each story. Drew the Dyrosaurus has ADHD, Brody the Brachiosaurus has a brace on his leg, Alex the Allosaurus has anxiety, Hadley the Hadrosaurus has food allergies. You get the idea. I researched illustrators for over a year, and then my husband finally said, “Why don’t you illustrate them yourself??” I do paint, but my paintings look nothing like a children’s illustration, but I thought I would give it a whirl. I wanted the books to be fun, simple, with drawings that children could easily connect with. Think of Pete the Cat. My son loved those books, and illustrations. So, over a year later we have released the first two books on Amazon, AND I’ve even partnered up with a Ph.D. professor Sarah Hawkins-Lear to create educational activities and curriculum that teachers can incorporate into the educational environments. It’s something that I’m not only extremely proud of, but am also so passionate about. We need to start these conversations at a young age! I’ve visited several classrooms, and it’s amazing to see the children have these AHA! Moments. Hearing things like “I know someone that has to use headphones”, “My sister can’t say words”, “Sometimes I don’t know how to make friends”. I’ve literally left classrooms and have cried. These children are yearning for connections, and they really do want to be inclusive! It’s the crazy world around us, and sadly some of the home environments, that turn this behavior in other directions. So, we need to reach them young, and reach them when they are hungry for positive relationships! The books are for ages 3-8ish, so if you or anyone else would like more information, check ‘em out! Stella and Toby are both on Amazon, or you can go to RainbowSparrowBooks.com for more information as well. I’m planning on having Sarah, the professor that I’m working with, on a podcast as well so she can share how they are being integrated. She’s a wealth of information, and such an amazing human being. I’ll provide some links in the show notes. Thank you so much for allowing me to join you today. Reach out to me on social media, send me a note, ask a question. I really do want to be with you on your journey, and I would love to have you as part of my tribe. We all need one. Love each and every one of you. Be well, and I’ll speak with you soon! www.RainbowSparrowBooks.com Books Currently on Amazon: Stella, the Sweet and Spunky Stegosaurus: https://www.amazon.com/Stella-Spunky-Stegosaurus-DinoSprout-Educational/dp/B0BJCCQ78Y/ref=sr_1_1?crid=23FD15EC1YLCO&amp;keywords=stella+the+sweet+%26+spunky+stegosaurus&amp;qid=1671226104&amp;sprefix=%2Caps%2C83&amp;sr=8-1 Toby, the Terrific and Talented T-Rex: https://www.amazon.com/Terrific-Talented-T-Rex-DinoSprout-Educational/dp/B0BJY55BTX/ref=sr_1_1?crid=1ACEXIPO6KABD&amp;keywords=toby%2C+the+terrific+and+talented+t-rex&amp;qid=1671226113&amp;sprefix=%2Caps%2C190&amp;sr=8-1

Hi, friends! Thanks so much for joining me on this podcast! I feel like each time I do a podcast now, I’m apologizing for not being consistent in the recordings. I was doing so well before COVID, and even early on during the pandemic.  Then what happened? Well, virtual school happened, my work life was thrown upside down on its head, and I started experiencing extreme anxiety. I’ve battled with anxiety for nearly all of my life, but everything really just imploded.  I had to take a step back to focus on getting healthy, being there for my family, and keeping my business afloat. It was a lot, but I feel like we’re on the other side and I’ve been able to start getting back into the swing of things…and have even added a few more projects to my plate. Not sure my mother agrees with this, but these projects are ones that feed my soul, and give me energy…so that’s good, right? So, I wanted to take some time to do a reintroduction and an update on what has actually been going on. There are so many exciting things happening, and I really do feel like there has been a shift in mindset. I live in Kentucky with my amazing husband Cameron, and the beat of my heart, my son, Alex. He’s NINE years old now and in the third grade. That sounds so unreal. I’m not sure where all the time is going! Several months ago, My Autism Tribe hosted an event at one of our local hotels in the community. It was just a fun event, but while having fun, we also educated our community about the autism spectrum, and Alex even took the microphone, introduced himself, and we shared some back-and-forth Q&amp;A. I had absolutely no expectations on how the evening would go, but there were so many great questions asked, relationships that were developed, and Alex was amazing! So that kinda kicked off our reintroduction with the nonprofit. Then, another amazing thing happened! We were connected with a local sheriff's department wanting to provide autism training to their officers. So, after a few meetings and several months later, My Autism Tribe partnered with them to create a video series that can be uploaded into their system so that officers can watch them in their spare time. Why is this important? Well, you can’t take all the officers off the road at the same time to conduct in-person training, so with the videos, all of them can still participate in the training…which is absolutely critical in the education and awareness of how first responders need to provide service in emergency situations with those on the spectrum. And because of this partnership, we have also now been contacted with other surrounding counties to provide the same. And if any of you listening know of someone that would like more information on how we created the video segments, reach out and let us know! On a slightly different path, but with the passion coming from the same place and the inspiration being my son, I’ve also been working on creating a children’s book series. It all started about four years ago, when I wrote a couple of stories for my son to help explain differences and challenges he was experiencing. I was told by several people that I should write more, so I did. Well, this eventually led to the creation of this series called DinoSprout, and is published by Rainbow Sparrow Books. Through the DinoSprout book series, the overall mission is to provide children, parents AND teachers/therapists with resources that cultivate healthy conversations. I really wanted a way to provide children with a mirror and a window into the special needs world. A mirror would provide children with special needs to see and learn about themselves, and a window would provide children without certain special needs to learn about others. And it’s an A-Z collection of dinosaurs! So you have the first two books, “Stella, the Sweet and Spunky Stegosaurus”, and Toby, the Terrific and Talented T-Rex”. Stella is nonverbal, Toby has sensory processing challenges, and other dinosaurs in the A-Z are also woven through each story. Drew the Dyrosaurus has ADHD, Brody the Brachiosaurus has a brace on his leg, Alex the Allosaurus has anxiety, Hadley the Hadrosaurus has food allergies. You get the idea. I researched illustrators for over a year, and then my husband finally said, “Why don’t you illustrate them yourself??” I do paint, but my paintings look nothing like a children’s illustration, but I thought I would give it a whirl. I wanted the books to be fun, simple, with drawings that children could easily connect with. Think of Pete the Cat. My son loved those books, and illustrations. So, over a year later we have released the first two books on Amazon, AND I’ve even partnered up with a Ph.D. professor Sarah Hawkins-Lear to create educational activities and curriculum that teachers can incorporate into the educational environments. It’s something that I’m not only extremely proud of, but am also so passionate about. We need to start these conversations at a young age! I’ve visited several classrooms, and it’s amazing to see the children have these AHA! Moments. Hearing things like “I know someone that has to use headphones”, “My sister can’t say words”, “Sometimes I don’t know how to make friends”. I’ve literally left classrooms and have cried. These children are yearning for connections, and they really do want to be inclusive! It’s the crazy world around us, and sadly some of the home environments, that turn this behavior in other directions. So, we need to reach them young, and reach them when they are hungry for positive relationships! The books are for ages 3-8ish, so if you or anyone else would like more information, check ‘em out! Stella and Toby are both on Amazon, or you can go to <a href="http://RainbowSparrowBooks.com" rel="nofollow" target="_blank">RainbowSparrowBooks.com</a> for more information as well. I’m planning on having Sarah, the professor that I’m working with, on a podcast as well so she can share how they are being integrated. She’s a wealth of information, and such an amazing human being. I’ll provide some links in the show notes. Thank you so much for allowing me to join you today. Reach out to me on social media, send me a note, ask a question. I really do want to be with you on your journey, and I would love to have you as part of my tribe. We all need one. Love each and every one of you. Be well, and I’ll speak with you soon! <a href="http://www.RainbowSparrowBooks.com" rel="nofollow" target="_blank">www.RainbowSparrowBooks.com</a> Books Currently on Amazon: <ol><li>Stella, the Sweet and Spunky Stegosaurus:</li> </ol><a href="https://www.amazon.com/Stella-Spunky-Stegosaurus-DinoSprout-Educational/dp/B0BJCCQ78Y/ref=sr_1_1?crid=23FD15EC1YLCO&amp;keywords=stella+the+sweet+%26+spunky+stegosaurus&amp;qid=1671226104&amp;sprefix=%2Caps%2C83&amp;sr=8-1" rel="nofollow" target="_blank">https://www.amazon.com/Stella-Spunky-Stegosaurus-DinoSprout-Educational/dp/B0BJCCQ78Y/ref=sr_1_1?crid=23FD15EC1YLCO&amp;keywords=stella+the+sweet+%26+spunky+stegosaurus&amp;qid=1671226104&amp;sprefix=%2Caps%2C83&amp;sr=8-1</a> <ol><li>Toby, the Terrific and Talented T-Rex:</li> </ol><a href="https://www.amazon.com/Terrific-Talented-T-Rex-DinoSprout-Educational/dp/B0BJY55BTX/ref=sr_1_1?crid=1ACEXIPO6KABD&amp;keywords=toby%2C+the+terrific+and+talented+t-rex&amp;qid=1671226113&amp;sprefix=%2Caps%2C190&amp;sr=8-1" rel="nofollow" target="_blank">https://www.amazon.com/Terrific-Talented-T-Rex-DinoSprout-Educational/dp/B0BJY55BTX/ref=sr_1_1?crid=1ACEXIPO6KABD&amp;keywords=toby%2C+the+terrific+and+talented+t-rex&amp;qid=1671226113&amp;sprefix=%2Caps%2C190&amp;sr=8-1</a>

Police Training and Book Series

EPISODE 70: The Building Blocks Program is an individualized behavior program to help support children with autism. Marshall Pediatric Therapy offers both a comprehensive and collaborative approach to your child's therapeutic treatment with a focused-based model.

EPISODE 70: The Building Blocks Program is an individualized behavior program to help support children with autism. Marshall Pediatric Therapy offers both a comprehensive and collaborative approach to your child's therapeutic treatment with a focused-based model.

Focused ABA Therapy with the Building Blocks Program

EPISODE 69: Thanks so much for joining us today! My husband, Cameron Mills, will be co-hosting with me as we discuss the most recent big four-letter word in our home this year. It's not what you think. It's R-A-I-N, and all the challenges it brings to us personally. A trip to an amusement park, how my son is "stretching" himself to grow stronger in dealing with his challenges - we give examples and tell stories. Be sure to check out the My Autism Tribe website at www.MyAutismTribe.org in addition to our social platforms with Facebook, Instagram and Twitter.

EPISODE 69: Thanks so much for joining us today! My husband, Cameron Mills, will be co-hosting with me as we discuss the most recent big four-letter word in our home this year. It's not what you think. It's R-A-I-N, and all the challenges it brings to us personally. A trip to an amusement park, how my son is "stretching" himself to grow stronger in dealing with his challenges - we give examples and tell stories. Be sure to check out the My Autism Tribe website at <a href="http://www.MyAutismTribe.org" rel="nofollow" target="_blank">www.MyAutismTribe.org</a> in addition to our social platforms with Facebook, Instagram and Twitter.

Rain, Rain Go Away

Cameron Mills

EPISODE 68: Welcome to My Autism Tribe, an organization of advocates that are educating, supporting and empowering those in our communities. We are one voice made stronger. I'm your host, Susan Mills. Let's talk about the elephant in the room. We haven't done a podcast in awhile. We've essentially been surviving during Covid, but we wanted to get back in the game. My husband, Cameron Mills, joins me on this episode. Check out MyAutismTribe.org for more information, and be sure to follow us on social platforms Facebook, Instagram and Twitter. Thanks so much for listening, and we look forward to connecting with everyone again!

EPISODE 68: Welcome to My Autism Tribe, an organization of advocates that are educating, supporting and empowering those in our communities. We are one voice made stronger. I'm your host, Susan Mills. Let's talk about the elephant in the room. We haven't done a podcast in awhile. We've essentially been surviving during Covid, but we wanted to get back in the game. My husband, Cameron Mills, joins me on this episode. Check out <a href="http://MyAutismTribe.org" rel="nofollow" target="_blank">MyAutismTribe.org</a> for more information, and be sure to follow us on social platforms Facebook, Instagram and Twitter. Thanks so much for listening, and we look forward to connecting with everyone again!

We‘re Finally Back! with Cameron Mills

EPISODE 67: Remarriage with a Child on the Spectrum With husband, Cameron Mills   INTRO: Hi, everyone! Welcome back to My Autism Tribe. It’s been awhile since my last podcast. Many of you have been following my family’s journey for a while, so you know many of the struggles, as well as the celebrations, we have experienced over the last couple of years. This episode will feature a very special guest, my husband. From dating, to engagement, to marriage, to homeschooling during the pandemic, we talk about it all. I hope you enjoy listening to this episode, as much as we did recording it. Thanks so much for tuning in!   SEGMENT:  My husband and I met for the first time over a year ago. We started out as friends, hanging out in group settings, and started dating last October of 2019. Dating after divorce took a bit of time for me, and with me being a super protective mama, I had my standards set pretty high…some might say unreasonably high. But this man, my husband, still leaves me in awe. He’s amazing, and I’m excited to introduce him to you. Please give a warm to my husband, Cameron!   CONCLUSION:  I admit that I was skeptical about ever finding someone after my divorce. I truly never thought there would be anyone that would be a teammate with me, and would love my son as I do. No one would ever be good enough…but I was wrong. So very wrong. Cameron is my person, and I’m so thankful to have him at my side, helping me to navigate this crazy journey of parenthood. Thank you for being a part of My Autism Tribe, and for embracing my husband. Cameron, I love you. Thank you for choosing to share your life with Alex and me.   ADDITIONAL INFORMATION:   Cameron Mills Ministry: Facebook - https://www.facebook.com/cameronmillsministries   Cameron Mills Radio: Facebook - https://www.facebook.com/cameronmillsradio Instagram - https://www.instagram.com/cameronmillsradio/ Twitter - Twitter - https://twitter.com/cameronradio   Cameron Mills (personal): Twitter - Twitter - https://twitter.com/CameronMillz

EPISODE 67: Remarriage with a Child on the Spectrum With husband, Cameron Mills INTRO: Hi, everyone! Welcome back to My Autism Tribe. It’s been awhile since my last podcast. Many of you have been following my family’s journey for a while, so you know many of the struggles, as well as the celebrations, we have experienced over the last couple of years. This episode will feature a very special guest, my husband. From dating, to engagement, to marriage, to homeschooling during the pandemic, we talk about it all. I hope you enjoy listening to this episode, as much as we did recording it. Thanks so much for tuning in! SEGMENT: My husband and I met for the first time over a year ago. We started out as friends, hanging out in group settings, and started dating last October of 2019. Dating after divorce took a bit of time for me, and with me being a super protective mama, I had my standards set pretty high…some might say unreasonably high. But this man, my husband, still leaves me in awe. He’s amazing, and I’m excited to introduce him to you. Please give a warm to my husband, Cameron! CONCLUSION: I admit that I was skeptical about ever finding someone after my divorce. I truly never thought there would be anyone that would be a teammate with me, and would love my son as I do. No one would ever be good enough…but I was wrong. So very wrong. Cameron is my person, and I’m so thankful to have him at my side, helping me to navigate this crazy journey of parenthood. Thank you for being a part of My Autism Tribe, and for embracing my husband. Cameron, I love you. Thank you for choosing to share your life with Alex and me. ADDITIONAL INFORMATION: Cameron Mills Ministry: Facebook - <a href="https://www.facebook.com/cameronmillsministries" rel="nofollow" target="_blank">https://www.facebook.com/cameronmillsministries</a> Cameron Mills Radio: Facebook - <a href="https://www.facebook.com/cameronmillsradio" rel="nofollow" target="_blank">https://www.facebook.com/cameronmillsradio</a> Instagram - <a href="https://www.instagram.com/cameronmillsradio/" rel="nofollow" target="_blank">https://www.instagram.com/cameronmillsradio/</a> Twitter - Twitter - <a href="https://twitter.com/cameronradio" rel="nofollow" target="_blank">https://twitter.com/cameronradio</a> Cameron Mills (personal): Twitter - Twitter - <a href="https://twitter.com/CameronMillz" rel="nofollow" target="_blank">https://twitter.com/CameronMillz</a>

Remarriage with a Child on the Spectrum

EPISODE 66: Behavioral Health Therapy for ASD With Sean Inderbitzen   INTRO: Hi, everyone! Welcome back to My Autism Tribe. We’ll be speaking with Sean Inderbitzen on today’s show. He’s a mental health clinician who is on the autism spectrum, and reached out a couple of weeks ago because he wanted to share his voice. It makes me so happy when people reach out to me – it truly does. I want to make sure that everyone is able to share their voice, because that’s how we learn, how we expand and stretch ourselves, and at the end of the day – accept one another regardless if our views and opinions may sometimes vary from others. Thanks so much for listening!   SEGMENT:  Sean was diagnosed with autism at the age of 18, and is now a practicing behavioral health therapist. He’s so passionate about helping his clients, and letting others know about the importance of having counseling services available to people who have autism. He notes, however, that in a study 43 out of 44 clinicians are not comfortable in counseling patients on the spectrum. It’s pretty special that Sean has this personal experience as a way to relate and empathize with those lives that he touches. Please welcome Sean to our show!   CONCLUSION:  “The process of therapy for clinicians who work with individuals on the spectrum requires a unique subset of therapeutic skill that is not always taught in graduate training. While it’s important to utilize all of the common microskills (like showing empathy, active listening, open-ended questioning) with the ASD population, it’s also important to recognize these individuals may have an additional set of needs for the therapy room. For example, they may not have the cognitive capacity to follow metaphors and/or analogies that are often used in therapy.” Providing continuing professional development for clinicians will help increase the number of competent professionals in providing these appropriate services, and I’m so happy that individuals like Sean Inderbitzen are advocating. Thanks so much for being a part of My Autism Tribe, and I’ll see ya soon!   ADDITIONAL INFORMATION: Email: seabindie@me.com https://www.youtube.com/watch?v=uYJdX4NCous https://www.youtube.com/watch?v=EYgqa_FbTok

EPISODE 66: Behavioral Health Therapy for ASD With Sean Inderbitzen INTRO: Hi, everyone! Welcome back to My Autism Tribe. We’ll be speaking with Sean Inderbitzen on today’s show. He’s a mental health clinician who is on the autism spectrum, and reached out a couple of weeks ago because he wanted to share his voice. It makes me so happy when people reach out to me – it truly does. I want to make sure that everyone is able to share their voice, because that’s how we learn, how we expand and stretch ourselves, and at the end of the day – accept one another regardless if our views and opinions may sometimes vary from others. Thanks so much for listening! SEGMENT: Sean was diagnosed with autism at the age of 18, and is now a practicing behavioral health therapist. He’s so passionate about helping his clients, and letting others know about the importance of having counseling services available to people who have autism. He notes, however, that in a study 43 out of 44 clinicians are not comfortable in counseling patients on the spectrum. It’s pretty special that Sean has this personal experience as a way to relate and empathize with those lives that he touches. Please welcome Sean to our show! CONCLUSION: “The process of therapy for clinicians who work with individuals on the spectrum requires a unique subset of therapeutic skill that is not always taught in graduate training. While it’s important to utilize all of the common microskills (like showing empathy, active listening, open-ended questioning) with the ASD population, it’s also important to recognize these individuals may have an additional set of needs for the therapy room. For example, they may not have the cognitive capacity to follow metaphors and/or analogies that are often used in therapy.” Providing continuing professional development for clinicians will help increase the number of competent professionals in providing these appropriate services, and I’m so happy that individuals like Sean Inderbitzen are advocating. Thanks so much for being a part of My Autism Tribe, and I’ll see ya soon! ADDITIONAL INFORMATION: Email: seabindie@me.com <a href="https://www.youtube.com/watch?v=uYJdX4NCous" rel="nofollow" target="_blank">https://www.youtube.com/watch?v=uYJdX4NCous</a> <a href="https://www.youtube.com/watch?v=EYgqa_FbTok" rel="nofollow" target="_blank">https://www.youtube.com/watch?v=EYgqa_FbTok</a>

Behavioral Health Therapy for ASD

EPISODE 65: NEURODIVERSITY IN THE WORKPLACE With Joseph Riddle   INTRO: There are really important skills that people with autism have, that make them, in some cases, the best employees you could have. This is something that small businesses could benefit from, and is already something that many large corporations are already using to their advantage. Today, we’re speaking with Joseph Riddle, the Director of The Neurodiversity in the Workplace team, a dedicated group of talented individuals who work tirelessly for the people they serve. Thanks so much for listening!   SEGMENT: Because of certain traits of autism, individuals with autism often have trouble getting past the interview stage for a job or maintaining a position once they are hired. Joseph Riddle has led a team to design and partner in implementing hiring programs for neurodiverse individuals. Companies such as SAP and their Autism at Work program, Dell, and Bank of America have participated in hiring programs allowing the creation of a network of employers and talented individuals on the spectrum. These companies, with support from Joe and his team, are leading the way in demonstrating to the American workforce that neurodiverse talent is both valuable and productive.   CONCLUSION: Few resources have been allocated to understanding autistic adults. According to a 2017 report from the Interagency Autism Coordinating Committee, only 2 percent of autism research funding goes into understanding the developmental disorder for the adult population. Autism isn’t just something for young individuals, and more needs to be done to propel and prepare this population. With organizations like Neurodiversity in the Workplace, we can not only become inspired, but also determined to make the workforce a better and more welcoming environment for our loved ones. Thanks so much for being a part of My Autism Tribe, and I’ll see you soon.   ADDITIONAL INFORMATION: Email: neurodiversity@nitw.org Facebook: https://www.facebook.com/NeurodiversityInTheWorkplace/ Instagram: https://www.instagram.com/neurodiversityintheworkplace/ Twitter: https://twitter.com/4Neurodiversity

EPISODE 65: NEURODIVERSITY IN THE WORKPLACE With Joseph Riddle INTRO: There are really important skills that people with autism have, that make them, in some cases, the best employees you could have. This is something that small businesses could benefit from, and is already something that many large corporations are already using to their advantage. Today, we’re speaking with Joseph Riddle, the Director of The Neurodiversity in the Workplace team, a dedicated group of talented individuals who work tirelessly for the people they serve. Thanks so much for listening! SEGMENT: Because of certain traits of autism, individuals with autism often have trouble getting past the interview stage for a job or maintaining a position once they are hired. Joseph Riddle has led a team to design and partner in implementing hiring programs for neurodiverse individuals. Companies such as SAP and their Autism at Work program, Dell, and Bank of America have participated in hiring programs allowing the creation of a network of employers and talented individuals on the spectrum. These companies, with support from Joe and his team, are leading the way in demonstrating to the American workforce that neurodiverse talent is both valuable and productive. CONCLUSION: Few resources have been allocated to understanding autistic adults. According to a 2017 report from the Interagency Autism Coordinating Committee, only 2 percent of autism research funding goes into understanding the developmental disorder for the adult population. Autism isn’t just something for young individuals, and more needs to be done to propel and prepare this population. With organizations like Neurodiversity in the Workplace, we can not only become inspired, but also determined to make the workforce a better and more welcoming environment for our loved ones. Thanks so much for being a part of My Autism Tribe, and I’ll see you soon. ADDITIONAL INFORMATION: Email: <a href="mailto:neurodiversity@nitw.org">neurodiversity@nitw.org</a> Facebook: <a href="https://www.facebook.com/NeurodiversityInTheWorkplace/" rel="nofollow" target="_blank">https://www.facebook.com/NeurodiversityInTheWorkplace/</a> Instagram: <a href="https://www.instagram.com/neurodiversityintheworkplace/" rel="nofollow" target="_blank">https://www.instagram.com/neurodiversityintheworkplace/</a> Twitter: <a href="https://twitter.com/4Neurodiversity" rel="nofollow" target="_blank">https://twitter.com/4Neurodiversity</a>

Neurodiversity in the Workplace

EPISODE 64: ENHANCING LIVES FOR FAMILIES OF AUTISM With Rachelle Vartanian   INTRO: Hi, everyone! Thanks for connecting with this week’s podcast featuring Rachelle Vartanian. She’s the founder and president of the Living and Learning Enrichment Center, a former special education teacher, and mother of a teenager on the autism spectrum. If this is your first time here, welcome! If you are a returning listener, thanks for coming back! We truly do appreciate it. Be sure to check us out on your social platforms, and if you’re enjoying this podcast, we’d love your rating and review wherever you listen to podcasts – it helps make our voices stronger. Let’s get started!   SEGMENT: The Living and Learning Enrichment Center is based in Northville, Michigan and their mission is to help individuals with autism and related challenges reach their full potential in work, relationships and in the community. They have summer camps, art and music classes, clubs, social and professional skills groups. It’s really impressive what they’re doing, and I’m excited to speak with the founder today – Rachelle. Let’s give her a warm welcome.   CONCLUSION: The unemployment rate for individuals with autism is upwards of 90%. With training like that provided by the Living and Learning Enrichment Center, job training, real world job experiences can be achieved for those individuals with autism and other special needs. It’s truly special what these organizations are doing, and it’s my hope that more organizations will begin doing the same. Thanks for being a part of My Autism Tribe, and I’ll see ya soon!   ADDITIONAL INFORMATION: Website: https://www.livingandlearningcenter.org/ Facebook: https://www.facebook.com/livingandlearningenrichmentcenter Instagram: https://www.instagram.com/livingandlearningcenter/ Twitter: https://twitter.com/livelearncenter Pinterest: https://www.pinterest.com/livinglearnllc/boards/

EPISODE 64: ENHANCING LIVES FOR FAMILIES OF AUTISM With Rachelle Vartanian INTRO: Hi, everyone! Thanks for connecting with this week’s podcast featuring Rachelle Vartanian. She’s the founder and president of the Living and Learning Enrichment Center, a former special education teacher, and mother of a teenager on the autism spectrum. If this is your first time here, welcome! If you are a returning listener, thanks for coming back! We truly do appreciate it. Be sure to check us out on your social platforms, and if you’re enjoying this podcast, we’d love your rating and review wherever you listen to podcasts – it helps make our voices stronger. Let’s get started! SEGMENT: The Living and Learning Enrichment Center is based in Northville, Michigan and their mission is to help individuals with autism and related challenges reach their full potential in work, relationships and in the community. They have summer camps, art and music classes, clubs, social and professional skills groups. It’s really impressive what they’re doing, and I’m excited to speak with the founder today – Rachelle. Let’s give her a warm welcome. CONCLUSION: The unemployment rate for individuals with autism is upwards of 90%. With training like that provided by the Living and Learning Enrichment Center, job training, real world job experiences can be achieved for those individuals with autism and other special needs. It’s truly special what these organizations are doing, and it’s my hope that more organizations will begin doing the same. Thanks for being a part of My Autism Tribe, and I’ll see ya soon! ADDITIONAL INFORMATION: Website: <a href="https://www.livingandlearningcenter.org/" rel="nofollow" target="_blank">https://www.livingandlearningcenter.org/</a> Facebook: <a href="https://www.facebook.com/livingandlearningenrichmentcenter" rel="nofollow" target="_blank">https://www.facebook.com/livingandlearningenrichmentcenter</a> Instagram: <a href="https://www.instagram.com/livingandlearningcenter/" rel="nofollow" target="_blank">https://www.instagram.com/livingandlearningcenter/</a> Twitter: <a href="https://twitter.com/livelearncenter" rel="nofollow" target="_blank">https://twitter.com/livelearncenter</a> Pinterest: <a href="https://www.pinterest.com/livinglearnllc/boards/" rel="nofollow" target="_blank">https://www.pinterest.com/livinglearnllc/boards/</a>

Enhancing Lives for Families of Autism

EPISODE 63: Co-occurring Conditions in Autism With Brad Ferguson of Thompson Center for Autism &amp; Neurodevelopmental Disorders at the University of Missouri   INTRO:  Hi, everyone! Welcome back to My Autism Tribe. I hope everyone is hanging in there. School is out, so no more of the Non-Traditional Instruction in our home, however, we are going a little crazier as the days go on. Regardless, thanks for checking back in, and if this is your first time, welcome. I hope you find a piece of your autism advocacy here. Today’s guest is Dr. Brad Ferguson, an Assistant Research Professor in the Departments of Health Psychology, and Radiology at the Thompson Center for Autism &amp; Neurodevelopmental Disorders at the University of Missouri. I wonder if he has all of this on a business card (laugh). I’m really pumped about the information that he’s going to share today, so please stay tuned. Don’t forget to check us out on our Facebook, Instagram, and Twitter platforms, and if you’re enjoying this podcast we sure would love a rating and review wherever you listen to podcasts. It helps make our voices stronger. Thanks for listening!   SEGMENT: Dr. Ferguson has been conducting research in autism for over 12 years, and his main research focus over that period of time has been the study of co-occurring conditions in autism, mainly gastrointestinal problems and problem behaviors. His goal is to find out why many autistic individuals have co-occurring conditions so that they can be addressed, which will ultimately lead to increased quality of life. Let’s welcome Dr. Ferguson to our show.   CONCLUSION: There are so many organizations out there that are doing amazing research on autism-related topics – many of them that I’m just discovering. These people are devoting their lives to make sure we are making positive strides, gaining more information than we had yesterday, in order to make improvements in the lives of those we love so much. Thanks for being a part of My Autism Tribe, and I’ll talk to you soon!   ADDITIONAL INFORMATION: thompsoncenter.missouri.edu Facebook: https://www.facebook.com/TheThompsonCenter/ Instagram: https://www.instagram.com/mutcautism/

EPISODE 63: Co-occurring Conditions in Autism With Brad Ferguson of Thompson Center for Autism &amp; Neurodevelopmental Disorders at the University of Missouri INTRO: Hi, everyone! Welcome back to My Autism Tribe. I hope everyone is hanging in there. School is out, so no more of the Non-Traditional Instruction in our home, however, we are going a little crazier as the days go on. Regardless, thanks for checking back in, and if this is your first time, welcome. I hope you find a piece of your autism advocacy here. Today’s guest is Dr. Brad Ferguson, an Assistant Research Professor in the Departments of Health Psychology, and Radiology at the Thompson Center for Autism &amp; Neurodevelopmental Disorders at the University of Missouri. I wonder if he has all of this on a business card (laugh). I’m really pumped about the information that he’s going to share today, so please stay tuned. Don’t forget to check us out on our Facebook, Instagram, and Twitter platforms, and if you’re enjoying this podcast we sure would love a rating and review wherever you listen to podcasts. It helps make our voices stronger. Thanks for listening! SEGMENT: Dr. Ferguson has been conducting research in autism for over 12 years, and his main research focus over that period of time has been the study of co-occurring conditions in autism, mainly gastrointestinal problems and problem behaviors. His goal is to find out why many autistic individuals have co-occurring conditions so that they can be addressed, which will ultimately lead to increased quality of life. Let’s welcome Dr. Ferguson to our show. CONCLUSION: There are so many organizations out there that are doing amazing research on autism-related topics – many of them that I’m just discovering. These people are devoting their lives to make sure we are making positive strides, gaining more information than we had yesterday, in order to make improvements in the lives of those we love so much. Thanks for being a part of My Autism Tribe, and I’ll talk to you soon! ADDITIONAL INFORMATION: <a href="http://thompsoncenter.missouri.edu/" rel="nofollow" target="_blank">thompsoncenter.missouri.edu</a> Facebook: <a href="https://www.facebook.com/TheThompsonCenter/" rel="nofollow" target="_blank">https://www.facebook.com/TheThompsonCenter/</a> Instagram: <a href="https://www.instagram.com/mutcautism/" rel="nofollow" target="_blank">https://www.instagram.com/mutcautism/</a>

Co-occurring Conditions in Autism

EPISODE 62: EXCEPTIONAL MINDS ON THE AUTISM SPECTRUM With guest Corinne Levitt   INTRO: Hello, and welcome back! Today we’re speaking with Corinne Levitt, a special educator and author of a new book called “Exceptional Minds Across the Autism Spectrum”. Her background in learning disability psycholinguistics, and the arts has enabled her to “teach to the talent” while encouraging her students to discover and explore their potential. She’s a fascinating woman, and I’m excited for her to share her story. Stay tuned and follow us on our social media platforms to engage or ask questions. Thanks for listening!   SEGMENT: Corinne Levitt wrote her latest book in recognition of the need to promote the important role an enriched educational experience can have on the lives of students who stand to benefit the most from best educational practices. Let’s welcome Corinne to our show today.   CONCLUSION: As Corinne has stated, “more than money, resources, or even teaching methods, it is our attitude toward those who seem different that influences our expectations and limits learning opportunities for growth and development. It’s our attitude and understanding that shape our vision. But attitudes and mindsets can change, and when that happens, we can move closer to understanding the struggles and learning challenges of individuals with exceptionalities.” I hope this podcast finds you and your family safe and healthy. Keep up the great work, and I’ll talk with you soon!   ADDITIONAL INFORMATION: www.teachexceptionalminds.com

EPISODE 62: EXCEPTIONAL MINDS ON THE AUTISM SPECTRUM With guest Corinne Levitt INTRO: Hello, and welcome back! Today we’re speaking with Corinne Levitt, a special educator and author of a new book called “Exceptional Minds Across the Autism Spectrum”. Her background in learning disability psycholinguistics, and the arts has enabled her to “teach to the talent” while encouraging her students to discover and explore their potential. She’s a fascinating woman, and I’m excited for her to share her story. Stay tuned and follow us on our social media platforms to engage or ask questions. Thanks for listening! SEGMENT: Corinne Levitt wrote her latest book in recognition of the need to promote the important role an enriched educational experience can have on the lives of students who stand to benefit the most from best educational practices. Let’s welcome Corinne to our show today. CONCLUSION: As Corinne has stated, “more than money, resources, or even teaching methods, it is our attitude toward those who seem different that influences our expectations and limits learning opportunities for growth and development. It’s our attitude and understanding that shape our vision. But attitudes and mindsets can change, and when that happens, we can move closer to understanding the struggles and learning challenges of individuals with exceptionalities.” I hope this podcast finds you and your family safe and healthy. Keep up the great work, and I’ll talk with you soon! ADDITIONAL INFORMATION: <a href="http://www.teachexceptionalminds.com" rel="nofollow" target="_blank">www.teachexceptionalminds.com</a>

Exceptional Minds on the Autism Spectrum

Educating, Supporting and Empowering the Autism Community.

Susan is a thoughtful and resourceful warrior mom who has made it her mission to promote acceptance, compassion and inclusion for all individuals with special needs.  She’s an excellent host with inspirational guests!

Fantastic podcast!

Great info and selection of topics for autism families. Keep up the good work!

Love this podcast!

My Autism Tribe

EPISODE 61: CBD FOR AUTISM With guest Dr. Rachna Patel   INTRO: Hi, everyone! First and foremost, I want to thank everyone out there who has been patient with me these last couple of months. It turns out that working a 9-5 job, homeschooling my son, and running a nonprofit with these podcasts is a lot harder than I thought. Just know, that I’m doing my very best to bring you the most relevant information, from people within the autism community, to the best of my ability. Today, I’m speaking with Dr. Patel, who is a world-recognized expert in the field of Cannabinoid Medicine. CBD is something that we hear about all the time, but maybe perhaps, we still have very limited knowledge on. Stay tuned to hear Dr. Patel share information on CBD products, what to expect when using CBD products, while also dispelling some of our fears that we may have. Thanks for listening! SEGMENT: I’ve personally looked into CBD products, not only for myself, but also for my son. I’ve had conversations with many families on their use of CBD. Dr. Patel is with a company called Doc Patels, a company that produces CBD products made from industrial hemp plants derived on American farms which produce 100% 0.00% THC Broad Spectrum CBD products through their patented process. Their team of 30 engineers, scientists, a psychiatrist and even a dentist, along with their manufacturing partner, consist of Doc Patels. Let’s welcome Dr. Patel to our show. CONCLUSION: As families are looking for natural, healthy ways to help their loved ones, and even themselves, I hope you find this information helpful in your decision-making process. Every path is different, but whatever path you choose, know that we are here to support you along the way. Thanks so much for listening, and I’ll talk to you soon!   ADDITIONAL INFORMATION: www.DocPatels.com

EPISODE 61: CBD FOR AUTISM With guest Dr. Rachna Patel INTRO: Hi, everyone! First and foremost, I want to thank everyone out there who has been patient with me these last couple of months. It turns out that working a 9-5 job, homeschooling my son, and running a nonprofit with these podcasts is a lot harder than I thought. Just know, that I’m doing my very best to bring you the most relevant information, from people within the autism community, to the best of my ability. Today, I’m speaking with Dr. Patel, who is a world-recognized expert in the field of Cannabinoid Medicine. CBD is something that we hear about all the time, but maybe perhaps, we still have very limited knowledge on. Stay tuned to hear Dr. Patel share information on CBD products, what to expect when using CBD products, while also dispelling some of our fears that we may have. Thanks for listening! SEGMENT: I’ve personally looked into CBD products, not only for myself, but also for my son. I’ve had conversations with many families on their use of CBD. Dr. Patel is with a company called Doc Patels, a company that produces CBD products made from industrial hemp plants derived on American farms which produce 100% 0.00% THC Broad Spectrum CBD products through their patented process. Their team of 30 engineers, scientists, a psychiatrist and even a dentist, along with their manufacturing partner, consist of Doc Patels. Let’s welcome Dr. Patel to our show. CONCLUSION: As families are looking for natural, healthy ways to help their loved ones, and even themselves, I hope you find this information helpful in your decision-making process. Every path is different, but whatever path you choose, know that we are here to support you along the way. Thanks so much for listening, and I’ll talk to you soon! ADDITIONAL INFORMATION: <a href="http://www.DocPatels.com" rel="nofollow" target="_blank">www.DocPatels.com</a>

CBD for Autism

Bobby Rubio

EPISODE 55: PIXAR’S BOBBY RUBIO SHARES HIS AUTISM DAD STORY IN “FLOAT”   INTRO: Hi, everyone! Welcome to this week’s episode with a very special guest, Bobby Rubio, an autism dad and a story artist at Pixar. You may have seen his personal and professional story in thousands of news feeds around the world. You don’t want to miss this one! Also, if you’re enjoying being a part of My Autism Tribe, and listening to our podcast, we would love for you to take a moment to rate and review us wherever you listen to podcasts, and of course, share us with a friend or your organization. That’s how we make our voices stronger. We’re also on all social platforms, so give us a follow and send us a message about topics that you would like to hear about. It’s important to us that we’re providing you with information and messages that are near and dear to your heart. Thanks for listening!   SEGMENT:  When parents first receive an autism diagnosis, and even in moments afterwards, they may feel like they’re drowning…and they’re not alone. Many of us may feel like this, but our guest today has created a special animation that touches every parent, and sheds a light on the positivity that can be found in dark times. Bobby Rubio made his directorial debut with Pixar’s animated short “Float” on Disney Plus in November and it has captured our hearts and told many of our stories. Bobby has worked at Pixar as a story artist since 2012, contributing to “Inside Out”, “Incredibles 2”, and “Brave”, but “Float” broke through barriers as not only a short focused on neurodiversity, but also Pixar’s first work to feature a Filipino American animated character. The short tells the story of a father that discovers his son is different than others, and rather have the outside world view him as being different, the father keeps his son out of sight. Bobby’s own son, who was diagnosed with autism, didn’t handle the news of his son’s diagnosis well…again…just like many of us, and his testimony is so heart-felt and inspiring. Please welcome, my special guest today, Bobby Rubio.   CONCLUSION: The story behind “Float” is not only a story that autism parents can relate to, but about some of the struggles that every parent has with their children. We need to love and celebrate people from all walks of life. Being unique or different isn’t bad, but beautiful. I truly do believe that, and it’s my hope that Bobby’s story touched you in the way that it touched me. The way that it inspired me. It’s ok to step outside of your comfort zone, and embrace the unknown. Thanks so much for joining me today, for being a part of My Autism Tribe, and for being an advocate for yourself and others. I’ll see you next week!   ADDITIONAL INFORMATION FOR BOBBY: Instagram: https://www.instagram.com/bobbyrubio/ Facebook: https://www.facebook.com/barrypresh Twitter: https://twitter.com/Bobby_Rubio Disney Plus: https://www.disneyplus.com/ “Float” on Disney Plus: https://www.disneyplus.com/movies/float/7dIYGyfvHWEJ

EPISODE 55: PIXAR’S BOBBY RUBIO SHARES HIS AUTISM DAD STORY IN “FLOAT” INTRO: Hi, everyone! Welcome to this week’s episode with a very special guest, Bobby Rubio, an autism dad and a story artist at Pixar. You may have seen his personal and professional story in thousands of news feeds around the world. You don’t want to miss this one! Also, if you’re enjoying being a part of My Autism Tribe, and listening to our podcast, we would love for you to take a moment to rate and review us wherever you listen to podcasts, and of course, share us with a friend or your organization. That’s how we make our voices stronger. We’re also on all social platforms, so give us a follow and send us a message about topics that you would like to hear about. It’s important to us that we’re providing you with information and messages that are near and dear to your heart. Thanks for listening! SEGMENT: When parents first receive an autism diagnosis, and even in moments afterwards, they may feel like they’re drowning…and they’re not alone. Many of us may feel like this, but our guest today has created a special animation that touches every parent, and sheds a light on the positivity that can be found in dark times. Bobby Rubio made his directorial debut with Pixar’s animated short “Float” on Disney Plus in November and it has captured our hearts and told many of our stories. Bobby has worked at Pixar as a story artist since 2012, contributing to “Inside Out”, “Incredibles 2”, and “Brave”, but “Float” broke through barriers as not only a short focused on neurodiversity, but also Pixar’s first work to feature a Filipino American animated character. The short tells the story of a father that discovers his son is different than others, and rather have the outside world view him as being different, the father keeps his son out of sight. Bobby’s own son, who was diagnosed with autism, didn’t handle the news of his son’s diagnosis well…again…just like many of us, and his testimony is so heart-felt and inspiring. Please welcome, my special guest today, Bobby Rubio. CONCLUSION: The story behind “Float” is not only a story that autism parents can relate to, but about some of the struggles that every parent has with their children. We need to love and celebrate people from all walks of life. Being unique or different isn’t bad, but beautiful. I truly do believe that, and it’s my hope that Bobby’s story touched you in the way that it touched me. The way that it inspired me. It’s ok to step outside of your comfort zone, and embrace the unknown. Thanks so much for joining me today, for being a part of My Autism Tribe, and for being an advocate for yourself and others. I’ll see you next week! ADDITIONAL INFORMATION FOR BOBBY: Instagram: <a href="https://www.instagram.com/bobbyrubio/" rel="nofollow" target="_blank">https://www.instagram.com/bobbyrubio/</a> Facebook: <a href="https://www.facebook.com/barrypresh" rel="nofollow" target="_blank">https://www.facebook.com/barrypresh</a> Twitter: <a href="https://twitter.com/Bobby_Rubio" rel="nofollow" target="_blank">https://twitter.com/Bobby_Rubio</a> Disney Plus: <a href="https://www.disneyplus.com/" rel="nofollow" target="_blank">https://www.disneyplus.com/</a> “Float” on Disney Plus: <a href="https://www.disneyplus.com/movies/float/7dIYGyfvHWEJ" rel="nofollow" target="_blank">https://www.disneyplus.com/movies/float/7dIYGyfvHWEJ</a>

Pixar's Bobby Rubio Shares His Autism Dad Story in "Float"

EPISODE 14: This month is Autism Awareness month, and if you ask any autism advocate what this means they will very quickly remind you that advocacy takes place every day, every month, not just the month of April. Family members, friends, professionals, educators, and autistic adults and youth want to make their voices stronger. We want to promote a culture of inclusion and respect, improve community resources, and we want make sure that all receive an equal opportunity in school and at work. This isn’t an easy task, and takes more than one individual and one organization. It takes us all.   On today’s episode, we’re speaking with Megan Carranza who is a mother, podcast host and autism advocate. After Megan’s oldest child, Logan, was diagnosed with autism in March of 2017, she became a mom on a mission to spread the message of awareness, acceptance and inclusion. Megan, just like many of us, saw a need for more support within the autism community and launched her podcast, “Adventures in Autism”. The purpose of the podcast is to create a safe and supportive space for families and individuals affected by autism to come together and share their journeys. Since this is a similar mission of My Autism Tribe, we thought it would be a perfect fit for a conversation!   …………….   CONCLUSION: The My Autism Tribe podcast was started with a simple mission of making one voice stronger. It has very quickly grown to not only a podcast, but a nonprofit 501(c)(3) organization. To say that we’re excited about the growth, would be an understatement. Our voices are getting stronger, and with the continued push from all autism advocates, we ARE and WILL CONTINUE to make an impact. Thanks so much for joining My Autism Tribe…this month and ALWAYS.

EPISODE 14: This month is Autism Awareness month, and if you ask any autism advocate what this means they will very quickly remind you that advocacy takes place every day, every month, not just the month of April. Family members, friends, professionals, educators, and autistic adults and youth want to make their voices stronger. We want to promote a culture of inclusion and respect, improve community resources, and we want make sure that all receive an equal opportunity in school and at work. This isn’t an easy task, and takes more than one individual and one organization. It takes us all. On today’s episode, we’re speaking with Megan Carranza who is a mother, podcast host and autism advocate. After Megan’s oldest child, Logan, was diagnosed with autism in March of 2017, she became a mom on a mission to spread the message of awareness, acceptance and inclusion. Megan, just like many of us, saw a need for more support within the autism community and launched her podcast, “Adventures in Autism”. The purpose of the podcast is to create a safe and supportive space for families and individuals affected by autism to come together and share their journeys. Since this is a similar mission of My Autism Tribe, we thought it would be a perfect fit for a conversation! ……………. CONCLUSION: The My Autism Tribe podcast was started with a simple mission of making one voice stronger. It has very quickly grown to not only a podcast, but a nonprofit 501(c)(3) organization. To say that we’re excited about the growth, would be an understatement. Our voices are getting stronger, and with the continued push from all autism advocates, we ARE and WILL CONTINUE to make an impact. Thanks so much for joining My Autism Tribe…this month and ALWAYS.

Autism Advocates: Making Our Voices Stronger

EPISODE 19 Three years ago, my son Alex was diagnosed with autism and our expected journey changed. I was intimidated, panicked, fearful, distressed. It was a dark and confusing time. Once I wrapped my head around the diagnosis, started digging for resources and support, and over time, I’ve found pieces of advice that might help you on your journey. Today’s guest is Tani Stevenson. She’s an autism mom of four, with two of her precious kiddos on the spectrum. We’ll be talking about the journey after receiving an autism diagnosis. She’s such a delight, and I hope you find this episode inspiring, perhaps a bit funny, and educational.   ADVICE: #1: Don’t jump to conclusion. There will be so many people telling you so many things – it can be intimidating. Chin up! Push forward! #2: Things could be worse! Autism is not a tragedy. It will all be ok! #3: They’re still your beautiful child – with or without a diagnosis. #4: Do not blame yourself! There isn’t anything that you could have done to prevent your child’s autism. Yes, you may receive stares in public. There will be uneducated people who ask you rude questions. It gets easier with time, and advocacy does wonders for your community. #5: Do not stay in a dark place. Everyone has bad days, but don’t stay there. Reach out for support. Get involved in your community. Find your tribe! #6 Do not let the autism diagnosis rob your family. Make special time for everyone – including yourself. #7 There will be debates on whether you should use the word “autistic” or “person with autism”, to disclose or not disclose your child’s diagnosis. You choose what you feel is right for your family. These debates only cause division in the autism community, and there are other ways to use your time and energy for effectively. #8 Last but certainly not least, advocate. Make your voice stronger. I guarantee you their little eyes are watching, and their little ears are listening.

EPISODE 19 Three years ago, my son Alex was diagnosed with autism and our expected journey changed. I was intimidated, panicked, fearful, distressed. It was a dark and confusing time. Once I wrapped my head around the diagnosis, started digging for resources and support, and over time, I’ve found pieces of advice that might help you on your journey. Today’s guest is Tani Stevenson. She’s an autism mom of four, with two of her precious kiddos on the spectrum. We’ll be talking about the journey after receiving an autism diagnosis. She’s such a delight, and I hope you find this episode inspiring, perhaps a bit funny, and educational. ADVICE: #1: Don’t jump to conclusion. There will be so many people telling you so many things – it can be intimidating. Chin up! Push forward! #2: Things could be worse! Autism is not a tragedy. It will all be ok! #3: They’re still your beautiful child – with or without a diagnosis. #4: Do not blame yourself! There isn’t anything that you could have done to prevent your child’s autism. Yes, you may receive stares in public. There will be uneducated people who ask you rude questions. It gets easier with time, and advocacy does wonders for your community. #5: Do not stay in a dark place. Everyone has bad days, but don’t stay there. Reach out for support. Get involved in your community. Find your tribe! #6 Do not let the autism diagnosis rob your family. Make special time for everyone – including yourself. #7 There will be debates on whether you should use the word “autistic” or “person with autism”, to disclose or not disclose your child’s diagnosis. You choose what you feel is right for your family. These debates only cause division in the autism community, and there are other ways to use your time and energy for effectively. #8 Last but certainly not least, advocate. Make your voice stronger. I guarantee you their little eyes are watching, and their little ears are listening.

Autism Diagnosis - Now What?

EPISODE 28: AUTISM STORIES OF PROGRESSION Featuring Joyce Peet, OT   INTRODUCTION: Sometimes it’s easy to get mentally stuck in a place of despair when caring for a loved one on the autism spectrum. All of the therapy appointments, advocating and temporary setbacks can be overwhelming and discouraging. I always think it’s important, however, to focus on the stories of success. The stories that give hope and encouragement. Everyone needs this, right?   Today’s guest has many years of experience in providing care for those on the spectrum, and she has many stories that I believe will inspire us all to keep going. Joyce Peet is an occupational therapist, and she has been providing therapy for my son for the past two years. I’ve seen the progress that my son has made, and I’ve often relied on her to provide me direction on the best ways to set goals for social interaction, behavior and classroom performance for Alex. Let’s all give a warm welcome.   CONCLUSION: Occupational therapists are experts in the social, emotional, and physiological effects of illness. This knowledge helps them promote skills for independent living in people with autism and other developmental disorders. They are often a very critical piece in a developmental therapy program. But aside from all of the text book knowledge and individualized therapy plans, they are a witness to the incredible lives of those on the spectrum. From beginning to end, they see it all, and are inspired to make a difference in the lives of others. Thanks so much for being a part of My Autism Tribe, and I’ll see you next week!

EPISODE 28: AUTISM STORIES OF PROGRESSION Featuring Joyce Peet, OT INTRODUCTION: Sometimes it’s easy to get mentally stuck in a place of despair when caring for a loved one on the autism spectrum. All of the therapy appointments, advocating and temporary setbacks can be overwhelming and discouraging. I always think it’s important, however, to focus on the stories of success. The stories that give hope and encouragement. Everyone needs this, right? Today’s guest has many years of experience in providing care for those on the spectrum, and she has many stories that I believe will inspire us all to keep going. Joyce Peet is an occupational therapist, and she has been providing therapy for my son for the past two years. I’ve seen the progress that my son has made, and I’ve often relied on her to provide me direction on the best ways to set goals for social interaction, behavior and classroom performance for Alex. Let’s all give a warm welcome. CONCLUSION: Occupational therapists are experts in the social, emotional, and physiological effects of illness. This knowledge helps them promote skills for independent living in people with autism and other developmental disorders. They are often a very critical piece in a developmental therapy program. But aside from all of the text book knowledge and individualized therapy plans, they are a witness to the incredible lives of those on the spectrum. From beginning to end, they see it all, and are inspired to make a difference in the lives of others. Thanks so much for being a part of My Autism Tribe, and I’ll see you next week!

Autism Stories of Progression

EPISODE 40: AN AUTISM MOM’S DEDICATION TO NUTRITION With Autism Mom Crystal Jordan of “Foods Four Thought”   INTRODUCTION: Hey, everyone! Thanks for joining me today. Today we’re speaking with Crystal Jordan. She’s the proud mother of an amazing son on the autism spectrum, and she has been working tirelessly on something pretty cool that has provided her son with awesome results. She’s a dedicated mama! Also remember, if you’re enjoying our podcast, if you could take some time to rate and review us wherever you listen to podcasts, and share it with a friend. That’s how we make our voices stronger. You can also find us as My Autism Tribe on Facebook, Instagram, Twitter, and YouTube. And as always, thank you so much for listening!   SEGMENT:  Most of us have been in those states of desperation, and likely many of us are still there, where we are working on the perfect formulas of therapies, supplements, and diets that will work for our loved one on the spectrum. Asking ourselves, “What if we do this therapy, with this vitamin, and eliminate this from their diet? What if we skip this therapy, but go to this doctor?” I literally have binders of information and spread sheets that I’ve collected in our short 3-1/2 years on this autism journey. Some may have viewed it as an obsession, but I don’t think so. I view it as dedication – to make sure my son has the best there is so that he can reach his full potential. I view it as LOVE. Today’s guest is Crystal Jordan. Her passion to provide help for her son is inspiring, and I can totally relate to the love she feels for her little one. Please welcome Crystal Jordan.   CONCLUSION:  Sometimes those states of desperation can provide us with information or insight into what our children or loved ones need. It takes time, dedication, and patience but it’s all so worth it. Never stop trying, always have hope, and dig deep. I believe in everyone – keep up the great work and thanks for being a part of My Autism Tribe. I’ll see ya next week!   ADDITIONAL INFORMATION: https://www.foodsfourthought.com https://www.facebook.com/foodsfourthought/ https://www.instagram.com/foodsfourthought/

EPISODE 40: AN AUTISM MOM’S DEDICATION TO NUTRITION With Autism Mom Crystal Jordan of “Foods Four Thought” INTRODUCTION: Hey, everyone! Thanks for joining me today. Today we’re speaking with Crystal Jordan. She’s the proud mother of an amazing son on the autism spectrum, and she has been working tirelessly on something pretty cool that has provided her son with awesome results. She’s a dedicated mama! Also remember, if you’re enjoying our podcast, if you could take some time to rate and review us wherever you listen to podcasts, and share it with a friend. That’s how we make our voices stronger. You can also find us as My Autism Tribe on Facebook, Instagram, Twitter, and YouTube. And as always, thank you so much for listening! SEGMENT: Most of us have been in those states of desperation, and likely many of us are still there, where we are working on the perfect formulas of therapies, supplements, and diets that will work for our loved one on the spectrum. Asking ourselves, “What if we do this therapy, with this vitamin, and eliminate this from their diet? What if we skip this therapy, but go to this doctor?” I literally have binders of information and spread sheets that I’ve collected in our short 3-1/2 years on this autism journey. Some may have viewed it as an obsession, but I don’t think so. I view it as dedication – to make sure my son has the best there is so that he can reach his full potential. I view it as LOVE. Today’s guest is Crystal Jordan. Her passion to provide help for her son is inspiring, and I can totally relate to the love she feels for her little one. Please welcome Crystal Jordan. CONCLUSION: Sometimes those states of desperation can provide us with information or insight into what our children or loved ones need. It takes time, dedication, and patience but it’s all so worth it. Never stop trying, always have hope, and dig deep. I believe in everyone – keep up the great work and thanks for being a part of My Autism Tribe. I’ll see ya next week! ADDITIONAL INFORMATION: <a href="https://www.foodsfourthought.com" rel="nofollow" target="_blank">https://www.foodsfourthought.com</a> <a href="https://www.facebook.com/foodsfourthought/" rel="nofollow" target="_blank">https://www.facebook.com/foodsfourthought/</a> <a href="https://www.instagram.com/foodsfourthought/" rel="nofollow" target="_blank">https://www.instagram.com/foodsfourthought/</a>

An Autism Mom's Dedication to Nutrition

EPISODE 25:  Autism - A Mother and BCBA’s Story   INTRODUCTION: As you know, we’re always searching for wonderful stories and great information to share. On today’s episode, we’re speaking with BCBA and Founder of Proof Positive ABA Therapies, Heather Grimaldi. As a Board Certified Behavior Analyst and Clinical Director, Heather’s focus has always been on supporting the families and team members tasked with implementing behavior-analytic interventions. She built Proof Positive ABA Therapies to teach self-help and social skills with a family-focused approach and an emphasis on parent education. In 2016, Autism Learning Partners created one of the largest autism therapy platforms by acquiring Proof Positive (Heather has a funny story about this), and today she continues her work with families as a Clinical Liaison with Autism Learning Partners in Orange County, California. Please join me in a warm welcome.   CONCLUSION: Our goal is to always share a diverse range of voices within the autism community; people both on and off the spectrum, from all walks of life, with all different backgrounds. We feel it’s important because we’re all in it together! We can all learn from each other, and we can all support each other. On good days and bad days. Thanks for joining me today and for being a part of My Autism Tribe. I’ll see you next week!   ABOUT SIMPLE SPECTRUM SUPPLEMENT: https://simplespectrumsupplement.com/   The supplement is designed to provide the nutritional needs of the developing nervous system, with extra support for individuals with autism, by addressing potential dietary deficits. Working with Defeat Autism Now and Medical Association of Pediatric Special Needs affiliated doctors in her role as a BCBA, company founder Heather Grimaldi saw benefits of high-end supplement systems firsthand. Simple Spectrum is similar to a nutraceutical a doctor might prescribe, but at a much more affordable price, without the long drives and even longer waits. There are states and countries that don’t even have access to these types of doctors.   The Simple Spectrum mission was to create the kind of nutraceutical supplement based on the latest scientific research, and free from the extraneous additives packed into so many similar products on the market. As a parent of one child with sensory processing disorders and another with ketotic hypoglycemia, responsible for implementing food programs herself, Heather knows how hard it can be to get kids to eat the right foods and that includes her own kids. Simple Spectrum Supplement is an unflavored dissolvable powder without gluten, casein, added sugar, soy, binding agents, artificial colors, preservatives, GMOs and dairy. The highest quality vitamins, minerals, and other nutrients – Simple Spectrum Supplement really is quite simple.

EPISODE 25:  Autism - A Mother and BCBA’s Story INTRODUCTION: As you know, we’re always searching for wonderful stories and great information to share. On today’s episode, we’re speaking with BCBA and Founder of Proof Positive ABA Therapies, Heather Grimaldi. As a Board Certified Behavior Analyst and Clinical Director, Heather’s focus has always been on supporting the families and team members tasked with implementing behavior-analytic interventions. She built Proof Positive ABA Therapies to teach self-help and social skills with a family-focused approach and an emphasis on parent education. In 2016, Autism Learning Partners created one of the largest autism therapy platforms by acquiring Proof Positive (Heather has a funny story about this), and today she continues her work with families as a Clinical Liaison with Autism Learning Partners in Orange County, California. Please join me in a warm welcome. CONCLUSION: Our goal is to always share a diverse range of voices within the autism community; people both on and off the spectrum, from all walks of life, with all different backgrounds. We feel it’s important because we’re all in it together! We can all learn from each other, and we can all support each other. On good days and bad days. Thanks for joining me today and for being a part of My Autism Tribe. I’ll see you next week! ABOUT SIMPLE SPECTRUM SUPPLEMENT: <a href="https://simplespectrumsupplement.com/" rel="nofollow" target="_blank">https://simplespectrumsupplement.com/</a> The supplement is designed to provide the nutritional needs of the developing nervous system, with extra support for individuals with autism, by addressing potential dietary deficits. Working with Defeat Autism Now and Medical Association of Pediatric Special Needs affiliated doctors in her role as a BCBA, company founder Heather Grimaldi saw benefits of high-end supplement systems firsthand. Simple Spectrum is similar to a nutraceutical a doctor might prescribe, but at a much more affordable price, without the long drives and even longer waits. There are states and countries that don’t even have access to these types of doctors. The Simple Spectrum mission was to create the kind of nutraceutical supplement based on the latest scientific research, and free from the extraneous additives packed into so many similar products on the market. As a parent of one child with sensory processing disorders and another with ketotic hypoglycemia, responsible for implementing food programs herself, Heather knows how hard it can be to get kids to eat the right foods and that includes her own kids. Simple Spectrum Supplement is an unflavored dissolvable powder without gluten, casein, added sugar, soy, binding agents, artificial colors, preservatives, GMOs and dairy. The highest quality vitamins, minerals, and other nutrients – Simple Spectrum Supplement really is quite simple.

Autism: A Mother and BCBA's Story

EPISODE 43: AUTISM PARENTING…AND A SIDE OF FRIES   INTRO: Hello, my fellow tribe members! Thanks for joining me today. I’m gonna start right off and say this week’s episode is gonna to make you laugh your socks off. Today, I’m speaking with Eileen Shaklee, also known as “Mama Fry” to all her blog followers. She’s the proud mom of a teenage son with autism, and shares with us how humor (and a side of fries) has helped her family in everyday life. And if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thank you so much for listening! SEGMENT: Autism can be isolating at times. There are great days, and then the not-so-great days that leave us scratching our heads and questioning if we’re doing enough…if we ARE enough. But one thing that I believe is super important is finding the humor in all of it. Sometimes it’s difficult to laugh when everything around you is hitting the fan and causing what feels like mass destruction…but you CAN. Eileen Shakle started a blog several years ago as an outlet to connect with others that were experiencing the same things, and people…she’s FUNNY. I love her viewpoint on everyday life, and I know that you will, too. Please welcome, Eileen Shaklee…or as many know her…”Mama Fry”.   CONCLUSION: Don’t get stuck in the trenches. Sure, it’s important to experience emotions, vent frustrations, but take the time to find goodness every day. Those little things that you can laugh about…maybe it’s at a later time rather than in the moment…but those things or people that will make you chuckle. Life’s too short to stand under a rain cloud all the time. Find the sunshine. Thanks for being a part of My Autism Tribe, and I’ll see ya next week!   COOL ANNOUNCEMENT: My Autism Tribe has been recognized in the "Global Top 20" autism podcasts on Feedspot! https://blog.feedspot.com/autism_podcasts/    ADDITIONAL INFORMATION: www.autismwithasideoffries.blogspot.com https://www.facebook.com/AutismWithASideOfFries/ https://www.instagram.com/autismwithasideoffries/ https://www.twitter.com/frenchfryinc/

EPISODE 43: AUTISM PARENTING…AND A SIDE OF FRIES INTRO: Hello, my fellow tribe members! Thanks for joining me today. I’m gonna start right off and say this week’s episode is gonna to make you laugh your socks off. Today, I’m speaking with Eileen Shaklee, also known as “Mama Fry” to all her blog followers. She’s the proud mom of a teenage son with autism, and shares with us how humor (and a side of fries) has helped her family in everyday life. And if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thank you so much for listening! SEGMENT: Autism can be isolating at times. There are great days, and then the not-so-great days that leave us scratching our heads and questioning if we’re doing enough…if we ARE enough. But one thing that I believe is super important is finding the humor in all of it. Sometimes it’s difficult to laugh when everything around you is hitting the fan and causing what feels like mass destruction…but you CAN. Eileen Shakle started a blog several years ago as an outlet to connect with others that were experiencing the same things, and people…she’s FUNNY. I love her viewpoint on everyday life, and I know that you will, too. Please welcome, Eileen Shaklee…or as many know her…”Mama Fry”. CONCLUSION: Don’t get stuck in the trenches. Sure, it’s important to experience emotions, vent frustrations, but take the time to find goodness every day. Those little things that you can laugh about…maybe it’s at a later time rather than in the moment…but those things or people that will make you chuckle. Life’s too short to stand under a rain cloud all the time. Find the sunshine. Thanks for being a part of My Autism Tribe, and I’ll see ya next week! COOL ANNOUNCEMENT: My Autism Tribe has been recognized in the "Global Top 20" autism podcasts on Feedspot! <a href="https://blog.feedspot.com/autism_podcasts/" rel="nofollow" target="_blank">https://blog.feedspot.com/autism_podcasts/</a> ADDITIONAL INFORMATION: <a href="http://www.autismwithasideoffries.blogspot.com" rel="nofollow" target="_blank">www.autismwithasideoffries.blogspot.com</a> <a href="https://www.facebook.com/AutismWithASideOfFries/" rel="nofollow" target="_blank">https://www.facebook.com/AutismWithASideOfFries/</a> <a href="https://www.instagram.com/autismwithasideoffries/" rel="nofollow" target="_blank">https://www.instagram.com/autismwithasideoffries/</a> <a href="https://www.twitter.com/frenchfryinc/" rel="nofollow" target="_blank">https://www.twitter.com/frenchfryinc/</a>

Autism Parenting...and a Side of Fries

EPISODE 12: Nutritional deficiencies are a common issue for individuals with autism and ADHD, in addition to food sensitivities and intolerances. Nutrition is important for everyone, and sometimes even the correction of a single deficiency can create dramatic improvements.   Today’s episode features guest Denise Voight, a clinical nutritionist with a Masters of Science in Human Nutrition and Functional Medicine, specializing in Nutritional Intervention for autism spectrum disorders and ADHD. Her passion for nutritional biochemistry for the past 20 years emerged from her own son’s struggle with ADHD. Now, she uses her expertise and compassion to help educate, empower, and support families affected by autism and ADHD.   CONCLUSION Nutrition is the core modality of Functional Medicine. Instead of focusing on an isolated set of symptoms, it addresses the whole person – like genetic, environmental, and lifestyle factors. As researchers continue to explore and speculate on the reasons for the rise in autism, may we continue to educate ourselves so that we may be better-equipped advocates for our loved ones. Thanks for joining My Autism Tribe.   FOR MORE INFORMATION VISIT: https://www.denisevoight.com/ https://superspectrumkids.com/

EPISODE 12: Nutritional deficiencies are a common issue for individuals with autism and ADHD, in addition to food sensitivities and intolerances. Nutrition is important for everyone, and sometimes even the correction of a single deficiency can create dramatic improvements. Today’s episode features guest Denise Voight, a clinical nutritionist with a Masters of Science in Human Nutrition and Functional Medicine, specializing in Nutritional Intervention for autism spectrum disorders and ADHD. Her passion for nutritional biochemistry for the past 20 years emerged from her own son’s struggle with ADHD. Now, she uses her expertise and compassion to help educate, empower, and support families affected by autism and ADHD. CONCLUSION Nutrition is the core modality of Functional Medicine. Instead of focusing on an isolated set of symptoms, it addresses the whole person – like genetic, environmental, and lifestyle factors. As researchers continue to explore and speculate on the reasons for the rise in autism, may we continue to educate ourselves so that we may be better-equipped advocates for our loved ones. Thanks for joining My Autism Tribe. FOR MORE INFORMATION VISIT: <a href="https://www.denisevoight.com/" rel="nofollow" target="_blank">https://www.denisevoight.com/</a> <a href="https://superspectrumkids.com/" rel="nofollow" target="_blank">https://superspectrumkids.com/</a>

Nutritional Interventions for Autism Spectrum Disorder and ADHD

EPISODE 60: AUTISM ISN’T BLACK AND WHITE With Erin Clemens   INTRO: Hi, everyone! As you know, April is Autism Awareness month, as we continue to raise autism awareness, and promote autism acceptance and inclusion in our communities (although it may look a bit different now), I wanted to feature yet another autism advocate. This week’s episode features guest Erin Clemens. Erin is an awesome young woman on the autism spectrum. When she’s not working, she’s volunteering and helping others. She graduated from college last year, and is interested in pursuing a career in dog training. She’s an absolute pleasure to speak with, and full of so much knowledge and insight. Stay tuned to hear her story.   SEGMENT: Today, we’re providing a stronger voice to another powerful autism advocate, Erin Clemens. She’s a public speaker, and author of a book called “I Have Asperger’s”. Let’s give a warm welcome to this delightful young woman.   CONCLUSION: It’s important that we listen to those voices that can provide personal experiences. There are varying opinions, and often times, these opinions may not align with another person’s opinions. That’s ok, because autism isn’t black and white…it’s a spectrum…and we are all on different journeys, and I’m so glad that Erin was able to share her’s. Thanks so much for being a part of my army…My Autism Tribe. Stay healthy, stay safe, keep your chin up, and I’ll see you here next week!   ADDITIONAL INFORMATION FOR ERIN: Website: https://erinclemens.wixsite.com/erin-clemens Facebook: https://www.facebook.com/erin.clemens.58 Twitter: https://twitter.com/AspergerSadie Instagram: https://www.instagram.com/aspergersadie/ YouTube: https://www.youtube.com/user/erinclem

EPISODE 60: AUTISM ISN’T BLACK AND WHITE With Erin Clemens INTRO: Hi, everyone! As you know, April is Autism Awareness month, as we continue to raise autism awareness, and promote autism acceptance and inclusion in our communities (although it may look a bit different now), I wanted to feature yet another autism advocate. This week’s episode features guest Erin Clemens. Erin is an awesome young woman on the autism spectrum. When she’s not working, she’s volunteering and helping others. She graduated from college last year, and is interested in pursuing a career in dog training. She’s an absolute pleasure to speak with, and full of so much knowledge and insight. Stay tuned to hear her story. SEGMENT: Today, we’re providing a stronger voice to another powerful autism advocate, Erin Clemens. She’s a public speaker, and author of a book called “I Have Asperger’s”. Let’s give a warm welcome to this delightful young woman. CONCLUSION: It’s important that we listen to those voices that can provide personal experiences. There are varying opinions, and often times, these opinions may not align with another person’s opinions. That’s ok, because autism isn’t black and white…it’s a spectrum…and we are all on different journeys, and I’m so glad that Erin was able to share her’s. Thanks so much for being a part of my army…My Autism Tribe. Stay healthy, stay safe, keep your chin up, and I’ll see you here next week! ADDITIONAL INFORMATION FOR ERIN: Website: <a href="https://erinclemens.wixsite.com/erin-clemens" rel="nofollow" target="_blank">https://erinclemens.wixsite.com/erin-clemens</a> Facebook: <a href="https://www.facebook.com/erin.clemens.58" rel="nofollow" target="_blank">https://www.facebook.com/erin.clemens.58</a> Twitter: <a href="https://twitter.com/AspergerSadie" rel="nofollow" target="_blank">https://twitter.com/AspergerSadie</a> Instagram: <a href="https://www.instagram.com/aspergersadie/" rel="nofollow" target="_blank">https://www.instagram.com/aspergersadie/</a> YouTube: <a href="https://www.youtube.com/user/erinclem" rel="nofollow" target="_blank">https://www.youtube.com/user/erinclem</a>

Autism Isn't Black and White

EPISODE 27: LIVING A HAPPY AND MEANINGFUL LIFE WITH AUTISM With Dawnita Shively  INTRODUCTION: Sometimes it’s easy to just focus on the word “autism”, but let’s have our conversation today focus on passions and uniqueness. Let’s talk about setting goals for the individual and the expectation of your child having a happy, fulfilling and meaningful life.   Today’s guest is Dawnita Shively, a passionate BCBA and Clinical Director for Autism and Behavior Concepts– an organization that provides clinic and home-based services to children and adults with autism. She has a vast amount of knowledge and experience from her years in working closely with autism families.   Early detection &amp; Intervention:  This is your child. If you feel that your child is not hitting milestones be persistent. Find someone who will take your concerns seriously and evaluate. Allow yourself to grieve and start setting goals and expectations. Do not let a diagnosis tell you who your child will become.Like all of us, they will have their own goals and passions. Learn to accept those passions and help them by allowing access to interventions that teach lifelong skills.   Research the treatment options and decide what is best for your child.    School age: Culturally children are expected to go to school. That is what parents strive for and if this is right for your child, push for it. Remember that public education requires that children receive “free and appropriate” not “free and exactly what you want.”Ask yourself what behavior impedes on my child succeeding in school. Consult professionals to help you set reasonable goals and push. Find a placement that understands that your child is an individual and use your child’s passions to help them succeed in life. Know your rights and let the school know you are aware of what your child deserves and do not give up.    Adolescents: Teenage years are difficult on all of us. Remember this is not unique to autism, try to relate, do not make excuses, and continue to set goals. This is the time to start asking, observing and getting to know what motivates your child. How can you help them grow in areas they enjoy so that they can have a happy and productive life?Hobbies Job Skills Independence: We are happy when we can do things for ourselves.   Start thinking and talking about what lifestyle your child will have as an adult.Reasses goals and barriers to that lifestyle.      Adulthood: Remember to ask yourself what makes a productive and happy adult. Focus on these areas as goals. Do not focus on Autism, focus on the happy and productive life. Who in your life can help you support your child?Reality is you will not be around forever. You want your child to have a community, just like you have, to support them in their passion and goals.   Remember that all adults make choices that lead to success and happiness. Working with your adult child and knowing their goals will help you.College Job placement Living with you      CONCLUSION: Always remember that a parent is a child’s best advocate. Parents are ultimately responsible for making sure their child can have a happy and healthy life. By having these expectations, they can set goals to remove barriers that may prevent this from happening. If you are a parent or caregiver to a loved one on the autism spectrum, set goals for a life that is meaningful to your child and society, and know that autism does not define your child. Let your child define themselves, and support them in having the best life they can possibly have. Thanks for joining me today, and for being a part of My Autism Tribe. I’ll see you next week!

EPISODE 27: LIVING A HAPPY AND MEANINGFUL LIFE WITH AUTISM With Dawnita Shively INTRODUCTION: Sometimes it’s easy to just focus on the word “autism”, but let’s have our conversation today focus on passions and uniqueness. Let’s talk about setting goals for the individual and the expectation of your child having a happy, fulfilling and meaningful life. Today’s guest is Dawnita Shively, a passionate BCBA and Clinical Director for Autism and Behavior Concepts– an organization that provides clinic and home-based services to children and adults with autism. She has a vast amount of knowledge and experience from her years in working closely with autism families. Early detection &amp; Intervention: <ul><li>This is your child. If you feel that your child is not hitting milestones be persistent. Find someone who will take your concerns seriously and evaluate.</li> <li>Allow yourself to grieve and start setting goals and expectations.</li> <li>Do not let a diagnosis tell you who your child will become. <ul><li>Like all of us, they will have their own goals and passions. Learn to accept those passions and help them by allowing access to interventions that teach lifelong skills.</li> </ul> </li> <li>Research the treatment options and decide what is best for your child.</li> </ul> School age: <ul><li>Culturally children are expected to go to school. That is what parents strive for and if this is right for your child, push for it.</li> <li>Remember that public education requires that children receive “free and appropriate” not “free and exactly what you want.” <ul><li>Ask yourself what behavior impedes on my child succeeding in school.</li> <li>Consult professionals to help you set reasonable goals and push.</li> <li>Find a placement that understands that your child is an individual and use your child’s passions to help them succeed in life.</li> <li>Know your rights and let the school know you are aware of what your child deserves and do not give up.</li> </ul> </li> </ul> Adolescents: <ul><li>Teenage years are difficult on all of us. Remember this is not unique to autism, try to relate, do not make excuses, and continue to set goals.</li> <li>This is the time to start asking, observing and getting to know what motivates your child.</li> <li>How can you help them grow in areas they enjoy so that they can have a happy and productive life? <ul><li>Hobbies</li> <li>Job Skills</li> <li>Independence: We are happy when we can do things for ourselves.</li> </ul> </li> <li>Start thinking and talking about what lifestyle your child will have as an adult. <ul><li>Reasses goals and barriers to that lifestyle.</li> </ul> </li> </ul> Adulthood: <ul><li>Remember to ask yourself what makes a productive and happy adult. Focus on these areas as goals.</li> <li>Do not focus on Autism, focus on the happy and productive life.</li> <li>Who in your life can help you support your child? <ul><li>Reality is you will not be around forever.</li> <li>You want your child to have a community, just like you have, to support them in their passion and goals.</li> </ul> </li> <li>Remember that all adults make choices that lead to success and happiness. Working with your adult child and knowing their goals will help you. <ul><li>College</li> <li>Job placement</li> <li>Living with you</li> </ul> </li> </ul> CONCLUSION: Always remember that a parent is a child’s best advocate. Parents are ultimately responsible for making sure their child can have a happy and healthy life. By having these expectations, they can set goals to remove barriers that may prevent this from happening. If you are a parent or caregiver to a loved one on the autism spectrum, set goals for a life that is meaningful to your child and society, and know that autism does not define your child. Let your child define themselves, and support them in having the best life they can possibly have. Thanks for joining me today, and for being a part of My Autism Tribe. I’ll see you next week!

Living a Happy and Meaningful Life with Autism

EPISODE 41: WHEN I FEEL DEFEATED   INTRO: Hello there! Today, is a solo episode. Just me, talking about my feelings of defeat. We’ve all been there, am I right? Maybe you’re there right now, listening and thinking, “is this going to be another person telling me how to not feel defeated, giving me a checklist on ways cope?” Nope. None of those. I’m just here sharing my feelings on defeat, and offering my recent viewpoint on this feeling.   And if, by chance, you feel like you’ve connected in some way on what I’m sharing, I’d love for you to take one minute to rate and review this podcast. Maybe even share it with a friend. This podcast is one way that we make our voices stronger, and to connect with those that are traveling alongside us in our crazy journey of parenting. Thanks for listening.   SEGMENT: Let’s face it, parenting is tough stuff. You can go into any bookstore or newsstand and peruse hundreds of books and magazines with “Tips on How to Be an Exemplary Parent”. Try Googling “parenting”. Have you ever tried this? Just type “parenting”. You’ll be introduced to millions of articles, studies, Amazon links, parenting blogs, you name it – everyone is trying to figure it out. Professionals are telling you the parenting style that creates the most well-adjusted children, and I even read an article recently that said for better or worse, parenting changes your child’s DNA. Think about that. It’s no wonder that we have feelings of defeat Every. Single. Day. And let’s talk about Pinterest. Have any of you tried to make these elaborate birthday cakes that have a simple 5 Steps to a Magical Creation, only to have your child ask what it is that you just created? Raise your hand…you know who you are, and I’m included.   Granted, there are days when I say to myself, and even out loud with a pat on my back, “Susan, you know what? You’re not a terrible mom. You are a downright ok-ish mom”. Did you hear that? “Ok-ish”. Why is it that we don’t allow ourselves to say that we are awesome? That we are absolutely slaying this whole parenting thing? Well, let’s talk about stress and fatigue for a hot second.   Stress and fatigue enter (and sometimes lingers) in our lives when our demands exceed the expectations and resources available to us. And let’s face it, Pinterest has not helped, and as special needs parents, we often struggle to find enough resources available to help us. It’s hard to manage a home with an increasingly amount of clutter building, a list of chores longer than the Great Wall of China, work responsibilities, holiday preparations, school functions. I’ve read blogs and watched TV shows on how to create more organization, like Tidying Up with Marie Kondo (which by the way, is she even real…is someone really THAT organized)? Something that I’ve come to realize…and just recently…is that there is no ONE cookie-cutter approach to all of it. I’m tired of trying to fit in the box that social media and TV shows tell me I need to be in in order to feel like a great mom, a worthy friend, a socially-acceptable human being. Sometimes that box just doesn’t feel right. Plus, our social norms are constantly changing, right? What Hollywood is defining as beautiful and the articles that are telling us what is right will inevitably change. For example, remember when everyone freaked out years ago trying to eliminate ALL fat from our diets. Everything on the shelves in stores turned to “Fat Free”? Now, it turns out that we actually need fat in our diets – the healthy kind, of course. I challenge you to go down that Google rabbit hole.   I tell my son all the time that we are all different, and differences aren’t bad, but beautiful. So why can’t I take these words and apply them to my own life? Why is it that I keep coming back to these socially-created definitions of perfection? It always leads me to the same abandoned house, filled with feelings of defeat. I’m so tired of it. I’m tired of even acting like I have all my stuff together…because I don’t. And I’m not afraid of admitting that to ANYONE. Maybe this is what it’s going to take to change my mindset…like a detour from the path I’ve been traveling. There will be days that are easier, and then there will be days where I feel absolutely freaked out because it’s hard, hard, hard work shaping another human being, my child, my heart, the very reason, in fact, that I feel like most days I’m still breathing.   So, let me take a look at another way of viewing the stress and feelings of defeat. What if, the whole parenting thing is not just about shaping my child, but shaping me as well? That I’m actually becoming a better woman, a better parent, just by being a parent and the challenges (and celebration) it gives. I can’t tell you the number of times that I’ve given a stink eye to someone who told me “what doesn’t kill you makes you stronger”. No one wants to hear that from someone else, but maybe I can tell myself that. The stretching and growing from parenting is actually a great thing. It’s a gift, a blessing, that my home needs me.   Let’s look at defeat as power. I think about the times, when I was a child, and even as an adult, where I failed. It did build strength. It did build character, and almost a stubbornness to overcome – to succeed and win. I come from a long line of STRONG women – women that didn’t take “no” for an answer, trail blazers in their time. They weren’t strong because they never failed. They became strong because they experienced defeat, more times, I’m sure, than they admitted. I’m woven from their cloth – a piece of their patchwork quilt.   Most of us cling to the idea that skill comes naturally. We’re born with it. Either we’re good, or not good, at something. Well, that’s simply not true. Even people that are born gifted have to work hard to hone their ability. We’re not born as parents. We have parents when we are born. These trials we experience are honing our ability to become better.   CONCLUSION: So, let’s all take the time to lift each other up, to give each other high fives, to smile as we’re passing by that person in the grocery store. We all have feelings of defeat, and we’re just honing our ability to become better. For ourselves and for each other. Thanks for taking the time to listen, and for being a part of My Autism Tribe. You all are very much appreciated. See ya next week!

EPISODE 41: WHEN I FEEL DEFEATED INTRO: Hello there! Today, is a solo episode. Just me, talking about my feelings of defeat. We’ve all been there, am I right? Maybe you’re there right now, listening and thinking, “is this going to be another person telling me how to not feel defeated, giving me a checklist on ways cope?” Nope. None of those. I’m just here sharing my feelings on defeat, and offering my recent viewpoint on this feeling. And if, by chance, you feel like you’ve connected in some way on what I’m sharing, I’d love for you to take one minute to rate and review this podcast. Maybe even share it with a friend. This podcast is one way that we make our voices stronger, and to connect with those that are traveling alongside us in our crazy journey of parenting. Thanks for listening. SEGMENT: Let’s face it, parenting is tough stuff. You can go into any bookstore or newsstand and peruse hundreds of books and magazines with “Tips on How to Be an Exemplary Parent”. Try Googling “parenting”. Have you ever tried this? Just type “parenting”. You’ll be introduced to millions of articles, studies, Amazon links, parenting blogs, you name it – everyone is trying to figure it out. Professionals are telling you the parenting style that creates the most well-adjusted children, and I even read an article recently that said for better or worse, parenting changes your child’s DNA. Think about that. It’s no wonder that we have feelings of defeat Every. Single. Day. And let’s talk about Pinterest. Have any of you tried to make these elaborate birthday cakes that have a simple 5 Steps to a Magical Creation, only to have your child ask what it is that you just created? Raise your hand…you know who you are, and I’m included. Granted, there are days when I say to myself, and even out loud with a pat on my back, “Susan, you know what? You’re not a terrible mom. You are a downright ok-ish mom”. Did you hear that? “Ok-ish”. Why is it that we don’t allow ourselves to say that we are awesome? That we are absolutely slaying this whole parenting thing? Well, let’s talk about stress and fatigue for a hot second. Stress and fatigue enter (and sometimes lingers) in our lives when our demands exceed the expectations and resources available to us. And let’s face it, Pinterest has not helped, and as special needs parents, we often struggle to find enough resources available to help us. It’s hard to manage a home with an increasingly amount of clutter building, a list of chores longer than the Great Wall of China, work responsibilities, holiday preparations, school functions. I’ve read blogs and watched TV shows on how to create more organization, like Tidying Up with Marie Kondo (which by the way, is she even real…is someone really THAT organized)? Something that I’ve come to realize…and just recently…is that there is no ONE cookie-cutter approach to all of it. I’m tired of trying to fit in the box that social media and TV shows tell me I need to be in in order to feel like a great mom, a worthy friend, a socially-acceptable human being. Sometimes that box just doesn’t feel right. Plus, our social norms are constantly changing, right? What Hollywood is defining as beautiful and the articles that are telling us what is right will inevitably change. For example, remember when everyone freaked out years ago trying to eliminate ALL fat from our diets. Everything on the shelves in stores turned to “Fat Free”? Now, it turns out that we actually need fat in our diets – the healthy kind, of course. I challenge you to go down that Google rabbit hole. I tell my son all the time that we are all different, and differences aren’t bad, but beautiful. So why can’t I take these words and apply them to my own life? Why is it that I keep coming back to these socially-created definitions of perfection? It always leads me to the same abandoned house, filled with feelings of defeat. I’m so tired of it. I’m tired of even acting like I have all my stuff together…because I don’t. And I’m not afraid of admitting that to ANYONE. Maybe this is what it’s going to take to change my mindset…like a detour from the path I’ve been traveling. There will be days that are easier, and then there will be days where I feel absolutely freaked out because it’s hard, hard, hard work shaping another human being, my child, my heart, the very reason, in fact, that I feel like most days I’m still breathing. So, let me take a look at another way of viewing the stress and feelings of defeat. What if, the whole parenting thing is not just about shaping my child, but shaping me as well? That I’m actually becoming a better woman, a better parent, just by being a parent and the challenges (and celebration) it gives. I can’t tell you the number of times that I’ve given a stink eye to someone who told me “what doesn’t kill you makes you stronger”. No one wants to hear that from someone else, but maybe I can tell myself that. The stretching and growing from parenting is actually a great thing. It’s a gift, a blessing, that my home needs me. Let’s look at defeat as power. I think about the times, when I was a child, and even as an adult, where I failed. It did build strength. It did build character, and almost a stubbornness to overcome – to succeed and win. I come from a long line of STRONG women – women that didn’t take “no” for an answer, trail blazers in their time. They weren’t strong because they never failed. They became strong because they experienced defeat, more times, I’m sure, than they admitted. I’m woven from their cloth – a piece of their patchwork quilt. Most of us cling to the idea that skill comes naturally. We’re born with it. Either we’re good, or not good, at something. Well, that’s simply not true. Even people that are born gifted have to work hard to hone their ability. We’re not born as parents. We have parents when we are born. These trials we experience are honing our ability to become better. CONCLUSION: So, let’s all take the time to lift each other up, to give each other high fives, to smile as we’re passing by that person in the grocery store. We all have feelings of defeat, and we’re just honing our ability to become better. For ourselves and for each other. Thanks for taking the time to listen, and for being a part of My Autism Tribe. You all are very much appreciated. See ya next week!

When I Feel Defeated

EPISODE 4: Heather Sutcliffe is a working mom of two sons, who both have an autism diagnosis. For more than 12 years, she has advocated fearlessly to ensure her sons receive robust and consistent programming to make progress and achieve. A strong believer in coming at this diagnosis from all angles, she never takes her foot off the gas and continually looks at ways to fine tune her sons’ interventions. To honor the progress ABA therapy has made possible for her family, she recently launched a non-profit organization to support ABA for autism. Her first campaign running through 4/2/19 is to raise $5,000 that will go toward covering tuition for Simmons University students studying ABA. In addition, to reduce the ramp up time for parents and families dealing with a recent diagnosis, Heather is in the process of creating a website and blog to share what she has learned on this journey so far. Heather is passionate about giving her sons the best possible chance to overcome the challenges they face while inspiring and empowering other families to do the same. Heather is a mentor, coach and cheerleader for other parents facing an autism diagnosis. Her extensive professional work experience in the fields of marketing and communications, is supplemented by her volunteer experience. She currently volunteers as a Support Parent with Family Ties of Massachusetts and was recently selected by Autism Speaks to be a Autism Speaks Volunteer Advocacy Ambassador. She is also a Board Member of a pediatric wellness center in Massachusetts. PODCAST SUMMARY The Importance and Power of ABA: Completely individualized for the child and situation, transcending all levels of ability Data driven to prove progress, then continue building on it Scaffolding necessary for success and progression Principles of ABA can be applied to our every day life to keep things going at home and in the community (can share some tips here) About both quality and quantity (can share some tips here)  “ABA (Applied Behavior Analysis) therapy has been absolutely vital to help our sons make progress after an autism diagnosis. 12 years in, it is still teaching me how to manage situations AND helping our sons make achievements. As it pertains to autism, simply put: ABA therapy helps our sons exhibit more expected behavior and less unexpected behavior. It truly has the power to make any situation more successful, transcending any level of ability. For me, this diagnosis has always been about one thing: Achievement. As the world moves from awareness to acceptance, we parents have always been focused on achievement. Because everyone has the chance to progress from the point they are currently to something more. ABA Therapy, a science rooted in data, makes achievement possible.” You Get Out What You Put In: It is ok to be a control freak here--it is your child! Know and believe that you are the expert in your child, no one else. Play a consistently engaged and active role; observe sessions and ask questions If your gut tells you something listen to it... Don't settle Be hungry for information; seek it out and add it to your expertise Come at this from all angles and keep fine tuning.   “You are the HUB and the GLUE of communication (doctors, specialists, schools, insurance, therapists, home assistance) and you connect the dots for everyone and keep reminding of the objective (for your child to live safely and independently in this world). This takes work and constant engagement. Thank goodness for iphones. :-) But I believe in what I call a "complete puzzle": Parents will ensure all the pieces to the plan are in place and that we are attacking this. The plan needs to be fluid, but it is possible to go to bed at night and know you are doing everything you can.” The importance of a network: Other parents: To bounce things off of, get referrals from, complete understanding. Providers and specialists: So if there are changes (or valleys and there will be) there is never a gap and always someone to call.  And, finding what keeps you going: A picture with your child looking at the camera so you can stare into their eyes for as long as you wish. Or when you visit someone you haven't seen for awhile, and they are so impressed by the cumulative progress your child has made, that may get lost since you see them every day. I also recently put a photo book together for my younger son, and it was such a good way to see all that he had tried...looking at it cumulatively.

EPISODE 4: Heather Sutcliffe is a working mom of two sons, who both have an autism diagnosis. For more than 12 years, she has advocated fearlessly to ensure her sons receive robust and consistent programming to make progress and achieve. A strong believer in coming at this diagnosis from all angles, she never takes her foot off the gas and continually looks at ways to fine tune her sons’ interventions. To honor the progress ABA therapy has made possible for her family, she recently launched a non-profit organization to support ABA for autism. Her first campaign running through 4/2/19 is to raise $5,000 that will go toward covering tuition for Simmons University students studying ABA. In addition, to reduce the ramp up time for parents and families dealing with a recent diagnosis, Heather is in the process of creating a website and blog to share what she has learned on this journey so far. Heather is passionate about giving her sons the best possible chance to overcome the challenges they face while inspiring and empowering other families to do the same. Heather is a mentor, coach and cheerleader for other parents facing an autism diagnosis. Her extensive professional work experience in the fields of marketing and communications, is supplemented by her volunteer experience. She currently volunteers as a Support Parent with Family Ties of Massachusetts and was recently selected by Autism Speaks to be a Autism Speaks Volunteer Advocacy Ambassador. She is also a Board Member of a pediatric wellness center in Massachusetts. PODCAST SUMMARY The Importance and Power of ABA: <ul><li>Completely individualized for the child and situation, transcending all levels of ability</li> <li>Data driven to prove progress, then continue building on it</li> <li>Scaffolding necessary for success and progression</li> <li>Principles of ABA can be applied to our every day life to keep things going at home and in the community (can share some tips here)</li> <li>About both quality and quantity (can share some tips here)</li> </ul> “ABA (Applied Behavior Analysis) therapy has been absolutely vital to help our sons make progress after an autism diagnosis. 12 years in, it is still teaching me how to manage situations AND helping our sons make achievements. As it pertains to autism, simply put: ABA therapy helps our sons exhibit more expected behavior and less unexpected behavior. It truly has the power to make any situation more successful, transcending any level of ability. For me, this diagnosis has always been about one thing: Achievement. As the world moves from awareness to acceptance, we parents have always been focused on achievement. Because everyone has the chance to progress from the point they are currently to something more. ABA Therapy, a science rooted in data, makes achievement possible.” You Get Out What You Put In: <ul><li>It is ok to be a control freak here--it is your child!</li> <li>Know and believe that you are the expert in your child, no one else.</li> <li>Play a consistently engaged and active role; observe sessions and ask questions</li> <li>If your gut tells you something listen to it...</li> <li>Don't settle</li> <li>Be hungry for information; seek it out and add it to your expertise</li> <li>Come at this from all angles and keep fine tuning.</li> </ul>  “You are the HUB and the GLUE of communication (doctors, specialists, schools, insurance, therapists, home assistance) and you connect the dots for everyone and keep reminding of the objective (for your child to live safely and independently in this world). This takes work and constant engagement. Thank goodness for iphones. :-) But I believe in what I call a "complete puzzle": Parents will ensure all the pieces to the plan are in place and that we are attacking this. The plan needs to be fluid, but it is possible to go to bed at night and know you are doing everything you can.” The importance of a network: <ul><li>Other parents: To bounce things off of, get referrals from, complete understanding.</li> <li>Providers and specialists: So if there are changes (or valleys and there will be) there is never a gap and always someone to call.</li> </ul> And, finding what keeps you going: <ul><li>A picture with your child looking at the camera so you can stare into their eyes for as long as you wish.</li> <li>Or when you visit someone you haven't seen for awhile, and they are so impressed by the cumulative progress your child has made, that may get lost since you see them every day.</li> <li>I also recently put a photo book together for my younger son, and it was such a good way to see all that he had tried...looking at it cumulatively.</li></ul>

Autism Interventions and Family Logistics

EPISODE 26: AUTISM FAMILIES: HOW TO THRIVE IN CHAOS   INTRODUCTION: How often do you find yourself saying, “My life is just chaotic. Will this ever end?” Today’s guest is a father and autism advocate that has worked tirelessly at not only creating a thriving home environment for his family, but many other families as well.   Kyle Jetsel, and his wife Shelly, are the proud parents of six children, two of them being on the autism spectrum. He’s going to be sharing his story on how his family is actually thriving amidst the chaos. They are coaches, confidants, and they truly understand what it’s like to be on the autism roller coaster. Over the past decade, they’ve developed strategies and techniques that have helped their family lower stress, and have been able to get back the family life they wanted. A life filled with joy, happiness and fun. It hasn’t been easy, but they weren’t afraid to work at it. Please welcome this inspiring guest, Kyle Jetsel.   CONCLUSION: Raising children on the autism spectrum can be really hard. The chaos can sometimes feel overwhelming. Perhaps there are times you feel that your home is like a combat zone. But it doesn’t have to be that way. Now is the time to really roll up your sleeves, dig deep, and help your family get a whole new, better life that everyone deserves. We are here for you, for support, love and encouragement. Thanks for being a part of My Autism Tribe, and thanks for listening to the inspirational message of Kyle Jetsel. I’ll see you next week!  TO FOLLOW KYLE JETSEL:   WEBSITE: https://thriveinchaos.net/   FACEBOOK: https://www.facebook.com/AutismLaughterTherapy/   YOUTUBE: https://www.youtube.com/channel/UCnzT4528uGk22RiAFAEKtjg

EPISODE 26: AUTISM FAMILIES: HOW TO THRIVE IN CHAOS INTRODUCTION: How often do you find yourself saying, “My life is just chaotic. Will this ever end?” Today’s guest is a father and autism advocate that has worked tirelessly at not only creating a thriving home environment for his family, but many other families as well. Kyle Jetsel, and his wife Shelly, are the proud parents of six children, two of them being on the autism spectrum. He’s going to be sharing his story on how his family is actually thriving amidst the chaos. They are coaches, confidants, and they truly understand what it’s like to be on the autism roller coaster. Over the past decade, they’ve developed strategies and techniques that have helped their family lower stress, and have been able to get back the family life they wanted. A life filled with joy, happiness and fun. It hasn’t been easy, but they weren’t afraid to work at it. Please welcome this inspiring guest, Kyle Jetsel. CONCLUSION: Raising children on the autism spectrum can be really hard. The chaos can sometimes feel overwhelming. Perhaps there are times you feel that your home is like a combat zone. But it doesn’t have to be that way. Now is the time to really roll up your sleeves, dig deep, and help your family get a whole new, better life that everyone deserves. We are here for you, for support, love and encouragement. Thanks for being a part of My Autism Tribe, and thanks for listening to the inspirational message of Kyle Jetsel. I’ll see you next week! TO FOLLOW KYLE JETSEL: WEBSITE: <a href="https://thriveinchaos.net/" rel="nofollow" target="_blank">https://thriveinchaos.net/</a> FACEBOOK: <a href="https://www.facebook.com/AutismLaughterTherapy/" rel="nofollow" target="_blank">https://www.facebook.com/AutismLaughterTherapy/</a> YOUTUBE: <a href="https://www.youtube.com/channel/UCnzT4528uGk22RiAFAEKtjg" rel="nofollow" target="_blank">https://www.youtube.com/channel/UCnzT4528uGk22RiAFAEKtjg</a>

Autism Families: How to Thrive in Chaos

EPISODE 13: One of the most important missions of My Autism Tribe is to celebrate and empower the amazing individuals that are on the autism spectrum. There are so many! One of these amazingly gifted individuals is Rachel Barcellona. She is Miss Florida 2018 National American Miss (NAM) and was Miss Florida International 2016. Her platform “Ability Beyond Disabilities” inspires those that have challenges to strive for their dreams as well as to educate those who might not understand the challenges she, and others on the spectrum, face.   FROM RACHEL: I am an advocate for those with disabilities. I created my platform, The Ability beyond Disabilities, to inspire those that have challenges to strive for their dreams as well as to educate those who might not understand the challenges we face. As an individual with autism, I often felt like I could not do anything. People with disabilities or anyone who is different are often targets for bullies as I was, but because of my life and social experience, I have overcome many challenges. Today I am the International Spokesperson for the Center for Autism and Related Disabilities at the University of Florida (CARD-USF), and was recently elected to their executive board of directors. I was also named the Ambassador for the Unicorn Children’s Foundation and work closely with this international organization to help people with neurodiversity. I am a member of the International Thespian Honor Society, an honor student and vocalist and love to sing opera. I have been able to single at Madison Square Gardens twice. I have a passion for art and writing and am currently finishing my first book and will work to get it published when its finished. I also work with several organizations that provide services to individuals with disabilities including therapy such as occupational and physical along with music and art therapy and have made over 300 appearances with my international title. My plan for the future is to graduate from the University of South Florida and one day open my own school for children with disabilities. I also wanted to share some of the things that happened while I was growing up. I just turned 22 years old but starting in preschool and elementary school things were much different. I was diagnosed with Autism along with dyspraxia and later diagnosed with dyscalculia, and epilepsy. I can remember not being able to put enough pressure on a crayon to make a mark on a paper! Buttons zippers and snaps were a nightmare! It was very difficult to hold objects and jump and skip. I went through several years of physical therapy, speech and language therapy and occupational therapy, which helped a lot. I still however cannot ride a bike, although, I haven’t tried a 3 wheeler, and I am not able to drive. I passed my learners permit for driving but because of epilepsy and seizures I cannot get my license… yet! Hopefully one day but if not there are several ways to learn to get around. I joke with my parents that I am waiting for the Google car that drives itself! Dyscalculia became an issue as math became harder. I am not going to lie it was exhausting getting through higher level math and took all the help I could get from teachers tutors etc. I am so happy to tell you I have finished my college math courses and will definitely not become an engineer. I am pursuing a career in writing English and vocal studies and love to sing opera.    CONCLUSION: Education is so important, and what better way to be educated than through the voices of individuals like Rachel. It’s so powerful to hear their strength and their passion. Thanks to everyone in My Autism Tribe, today and always.

EPISODE 13: One of the most important missions of My Autism Tribe is to celebrate and empower the amazing individuals that are on the autism spectrum. There are so many! One of these amazingly gifted individuals is Rachel Barcellona. She is Miss Florida 2018 National American Miss (NAM) and was Miss Florida International 2016. Her platform “Ability Beyond Disabilities” inspires those that have challenges to strive for their dreams as well as to educate those who might not understand the challenges she, and others on the spectrum, face. FROM RACHEL: I am an advocate for those with disabilities. I created my platform, The Ability beyond Disabilities, to inspire those that have challenges to strive for their dreams as well as to educate those who might not understand the challenges we face. As an individual with autism, I often felt like I could not do anything. People with disabilities or anyone who is different are often targets for bullies as I was, but because of my life and social experience, I have overcome many challenges. Today I am the International Spokesperson for the Center for Autism and Related Disabilities at the University of Florida (CARD-USF), and was recently elected to their executive board of directors. I was also named the Ambassador for the Unicorn Children’s Foundation and work closely with this international organization to help people with neurodiversity. I am a member of the International Thespian Honor Society, an honor student and vocalist and love to sing opera. I have been able to single at Madison Square Gardens twice. I have a passion for art and writing and am currently finishing my first book and will work to get it published when its finished. I also work with several organizations that provide services to individuals with disabilities including therapy such as occupational and physical along with music and art therapy and have made over 300 appearances with my international title. My plan for the future is to graduate from the University of South Florida and one day open my own school for children with disabilities. I also wanted to share some of the things that happened while I was growing up. I just turned 22 years old but starting in preschool and elementary school things were much different. I was diagnosed with Autism along with dyspraxia and later diagnosed with dyscalculia, and epilepsy. I can remember not being able to put enough pressure on a crayon to make a mark on a paper! Buttons zippers and snaps were a nightmare! It was very difficult to hold objects and jump and skip. I went through several years of physical therapy, speech and language therapy and occupational therapy, which helped a lot. I still however cannot ride a bike, although, I haven’t tried a 3 wheeler, and I am not able to drive. I passed my learners permit for driving but because of epilepsy and seizures I cannot get my license… yet! Hopefully one day but if not there are several ways to learn to get around. I joke with my parents that I am waiting for the Google car that drives itself! Dyscalculia became an issue as math became harder. I am not going to lie it was exhausting getting through higher level math and took all the help I could get from teachers tutors etc. I am so happy to tell you I have finished my college math courses and will definitely not become an engineer. I am pursuing a career in writing English and vocal studies and love to sing opera.  CONCLUSION: Education is so important, and what better way to be educated than through the voices of individuals like Rachel. It’s so powerful to hear their strength and their passion. Thanks to everyone in My Autism Tribe, today and always.

Living with Autism: Ability Beyond Disabilities

Today’s episode will be a solo episode, so no guest. I wanted to take the time to touch on a subject that sparks a lot of frustration in the autism community. What does autism look like? I often am told that my son doesn’t “look autistic”. Even though I know that most people are not intending to be insensitive, it still bothers me. Yes, my son is the most beautiful thing that I’ve ever laid eyes on, but his beauty is more than skin deep. Autism does not define him, and I have never let his autism diagnosis precede him. So how do you respond when someone says something like “your child doesn’t look autistic”?   I use this question as an educational platform; an opportunity to present information in a conversation. I usually say, “If you want to know what an autistic child looks like, look at your own child or grandchild. Look at the children who live next door to you and take a glimpse at every child you walk past on the street. These could very well be the faces of autism. There is no visible indication that a child is affected by this neurological disorder.”   Autism is the king of all tricksters. I know this to be true because there have been times when I took my son to the store or doctor’s office and received looks of confusion or frustration in response to his sometimes-odd behaviors. Unless I inform someone, no one has a clue that he is autistic.   From time to time, I find myself getting upset about the glares from individuals who would never think autism is the culprit for these odd behaviors. There have even been occasions when I’ve had to get a little confrontational with those brave souls who dared to make a rude comment or stare for just a little longer than necessary. But, after all of the annoyance and rude exchanges, autism still lingers. It seems to me the only thing left to do is educate rather than disassociate. I believe this is where acceptance and inclusion come into play.   So, what exactly is autism? A lot of people I’ve crossed paths with have no clue as to what this disorder is and are even quick to misconstrue the meaning of autistic with artistic. Autism doesn’t have anything to do with the arts; our children are extremely talented, but artistic and autistic are two different things.   Autism is an illness that affects social and communication skills. Some Autistic children have a hard time playing with others and making friends and some are nonverbal. Many autistic children display behaviors that may include: repetitively pouring liquids from cup to cup, spinning around and not getting dizzy, not wanting to be touched or hugged, lining up toys and screaming for hours. Of course, every Autistic child is different. There are varying levels of this disorder and that’s why it is called a spectrum.   Some individuals on the low end of the spectrum are nonverbal and are only able to show what they want by taking others to it or bringing someone a picture. The fact that they can’t communicate is the reason for most of their severe meltdowns.   Imagine for a moment being frustrated, but not being able to express why. Imagine you have a toothache, but you’re not able tell anyone. Think how you would feel if you really wanted affection, but a simple stroke of your skin caused physical pain.   These are just a few of the things autism individuals must face and because of this, I have made a promise to my son and others on the autism spectrum to put up a good fight. To be their voice if they don’t yet have one. To be not only their advocate, but a part of every family’s support system.   Right now, no one expert has been able to confirm what causes autism, but one thing is certain: bad parenting IS NOT the cause of this impairment. Unfortunately, we still have some who are ready and willing to wave the idea around that a parent can inflict autism onto their child. There are a few people I know who are still quick to say that there is nothing wrong with autism individuals, but they only need to be disciplined. Although such an accusation hurts deeply, I now understand that it doesn’t matter who the person is or how well educated they may think they are on the subject of autism; no one can truly comprehend what it’s like to raise an autistic child unless they are raising one themselves.   When my son was diagnosed three years ago, I was hesitant to speak of his diagnosis. It wasn’t that I was embarrassed, but on the few occasions when I did reveal his autism diagnosis, I was inundated with sometimes hurtful questions like, “Oh, how many toothpicks can he count at one time, what musical instrument does he play, oh he’s like Einstein”. Too many questions, and not enough answers. Then I realized, by keeping silent on my son’s diagnosis, I was disassociating from our community. Think about it. Progress has never been made in history, without those voices that sparked tidal waves. That moved mountains. Autism is a part of my family’s life and it forever will be. A long time ago I accepted that my family doesn’t fit into an ordinary mold; we do what we can to get over every challenge that autism presents to us, and we find beauty amidst the chaos.   I laughed in the face of autism when my son started reading at an early age, when he was able to get a haircut without screaming, to play in the sand without hesitation. We have shown and proved that autism will not come in between our dreams of normalcy and happiness.   Still, there will forever be a battle to win with those who feel a disability is only a disability when it screams out at you from a wheelchair. There will always be one individual who thinks a good whipping is the only cure needed for an autistic child.   Sadly, for the millions of parents who know better, we can only continue to do what we do best: love and support our children. Nobody else will do it better. We are the keepers of disappointment when we find that medical insurance does not cover expensive and much needed therapy. We are the proactive and often angry parents questioning why sensory integration and assistive technology aren’t incorporated into our children’s individual education plan or (IEPs).   And some of those children are the ones you see in the grocery store shrieking at the top of their lungs or darting off nonstop at a moment’s notice. So please, don’t be quick to judge the parents. Looks are very deceiving. Take into account that it may not just be bad behavior; it may be autism.   In every situation, we must remind others there are behavioral strengths of children with autism, and those strengths can be expanded. Just like neurotypical individuals, those with autism have a wide range of talents. A child with autism may be able to play a song on the piano without sheet music, but will avoid interaction with peers. At school, perhaps the child’s piano-playing skills may be incorporated in the classroom to help increase communication with peers. For example, a teacher could make a game of “name that tune”, encourage turn-taking at the piano, have the child teach peers about the piano. Teachers could also make use of the vast knowledge a student with autism may have on a particular topic. For example, if a student is fixated on train routes, a teacher could have that student develop a presentation with peers regarding specific routes, draw a wall-size map of routes, and incorporate in lesson plans regarding transportation, communities or history. Any of these activities could be beneficial not only to the student with autism, but his or her peers as well.   Autism is what makes it difficult sometimes for my son to communicate with others, but this doesn’t mean that I can’t work with others to teach them how to communicate with him. Autism makes him sometimes unaware of social norms, and how to form relationships with peers. Autism is trading in soccer practice or piano lessons for speech therapy, occupational therapy, and ABA therapy. But autism also looks like the pure joy on his face when he is swimming, or snuggling with me. The confident smile he gets when he is brave enough to try something new. Autism in our family teaches us to celebrate and appreciate every single thing.   Autism is a diagnosis, and nothing more. As you may have heard, “It doesn’t come with a manual, but parents that never give up.” Just like I am instilling bravery and strength in my son, he is teaching me to be brave, strong, and courageous, too. He has taught me that even when I’m tired and feel like giving up, I can keep going. My son has taught me that there are many other ways of communication than simply just speaking. I knew my life had purpose before my son, but now I truly know what I’ve been put here to do. I am an autism parent, and I will never, ever give up, no matter what it takes.   Thanks so much for being a part of My Autism Tribe. For staying strong, and brave for your loved ones and your community, and for helping me teach others about the beautiful differences of autism. The next time someone asks you what autism looks like, I encourage you to take the opportunity to educate. Together, we are one voice made stronger. Keep up the great work, and I’ll see you next week!

Today’s episode will be a solo episode, so no guest. I wanted to take the time to touch on a subject that sparks a lot of frustration in the autism community. What does autism look like? I often am told that my son doesn’t “look autistic”. Even though I know that most people are not intending to be insensitive, it still bothers me. Yes, my son is the most beautiful thing that I’ve ever laid eyes on, but his beauty is more than skin deep. Autism does not define him, and I have never let his autism diagnosis precede him. So how do you respond when someone says something like “your child doesn’t look autistic”? I use this question as an educational platform; an opportunity to present information in a conversation. I usually say, “If you want to know what an autistic child looks like, look at your own child or grandchild. Look at the children who live next door to you and take a glimpse at every child you walk past on the street. These could very well be the faces of autism. There is no visible indication that a child is affected by this neurological disorder.” Autism is the king of all tricksters. I know this to be true because there have been times when I took my son to the store or doctor’s office and received looks of confusion or frustration in response to his sometimes-odd behaviors. Unless I inform someone, no one has a clue that he is autistic. From time to time, I find myself getting upset about the glares from individuals who would never think autism is the culprit for these odd behaviors. There have even been occasions when I’ve had to get a little confrontational with those brave souls who dared to make a rude comment or stare for just a little longer than necessary. But, after all of the annoyance and rude exchanges, autism still lingers. It seems to me the only thing left to do is educate rather than disassociate. I believe this is where acceptance and inclusion come into play. So, what exactly is autism? A lot of people I’ve crossed paths with have no clue as to what this disorder is and are even quick to misconstrue the meaning of autistic with artistic. Autism doesn’t have anything to do with the arts; our children are extremely talented, but artistic and autistic are two different things. Autism is an illness that affects social and communication skills. Some Autistic children have a hard time playing with others and making friends and some are nonverbal. Many autistic children display behaviors that may include: repetitively pouring liquids from cup to cup, spinning around and not getting dizzy, not wanting to be touched or hugged, lining up toys and screaming for hours. Of course, every Autistic child is different. There are varying levels of this disorder and that’s why it is called a spectrum. Some individuals on the low end of the spectrum are nonverbal and are only able to show what they want by taking others to it or bringing someone a picture. The fact that they can’t communicate is the reason for most of their severe meltdowns. Imagine for a moment being frustrated, but not being able to express why. Imagine you have a toothache, but you’re not able tell anyone. Think how you would feel if you really wanted affection, but a simple stroke of your skin caused physical pain. These are just a few of the things autism individuals must face and because of this, I have made a promise to my son and others on the autism spectrum to put up a good fight. To be their voice if they don’t yet have one. To be not only their advocate, but a part of every family’s support system. Right now, no one expert has been able to confirm what causes autism, but one thing is certain: bad parenting IS NOT the cause of this impairment. Unfortunately, we still have some who are ready and willing to wave the idea around that a parent can inflict autism onto their child. There are a few people I know who are still quick to say that there is nothing wrong with autism individuals, but they only need to be disciplined. Although such an accusation hurts deeply, I now understand that it doesn’t matter who the person is or how well educated they may think they are on the subject of autism; no one can truly comprehend what it’s like to raise an autistic child unless they are raising one themselves. When my son was diagnosed three years ago, I was hesitant to speak of his diagnosis. It wasn’t that I was embarrassed, but on the few occasions when I did reveal his autism diagnosis, I was inundated with sometimes hurtful questions like, “Oh, how many toothpicks can he count at one time, what musical instrument does he play, oh he’s like Einstein”. Too many questions, and not enough answers. Then I realized, by keeping silent on my son’s diagnosis, I was disassociating from our community. Think about it. Progress has never been made in history, without those voices that sparked tidal waves. That moved mountains. Autism is a part of my family’s life and it forever will be. A long time ago I accepted that my family doesn’t fit into an ordinary mold; we do what we can to get over every challenge that autism presents to us, and we find beauty amidst the chaos. I laughed in the face of autism when my son started reading at an early age, when he was able to get a haircut without screaming, to play in the sand without hesitation. We have shown and proved that autism will not come in between our dreams of normalcy and happiness. Still, there will forever be a battle to win with those who feel a disability is only a disability when it screams out at you from a wheelchair. There will always be one individual who thinks a good whipping is the only cure needed for an autistic child. Sadly, for the millions of parents who know better, we can only continue to do what we do best: love and support our children. Nobody else will do it better. We are the keepers of disappointment when we find that medical insurance does not cover expensive and much needed therapy. We are the proactive and often angry parents questioning why sensory integration and assistive technology aren’t incorporated into our children’s individual education plan or (IEPs). And some of those children are the ones you see in the grocery store shrieking at the top of their lungs or darting off nonstop at a moment’s notice. So please, don’t be quick to judge the parents. Looks are very deceiving. Take into account that it may not just be bad behavior; it may be autism. In every situation, we must remind others there are behavioral strengths of children with autism, and those strengths can be expanded. Just like neurotypical individuals, those with autism have a wide range of talents. A child with autism may be able to play a song on the piano without sheet music, but will avoid interaction with peers. At school, perhaps the child’s piano-playing skills may be incorporated in the classroom to help increase communication with peers. For example, a teacher could make a game of “name that tune”, encourage turn-taking at the piano, have the child teach peers about the piano. Teachers could also make use of the vast knowledge a student with autism may have on a particular topic. For example, if a student is fixated on train routes, a teacher could have that student develop a presentation with peers regarding specific routes, draw a wall-size map of routes, and incorporate in lesson plans regarding transportation, communities or history. Any of these activities could be beneficial not only to the student with autism, but his or her peers as well. Autism is what makes it difficult sometimes for my son to communicate with others, but this doesn’t mean that I can’t work with others to teach them how to communicate with him. Autism makes him sometimes unaware of social norms, and how to form relationships with peers. Autism is trading in soccer practice or piano lessons for speech therapy, occupational therapy, and ABA therapy. But autism also looks like the pure joy on his face when he is swimming, or snuggling with me. The confident smile he gets when he is brave enough to try something new. Autism in our family teaches us to celebrate and appreciate every single thing. Autism is a diagnosis, and nothing more. As you may have heard, “It doesn’t come with a manual, but parents that never give up.” Just like I am instilling bravery and strength in my son, he is teaching me to be brave, strong, and courageous, too. He has taught me that even when I’m tired and feel like giving up, I can keep going. My son has taught me that there are many other ways of communication than simply just speaking. I knew my life had purpose before my son, but now I truly know what I’ve been put here to do. I am an autism parent, and I will never, ever give up, no matter what it takes. Thanks so much for being a part of My Autism Tribe. For staying strong, and brave for your loved ones and your community, and for helping me teach others about the beautiful differences of autism. The next time someone asks you what autism looks like, I encourage you to take the opportunity to educate. Together, we are one voice made stronger. Keep up the great work, and I’ll see you next week!

What Does Autism Look Like: A Frustrating Question

EPISODE 8: Perhaps you have found that the presence of autism in your life has expanded your mind in ways you never thought possible. Before I was a parent, I thought I knew how it worked. Fast forward just 5 years, and I’m now parenting in a way that I never thought I would. My son, my pride and joy, has taught me a few tricks along the way.   On today’s episode, I’m speaking with fellow autism mom Alicia Rasmussen on a few of the traditions she has established on her non-traditional journey. Her journey with autism began in 2006 when her four-year old son was first diagnosed. He is now a thriving teenager, an accomplished musician, who is currently studying Japanese, Korean, and French simultaneously, in addition to learning Danish. He’s travel the world as an exchange student and is planning on attending college to study music or further his language studies.  SUMMARY Everyone deserves to have their gifts developed and nurtured in a way that leads to personal fulfillment and positive outcomes. Some of the more traditional tips incorporate into your daily lives may include:  First/ThenDepending on your needs and the skill set of your child, you can do this verbally, or with pictures. “First we clean up, then we can play.”  TimersYour child may need a 5-minute or even a 1-minute warning before there is a transition to a new activity. This helps a child feel more in control without controlling the parent.  Reward Positive BehaviorIt’s really important to recognize behaviors that a child usually struggles with! Sharing, following directions, being quiet. With positive affirmation, you can let the children know their behaviors were noticed.  Focus On “Positive Speak”Instead of telling your child what you DON’T want them to do, tell them what you DO want them to do.  Lead By ExampleThey’re looking at you to set the example for behavior. Even if you don’t feel calm, try to make sure that your behavior represents calm in sometimes-difficult situations. 

EPISODE 8: Perhaps you have found that the presence of autism in your life has expanded your mind in ways you never thought possible. Before I was a parent, I thought I knew how it worked. Fast forward just 5 years, and I’m now parenting in a way that I never thought I would. My son, my pride and joy, has taught me a few tricks along the way. On today’s episode, I’m speaking with fellow autism mom Alicia Rasmussen on a few of the traditions she has established on her non-traditional journey. Her journey with autism began in 2006 when her four-year old son was first diagnosed. He is now a thriving teenager, an accomplished musician, who is currently studying Japanese, Korean, and French simultaneously, in addition to learning Danish. He’s travel the world as an exchange student and is planning on attending college to study music or further his language studies. SUMMARY Everyone deserves to have their gifts developed and nurtured in a way that leads to personal fulfillment and positive outcomes. Some of the more traditional tips incorporate into your daily lives may include:  <ol><li>First/Then <ol><li>Depending on your needs and the skill set of your child, you can do this verbally, or with pictures. “First we clean up, then we can play.”</li> </ol></li> <li>Timers <ol><li>Your child may need a 5-minute or even a 1-minute warning before there is a transition to a new activity. This helps a child feel more in control without controlling the parent.</li> </ol></li> <li>Reward Positive Behavior <ol><li>It’s really important to recognize behaviors that a child usually struggles with! Sharing, following directions, being quiet. With positive affirmation, you can let the children know their behaviors were noticed.</li> </ol></li> <li>Focus On “Positive Speak” <ol><li>Instead of telling your child what you DON’T want them to do, tell them what you DO want them to do.</li> </ol></li> <li>Lead By Example <ol><li>They’re looking at you to set the example for behavior. Even if you don’t feel calm, try to make sure that your behavior represents calm in sometimes-difficult situations.</li> </ol></li></ol>

Autism: Finding Tradition in the Non-Traditional

Jacqueline Laurita

EPISODE 50:  FROM REAL HOUSEWIVES TO AUTISM ADVOCACY, JACQUELINE LAURITA DOES IT ALL   INTRO: Hi, everyone! You are in for a special treat today. Today’s guest is none other than autism mom advocate extraordinaire and reality tv celebrity, Jacqueline Laurita. She was on Bravo TV’s “The Real Housewives of New Jersey” for seven seasons, and during this time her adorable son Nicholas received his autism diagnosis. She’s gonna share all about that, so stay tuned. You definitely don’t want to miss it. Also, you may have seen, the My Autism Tribe podcast and nonprofit organization just recently celebrated our one-year birthday. That’s one year of successes, one year of challenges, and one year of getting to know each of you. Thank you for coming along on this journey with me, and for listening to this podcast! Your support means the world.   SEGMENT: Jacqueline’s son Nicholas was diagnosed with autism in 2012 at the age of three, and since this time Jacqueline has become a leading advocate in campaigns for increasing autism awareness. She’s a female powerhouse with a mama bear’s love for her family. I’m so excited to introduce to you, Jacqueline Laurita.   CONCLUSION: Whether you are a regular on a TV reality show, a teacher, a service provider, a stay-at-home mom, ALL of our voices are absolutely necessary in spreading autism awareness and acceptance in our communities. Maybe your platform is social media, or being a part of your child’s PTA. Don’t be afraid to make your voice stronger. Thanks so much to Jacqueline for her time and willingness to share her family’s story with us, and thanks so much to you for listening. You are an amazing member of My Autism Tribe, and without you none of this would be possible. I’ll see ya next week!   QUESTIONS ANSWERED DURING PODCAST: Can you tell us more about the diagnosis story- who, what where when and how-  What have been some of the biggest challenges you and your family have faced?   Let’s talk about advocating and awareness- what recent work have you done that has helped with awareness?  With all the many projects you have going on and caring for your family how do you like to unwind and relieve stress?  What words of advice would you tell the person you were 10 years ago?  Can you share a story of success in your journey?  Tell us more about Simple Spectrum and why you’re so passionate about this company? Can you tell us more about your nutrition background and why you got into this? Why do you think Simple Spectrum is so different than most supplements out there?  Can you tell us the difference that nutrition and supplements have made for you guys? Gluten free/ casein free diets?  Do you miss being on the housewives? Any chance you will do it again? Can you tell us more about The Lookover Ladies podcast? How’s that been going?   ADDITIONAL INFORMATION FOR JACQUELINE Facebook: https://www.facebook.com/jacquelinelaurita/ Instagram: https://www.instagram.com/jaclaurita/ Twitter: https://twitter.com/JacLaurita Book: https://www.amazon.com/Get-Beauty-Wellness-Getting-Together/dp/1940363845/ref=sr_1_1?keywords=get+it%3A+a+beauty%2C+style%2C+and+wellness+guide&amp;qid=1580314793&amp;sr=8-1 Podcast: https://podcasts.apple.com/us/podcast/the-lookover-ladies/id1479048850

EPISODE 50:  FROM REAL HOUSEWIVES TO AUTISM ADVOCACY, JACQUELINE LAURITA DOES IT ALL INTRO: Hi, everyone! You are in for a special treat today. Today’s guest is none other than autism mom advocate extraordinaire and reality tv celebrity, Jacqueline Laurita. She was on Bravo TV’s “The Real Housewives of New Jersey” for seven seasons, and during this time her adorable son Nicholas received his autism diagnosis. She’s gonna share all about that, so stay tuned. You definitely don’t want to miss it. Also, you may have seen, the My Autism Tribe podcast and nonprofit organization just recently celebrated our one-year birthday. That’s one year of successes, one year of challenges, and one year of getting to know each of you. Thank you for coming along on this journey with me, and for listening to this podcast! Your support means the world. SEGMENT: Jacqueline’s son Nicholas was diagnosed with autism in 2012 at the age of three, and since this time Jacqueline has become a leading advocate in campaigns for increasing autism awareness. She’s a female powerhouse with a mama bear’s love for her family. I’m so excited to introduce to you, Jacqueline Laurita. CONCLUSION: Whether you are a regular on a TV reality show, a teacher, a service provider, a stay-at-home mom, ALL of our voices are absolutely necessary in spreading autism awareness and acceptance in our communities. Maybe your platform is social media, or being a part of your child’s PTA. Don’t be afraid to make your voice stronger. Thanks so much to Jacqueline for her time and willingness to share her family’s story with us, and thanks so much to you for listening. You are an amazing member of My Autism Tribe, and without you none of this would be possible. I’ll see ya next week! QUESTIONS ANSWERED DURING PODCAST: <ol><li>Can you tell us more about the diagnosis story- who, what where when and how- </li> <li>What have been some of the biggest challenges you and your family have faced? </li> <li> Let’s talk about advocating and awareness- what recent work have you done that has helped with awareness? </li> <li>With all the many projects you have going on and caring for your family how do you like to unwind and relieve stress? </li> <li>What words of advice would you tell the person you were 10 years ago? </li> <li>Can you share a story of success in your journey? </li> <li>Tell us more about Simple Spectrum and why you’re so passionate about this company?</li> <li>Can you tell us more about your nutrition background and why you got into this?</li> <li>Why do you think Simple Spectrum is so different than most supplements out there? </li> <li>Can you tell us the difference that nutrition and supplements have made for you guys? Gluten free/ casein free diets? </li> <li>Do you miss being on the housewives? Any chance you will do it again?</li> <li>Can you tell us more about The Lookover Ladies podcast? How’s that been going?</li> </ol> ADDITIONAL INFORMATION FOR JACQUELINE Facebook: <a href="https://www.facebook.com/jacquelinelaurita/" rel="nofollow" target="_blank">https://www.facebook.com/jacquelinelaurita/</a> Instagram: <a href="https://www.instagram.com/jaclaurita/" rel="nofollow" target="_blank">https://www.instagram.com/jaclaurita/</a> Twitter: <a href="https://twitter.com/JacLaurita" rel="nofollow" target="_blank">https://twitter.com/JacLaurita</a> Book: <a href="https://www.amazon.com/Get-Beauty-Wellness-Getting-Together/dp/1940363845/ref=sr_1_1?keywords=get+it%3A+a+beauty%2C+style%2C+and+wellness+guide&amp;qid=1580314793&amp;sr=8-1" rel="nofollow" target="_blank">https://www.amazon.com/Get-Beauty-Wellness-Getting-Together/dp/1940363845/ref=sr_1_1?keywords=get+it%3A+a+beauty%2C+style%2C+and+wellness+guide&amp;qid=1580314793&amp;sr=8-1</a> Podcast: <a href="https://podcasts.apple.com/us/podcast/the-lookover-ladies/id1479048850" rel="nofollow" target="_blank">https://podcasts.apple.com/us/podcast/the-lookover-ladies/id1479048850</a>

From Real Housewives to Autism Advocate, guest Jacqueline Laurita Does it All

EPISODE 54: Financial Planning for Your Special Needs Child With Nick Wallace   INTRO: Raising a child with special needs can be one of life’s most fulfilling experiences, but it can also be one of the most costly. According to Autism Speaks, raising a child with autism costs on average $60,000 a year, but let’s face it…it costs a lot more than that for a lot of us depending on the severity and insurance coverage. It can be scary looking at the financial numbers, and even scarier when you wonder what would happen if something happened to you. Long-term financial planning is daunting, but no matter your child’s age, it’s important for you to start as early as possible.   Today, I’m speaking with Nick Wallace, a financial planner that focuses on planning for families in the special-needs community. His passion for this type of planning is inspired by the feeling of relief that he experienced after working through a game plan for his brother’s future, who has special needs. Nick is going to share some insights from the daily conversations that he has with families and planning for their loved ones.   CONCLUSION: The process for financial planning for a special-needs loved one takes time, but you can start by laying out a timeline for what needs to be done. Plan early, and revise as needed. It’s not easy or straightforward, and what makes sense for one family may not make sense for another. Get help. It’s doable. Thanks so much for being a part of My Autism Tribe, and I’ll see ya next week!   ADDITIONAL INFORMATION   TOOLS THAT ARE OFTEN USED: Various types of special needs trusts (with the help of a special needs attorney) ABLE accounts (when appropriate if allowed by the state) Various types of life insurance to answer the tomorrow questions or the 40 years from now questions Various types of investments for retirement and estate planning    QUESTIONS TO ASK YOUR FINANCIAL PLANNER: Did we take into consideration my loved one’s special needs when we established my insurance and investment game plan? Do I have enough life insurance to protect the care and income that I provide my family if something were to happen to me tomorrow? How did we arrive at this number? What steps can I take to make sure that I am on track for retirement? How did we come up with these numbers? Are my beneficiary designations on my life insurance and investment accounts set correctly so that my loved one with special needs’ benefits will not be in jeopardy? What is the long-term game plan on leaving behind money for my loved one if I live a long life of caring for them, but pass away before they do? A solid financial plan has answers for the “what-ifs” that life could throw at us tomorrow or 60 years from now. Nick recommends meeting with a financial advisor at least yearly to review plans and make changes if necessary.    NICK WALLACE CONTACT INFORMATION:   Facebook - @nickwallacefinance Website – www.nickwallace.nm.com Email – nick.wallace@nm.com

EPISODE 54: Financial Planning for Your Special Needs Child With Nick Wallace INTRO: Raising a child with special needs can be one of life’s most fulfilling experiences, but it can also be one of the most costly. According to Autism Speaks, raising a child with autism costs on average $60,000 a year, but let’s face it…it costs a lot more than that for a lot of us depending on the severity and insurance coverage. It can be scary looking at the financial numbers, and even scarier when you wonder what would happen if something happened to you. Long-term financial planning is daunting, but no matter your child’s age, it’s important for you to start as early as possible. Today, I’m speaking with Nick Wallace, a financial planner that focuses on planning for families in the special-needs community. His passion for this type of planning is inspired by the feeling of relief that he experienced after working through a game plan for his brother’s future, who has special needs. Nick is going to share some insights from the daily conversations that he has with families and planning for their loved ones. CONCLUSION: The process for financial planning for a special-needs loved one takes time, but you can start by laying out a timeline for what needs to be done. Plan early, and revise as needed. It’s not easy or straightforward, and what makes sense for one family may not make sense for another. Get help. It’s doable. Thanks so much for being a part of My Autism Tribe, and I’ll see ya next week! ADDITIONAL INFORMATION TOOLS THAT ARE OFTEN USED: <ul><li>Various types of special needs trusts (with the help of a special needs attorney)</li> <li>ABLE accounts (when appropriate if allowed by the state)</li> <li>Various types of life insurance to answer the tomorrow questions or the 40 years from now questions</li> <li>Various types of investments for retirement and estate planning</li> </ul> QUESTIONS TO ASK YOUR FINANCIAL PLANNER: <ul><li>Did we take into consideration my loved one’s special needs when we established my insurance and investment game plan?</li> <li>Do I have enough life insurance to protect the care and income that I provide my family if something were to happen to me tomorrow? How did we arrive at this number?</li> <li>What steps can I take to make sure that I am on track for retirement? How did we come up with these numbers?</li> <li>Are my beneficiary designations on my life insurance and investment accounts set correctly so that my loved one with special needs’ benefits will not be in jeopardy?</li> <li>What is the long-term game plan on leaving behind money for my loved one if I live a long life of caring for them, but pass away before they do?</li> <li>A solid financial plan has answers for the “what-ifs” that life could throw at us tomorrow or 60 years from now. Nick recommends meeting with a financial advisor at least yearly to review plans and make changes if necessary.</li> </ul> NICK WALLACE CONTACT INFORMATION: Facebook - @nickwallacefinance Website – <a href="http://www.nickwallace.nm.com" rel="nofollow" target="_blank">www.nickwallace.nm.com</a> Email – <a href="mailto:nick.wallace@nm.com">nick.wallace@nm.com</a>

Financial Planning for Your Special Needs Child

EPISODE 45: SHARING AN AUTISM DIAGNOSIS   INTRO: Hello, Friends! Thanks for joining me. This is the last podcast for the 2019 season. I want to take this time to thank each and every one of you for an amazing ride in 2019 – the first official year of this podcast and the My Autism Tribe nonprofit organization. I’m really excited about all of the advocacy plans that we already have for 2020…I’ll give you a hint on a couple: plans for a residential autism community, and an entire children’s book series. Buckle up for a wild and exciting year. As we finish out this year, I thought it would be fitting to take a podcast break before we start our second season. This time is going to be used to soak in every minute with family during the holidays. I want you to do the same. Don’t worry, we’ll still be on our social platforms, encouraging, empowering and supporting our friends. And without further ado, let’s get started with this podcast. It’s a solo episode and I’m talking about receiving an autism diagnosis, and sharing this diagnosis with family, friends, coworkers, really anyone that is involved in you or your child’s life. I’ll also share some tips that I’ve learned from personal experience, in addition to tips that others have shared. And you’re enjoying this podcast, we kindly request that you rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! SEGMENT: One thing is certain, any kind of diagnosis received, whether for yourself, your child, another family member, or friend, can and will lead to questions. Three and a half years ago, my son received his autism diagnosis, and I wasn’t prepared for what followed. As many of you know, you’re immediately thrown into the unknown world jam-packed and overloaded with libraries of information – whether you want to be or not. It’s part of it. Plain and simple. The days that follow can be some pretty dark ones. As you’re wrapping your head around the very definition of autism, which let’s face it, is a pretty loose one…it’s a SPECTRUM, right? You’re asking doctors questions, asking yourself questions, and then…people start asking YOU questions. Questions that, I guarantee, you aren’t prepared for. YOU are only in the beginning stages of answering questions that you have. I wasn’t sure how to answer most of them, and to be honest, my son’s diagnosis wasn’t something that I was even comfortable sharing with others until I had taken the time to process it. I’ve spoken with many individuals on the spectrum, heard their stories on receiving the diagnosis (sometimes much later in life), heard stories from parents on their child’s diagnosis, and all of them have had different journeys, but they also share many similarities. The most common similarity being that it was just flat out challenging to explain autism to their family and friends. And they were even undecided initially if they should say anything at all. I get it – and I bet most of you all do, too. Autism is definitely something that people are becoming more aware of, but just as you were in the early stages of diagnosis, they may have a limited understanding of what it looks like. And there’s a lot of misinformation out there as well that has skewed people’s perceptions. Media has recently helped with overall awareness – characters being written in to scripts for films and television shows, even times with the lead character being on the spectrum. But conversations can inevitably have Rain Man throwbacks, and questions of certain savant qualities. We all know these responses to the stereotypes of what autism is, and that maybe your child doesn’t fit in that box. A little sidebar, by the way. You’ll hear me reference “your child” throughout this, and I apologize in advance. I know there are many listeners that don’t have a child on the spectrum. Maybe they themselves are on the spectrum, or their grandchild or co-worker’s friend. I’m only speaking from the “your child” perspective because this is from my viewpoint as a parent, but this discussion may be used across the board, so to speak. Ok, so where were we? Sharing an autism diagnosis. It’s a conversation that is likely to be difficult and most certainly emotional, but just know that through this conversation, you will begin healing AND getting your tribe in order. It’s really important to have the people that you are close to as allies, because they are just as important as you are in advocating. The whole saying “it takes a village” is true. It takes your tribe. You may be told that you are overreacting, and children develop at different paces. That’s true. People may say that just because your child is a little different doesn’t mean he or she needs a diagnosis. That’s true. But you know your child better than anyone, and there are likely some challenges they are having that are not visible to everyone in your family – only known to your eyes and your heart. So, let’s talk about some of the ways that you can better equip yourself and others for this conversation. The first question that I often heard was, “Autism diagnosis. So, what does that mean?” It’s a pretty loaded question for a spectrum diagnosis. I usually start with explaining the behaviors, instead of pulling out statistics and handing out pamphlets of information. My son, as an example, had a hard time transitioning from one thing to another, one place to another, and had extremely limited eye contact…at least initially. I explained these challenges as being a part of the spectrum…at least for him. After using examples of some of his behaviors, I would then segway into some of the “basics”, like social skills and restricted or repetitive behaviors. Because of his lack of eye contact, as an example, my son might not respond in ways that a typically developing child would. He had a severe speech delay, and with his lack of eye contact, social situations were difficult. He also has a restricted diet, so if we went to a birthday party of a social event, when other children were eating pizza my son may be eating Chex Mix. Vocal stims may be a part of everyday life, or wanting to talk for hours on end about dinosaurs. Autism is a spectrum, so explaining to them that not all people exhibit these behaviors, but these are some common ones. This may not fit their stereotype of what autism is, so you might be met with some resistance. I didn’t have this experience of resistance (at least nothing major), but I’ve heard from families where even immediate family members struggled to understand, to accept, and to move on. Give them time to process. Just like you are processing, they need to as well. Just like you may have had feelings of sadness, anger, frustration – they could be finding a way to make sense of it. This may take a lot longer for some people, but be patient. They’ll find their way. In the meantime, ask them if they will support your child, because they are important. Diagnosis or not, your child deserves to be loved unconditionally. I’ve even heard of some family members (immediate and extended) being involved with doctor visits. It has helped them understand a little more about what is going on, and how they can support. Many people ask why a diagnosis is even needed – that you don’t need to put a label on your child. Well, I never wanted to label my child, but apparently insurance companies do. Without a diagnosis, my son wouldn’t have had the services he has had…the services that has allowed him to reach his potential. If it takes a label (a diagnosis), then so be it. I’ve also never whispered the word “autism”, afraid that it might hurt my son’s feelings. I’ve actually spoken of it as a super power of sorts. Through truth and understanding, I feel like my child has become stronger, and in turn can be stronger for others that may not be. That’s just a choice that I made in our journey. Another question, that I still fear years later, is “what caused it”? Uuuuuuugh. I can’t tell you just how much I hate this. There are SO many studies, SO many opinions, that it’s even a difficult topic of conversation within the autism community itself. Short story is – they don’t know. A slightly more expanded version is – it’s a neurodevelopmental disability, and it’s not caused by bad parenting. Maybe I’m still a little sensitive to this question due to the fact that I spent a whole year after receiving my son’s diagnosis researching on ways to blame myself, and I never want others to feel this way. I wish that I had known then what I know now. I’ve heard from others that they wish they had taken some time away from the internet, because just as the internet gives us so much valuable information, there’s a lot of guck out there as well. The fact is, I love my son, with or without a diagnosis, with or without a reasoning for what causes autism. He’s beautiful, and so, so special. No matter how you share an autism diagnosis, make sure you find your people that “get it”. The people that need no explanation, but rather a want to help support you and your family. Sometimes, it might not be family members. Sometimes it’s those strangers that you meet along that way that will give you the largest support. People like you. I’ve had the pleasure and privilege of making so many friends through My Autism Tribe and this podcast. My son is what keeps me going, but you are also what keeps me going, and I hope that I’m helping support you. We’re in it together, one voice made stronger. Much love to you all. Thanks for being a part of My Autism Tribe, and I’ll see you…next year, in 2020!

EPISODE 45: SHARING AN AUTISM DIAGNOSIS INTRO: Hello, Friends! Thanks for joining me. This is the last podcast for the 2019 season. I want to take this time to thank each and every one of you for an amazing ride in 2019 – the first official year of this podcast and the My Autism Tribe nonprofit organization. I’m really excited about all of the advocacy plans that we already have for 2020…I’ll give you a hint on a couple: plans for a residential autism community, and an entire children’s book series. Buckle up for a wild and exciting year. As we finish out this year, I thought it would be fitting to take a podcast break before we start our second season. This time is going to be used to soak in every minute with family during the holidays. I want you to do the same. Don’t worry, we’ll still be on our social platforms, encouraging, empowering and supporting our friends. And without further ado, let’s get started with this podcast. It’s a solo episode and I’m talking about receiving an autism diagnosis, and sharing this diagnosis with family, friends, coworkers, really anyone that is involved in you or your child’s life. I’ll also share some tips that I’ve learned from personal experience, in addition to tips that others have shared. And you’re enjoying this podcast, we kindly request that you rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks for listening! SEGMENT: One thing is certain, any kind of diagnosis received, whether for yourself, your child, another family member, or friend, can and will lead to questions. Three and a half years ago, my son received his autism diagnosis, and I wasn’t prepared for what followed. As many of you know, you’re immediately thrown into the unknown world jam-packed and overloaded with libraries of information – whether you want to be or not. It’s part of it. Plain and simple. The days that follow can be some pretty dark ones. As you’re wrapping your head around the very definition of autism, which let’s face it, is a pretty loose one…it’s a SPECTRUM, right? You’re asking doctors questions, asking yourself questions, and then…people start asking YOU questions. Questions that, I guarantee, you aren’t prepared for. YOU are only in the beginning stages of answering questions that you have. I wasn’t sure how to answer most of them, and to be honest, my son’s diagnosis wasn’t something that I was even comfortable sharing with others until I had taken the time to process it. I’ve spoken with many individuals on the spectrum, heard their stories on receiving the diagnosis (sometimes much later in life), heard stories from parents on their child’s diagnosis, and all of them have had different journeys, but they also share many similarities. The most common similarity being that it was just flat out challenging to explain autism to their family and friends. And they were even undecided initially if they should say anything at all. I get it – and I bet most of you all do, too. Autism is definitely something that people are becoming more aware of, but just as you were in the early stages of diagnosis, they may have a limited understanding of what it looks like. And there’s a lot of misinformation out there as well that has skewed people’s perceptions. Media has recently helped with overall awareness – characters being written in to scripts for films and television shows, even times with the lead character being on the spectrum. But conversations can inevitably have Rain Man throwbacks, and questions of certain savant qualities. We all know these responses to the stereotypes of what autism is, and that maybe your child doesn’t fit in that box. A little sidebar, by the way. You’ll hear me reference “your child” throughout this, and I apologize in advance. I know there are many listeners that don’t have a child on the spectrum. Maybe they themselves are on the spectrum, or their grandchild or co-worker’s friend. I’m only speaking from the “your child” perspective because this is from my viewpoint as a parent, but this discussion may be used across the board, so to speak. Ok, so where were we? Sharing an autism diagnosis. It’s a conversation that is likely to be difficult and most certainly emotional, but just know that through this conversation, you will begin healing AND getting your tribe in order. It’s really important to have the people that you are close to as allies, because they are just as important as you are in advocating. The whole saying “it takes a village” is true. It takes your tribe. You may be told that you are overreacting, and children develop at different paces. That’s true. People may say that just because your child is a little different doesn’t mean he or she needs a diagnosis. That’s true. But you know your child better than anyone, and there are likely some challenges they are having that are not visible to everyone in your family – only known to your eyes and your heart. So, let’s talk about some of the ways that you can better equip yourself and others for this conversation. The first question that I often heard was, “Autism diagnosis. So, what does that mean?” It’s a pretty loaded question for a spectrum diagnosis. I usually start with explaining the behaviors, instead of pulling out statistics and handing out pamphlets of information. My son, as an example, had a hard time transitioning from one thing to another, one place to another, and had extremely limited eye contact…at least initially. I explained these challenges as being a part of the spectrum…at least for him. After using examples of some of his behaviors, I would then segway into some of the “basics”, like social skills and restricted or repetitive behaviors. Because of his lack of eye contact, as an example, my son might not respond in ways that a typically developing child would. He had a severe speech delay, and with his lack of eye contact, social situations were difficult. He also has a restricted diet, so if we went to a birthday party of a social event, when other children were eating pizza my son may be eating Chex Mix. Vocal stims may be a part of everyday life, or wanting to talk for hours on end about dinosaurs. Autism is a spectrum, so explaining to them that not all people exhibit these behaviors, but these are some common ones. This may not fit their stereotype of what autism is, so you might be met with some resistance. I didn’t have this experience of resistance (at least nothing major), but I’ve heard from families where even immediate family members struggled to understand, to accept, and to move on. Give them time to process. Just like you are processing, they need to as well. Just like you may have had feelings of sadness, anger, frustration – they could be finding a way to make sense of it. This may take a lot longer for some people, but be patient. They’ll find their way. In the meantime, ask them if they will support your child, because they are important. Diagnosis or not, your child deserves to be loved unconditionally. I’ve even heard of some family members (immediate and extended) being involved with doctor visits. It has helped them understand a little more about what is going on, and how they can support. Many people ask why a diagnosis is even needed – that you don’t need to put a label on your child. Well, I never wanted to label my child, but apparently insurance companies do. Without a diagnosis, my son wouldn’t have had the services he has had…the services that has allowed him to reach his potential. If it takes a label (a diagnosis), then so be it. I’ve also never whispered the word “autism”, afraid that it might hurt my son’s feelings. I’ve actually spoken of it as a super power of sorts. Through truth and understanding, I feel like my child has become stronger, and in turn can be stronger for others that may not be. That’s just a choice that I made in our journey. Another question, that I still fear years later, is “what caused it”? Uuuuuuugh. I can’t tell you just how much I hate this. There are SO many studies, SO many opinions, that it’s even a difficult topic of conversation within the autism community itself. Short story is – they don’t know. A slightly more expanded version is – it’s a neurodevelopmental disability, and it’s not caused by bad parenting. Maybe I’m still a little sensitive to this question due to the fact that I spent a whole year after receiving my son’s diagnosis researching on ways to blame myself, and I never want others to feel this way. I wish that I had known then what I know now. I’ve heard from others that they wish they had taken some time away from the internet, because just as the internet gives us so much valuable information, there’s a lot of guck out there as well. The fact is, I love my son, with or without a diagnosis, with or without a reasoning for what causes autism. He’s beautiful, and so, so special. No matter how you share an autism diagnosis, make sure you find your people that “get it”. The people that need no explanation, but rather a want to help support you and your family. Sometimes, it might not be family members. Sometimes it’s those strangers that you meet along that way that will give you the largest support. People like you. I’ve had the pleasure and privilege of making so many friends through My Autism Tribe and this podcast. My son is what keeps me going, but you are also what keeps me going, and I hope that I’m helping support you. We’re in it together, one voice made stronger. Much love to you all. Thanks for being a part of My Autism Tribe, and I’ll see you…next year, in 2020!

Sharing an Autism Diagnosis

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