Cover image of The Rare Life

The Rare Life

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations ... Read more

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Ranked #1

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129: Maddison’s Story | A Delayed Diagnosis + Painful Comparisons

129: Maddison’s Story | A Delayed Diagnosis + Painful Comparisons

Have you ever felt like you just don’t quite fit in this community of medically complex parents, because your life isn’t... Read more

10 Aug 2023

46mins

Ranked #2

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128: Season 8 Kickoff | a New Theme, Sneak Peeks of Brand-new Episodes + a 9-Month Secret Revealed w/ Brittany Steitz

128: Season 8 Kickoff | a New Theme, Sneak Peeks of Brand-new Episodes + a 9-Month Secret Revealed w/ Brittany Steitz

We’re kicking off another season (number 8!!), and we’re coming in hot with a super exciting update about The Rare Life.... Read more

3 Aug 2023

26mins

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Ranked #3

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Health Anxiety w/ Amanda Griffith-Atkins, LMFT (Rebroadcast)

Health Anxiety w/ Amanda Griffith-Atkins, LMFT (Rebroadcast)

So many of us have experienced trauma related to our children’s health and safety. So, it’s no wonder that we get thrown... Read more

27 Jul 2023

56mins

Ranked #4

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To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way.” (Rebroadcast)

To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way.” (Rebroadcast)

I am definitely one of them. Hearing other parents of children with disabilities say adages like this one has always mad... Read more

20 Jul 2023

30mins

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Ranked #5

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The Sibling Perspective w/ Katherine Acton (Rebroadcast)

The Sibling Perspective w/ Katherine Acton (Rebroadcast)

Katherine never knew a world without her big brother Jonathon. Their relationship has a lot in common with any other run... Read more

13 Jul 2023

41mins

Ranked #6

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Should A Child’s Disability be Part of Their Parent’s Identity? w/ Author Emily Ladau and Amanda Griffith-Atkins, LMFT (Rebroadcast)

Should A Child’s Disability be Part of Their Parent’s Identity? w/ Author Emily Ladau and Amanda Griffith-Atkins, LMFT (Rebroadcast)

Like most other parents, my sense of identity forever changed with the arrival of my disabled child. And in many ways, i... Read more

6 Jul 2023

53mins

Ranked #7

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The Parable of the Pain Scale | The Ways Bearing Witness to Our Children’s Suffering Calibrates Our Pain Scales to an Entirely Different Level w/ Libby Holley (Rebroadcast)

The Parable of the Pain Scale | The Ways Bearing Witness to Our Children’s Suffering Calibrates Our Pain Scales to an Entirely Different Level w/ Libby Holley (Rebroadcast)

We are often asked to rate our pain on a scale of 1-10 for medical professionals. Sometimes for ourselves, other times f... Read more

29 Jun 2023

46mins

Ranked #8

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The Story of Claire (Rebroadcast)

The Story of Claire (Rebroadcast)

Although Claire’s medical condition has many characteristics, for Katie and her husband they all pale in comparison to t... Read more

22 Jun 2023

45mins

Ranked #9

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Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests (Rebroadcast)

Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests (Rebroadcast)

When you have a child with a medical complexity or disability, so many things get flipped on their head. And one of thos... Read more

15 Jun 2023

1hr 33mins

Ranked #10

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It’s All My Fault (Rebroadcast)

It’s All My Fault (Rebroadcast)

Finding out I’m a genetic carrier for my son’s syndrome of CDPX1 was a very tough pill to swallow; and it has a whole sl... Read more

8 Jun 2023

33mins

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