In this episode, we find out what it’s like to manage daily life with an apomorphine pump. Apomorphine is a type of liquid dopamine agonist that is primarily used to treat people living with a more ‘advanced’ stage of Parkinson’s.  UK-based Bob Taylor explains how the treatment has helped him adjust to his “rollercoaster” journey with the condition, since he was diagnosed more than two decades ago. Joining him is Liz Taylor, his wife, who has supported him as a caregiver throughout his experience.  They talk to Dr Tove Henriksen, a neurologist from Denmark, who says that in 30 years of treating people with Parkinson’s, she has never grown tired of her work. Together, our three guests explore the challenges and potential benefits of using an apomorphine pump.  This episode was sponsored by Convatec, and Tove has been paid by Convatec to provide information for this podcast. The information in this podcast is given for information purposes only and is not a substitute for advice from your doctor, pharmacist, or other healthcare professional. Opinions expressed within this podcast are those of the individuals and not necessarily representative of Convatec.  Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org.  If you like what you’ve heard, please rate and review – it helps make sure others can find us.   And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

In this episode, we find out what it’s like to manage daily life with an apomorphine pump. Apomorphine is a type of liquid dopamine agonist that is primarily used to treat people living with a more ‘advanced’ stage of Parkinson’s. UK-based Bob Taylor explains how the treatment has helped him adjust to his “rollercoaster” journey with the condition, since he was diagnosed more than two decades ago. Joining him is Liz Taylor, his wife, who has supported him as a caregiver throughout his experience. They talk to Dr Tove Henriksen, a neurologist from Denmark, who says that in 30 years of treating people with Parkinson’s, she has never grown tired of her work. Together, our three guests explore the challenges and potential benefits of using an apomorphine pump. This episode was sponsored by Convatec, and Tove has been paid by Convatec to provide information for this podcast. The information in this podcast is given for information purposes only and is not a substitute for advice from your doctor, pharmacist, or other healthcare professional. Opinions expressed within this podcast are those of the individuals and not necessarily representative of Convatec. Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="https://www.parkinsonseurope.org/" rel="noreferrer nofollow" target="_blank">www.parkinsonseurope.org</a>. If you like what you’ve heard, please rate and review – it helps make sure others can find us.  And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>. Keep a lookout for our next episode and until then, take care!

What you need to know about apomorphine pump treatment for Parkinson’s

In this episode, we explore gait impairment – a common symptom of Parkinson’s that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition. Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson’s back in 2005. David has experienced first-hand the effects of gait impairment in his day-to-day life and says he’s keen to challenge the misconceptions that can surround the condition. He is joined by Martina Mancini from Italy, who works as an assistant professor in the neurology department at the Oregon Health &amp; Sciences University, in Oregon, US. Martina has worked on numerous studies about gait impairment – and has also investigated the role wearable devices can play in treatment. David and Martina discuss what causes gait impairment, share advice on managing these symptoms – and explore how current research is addressing this topic. This episode was funded by Charco Neurotech, the ­­company behind CUE1 – a wearable medical device designed to help alleviate gait impairment and support movement in people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, we explore gait impairment – a common symptom of Parkinson’s that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition. Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson’s back in 2005. David has experienced first-hand the effects of gait impairment in his day-to-day life and says he’s keen to challenge the misconceptions that can surround the condition. He is joined by Martina Mancini from Italy, who works as an assistant professor in the neurology department at the Oregon Health &amp; Sciences University, in Oregon, US. Martina has worked on numerous studies about gait impairment – and has also investigated the role wearable devices can play in treatment. David and Martina discuss what causes gait impairment, share advice on managing these symptoms – and explore how current research is addressing this topic. This episode was funded by Charco Neurotech, the ­­company behind CUE1 – a wearable medical device designed to help alleviate gait impairment and support movement in people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="https://www.epda.eu.com/" rel="noreferrer nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

Freezing, moving and cueing: understanding gait and Parkinson's

This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition. Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson’s community how they can learn more about research. She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson’s six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients. Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson’s in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her. Amelia, Karl and Shafaq discuss how people in the Parkinson’s community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition. Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson’s community how they can learn more about research. She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson’s six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients. Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson’s in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her. Amelia, Karl and Shafaq discuss how people in the Parkinson’s community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a> If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

Getting involved in Parkinson's research

This episode delves into the gender gap in Parkinson’s research. It’s estimated that three million women worldwide are living with the condition – but are their specific needs being properly addressed in scientific studies?  It’s a topic that is important to our guests, Dr Annelien Oosterbaan – a physician-researcher from the Netherlands – and retired family physician Dr Soania Mathur from Toronto, Canada.  Both Annelien and Soania contributed to a recent study exploring gaps in awareness about sex and gender differences in Parkinson’s. The paper, “Unmet Needs of Women Living with Parkinson’s Disease”, highlights how women’s experiences of the condition have been an “overlooked field” – and includes recommendations to help tackle the problem.  In their conversation, Annelien and Soania discuss the areas they think have been neglected in Parkinson’s research – while sharing insights from their personal experiences of life with the condition.  This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

This episode delves into the gender gap in Parkinson’s research. It’s estimated that three million women worldwide are living with the condition – but are their specific needs being properly addressed in scientific studies? It’s a topic that is important to our guests, Dr Annelien Oosterbaan – a physician-researcher from the Netherlands – and retired family physician Dr Soania Mathur from Toronto, Canada. Both Annelien and Soania contributed to a recent study exploring gaps in awareness about sex and gender differences in Parkinson’s. The paper, “Unmet Needs of Women Living with Parkinson’s Disease”, highlights how women’s experiences of the condition have been an “overlooked field” – and includes recommendations to help tackle the problem. In their conversation, Annelien and Soania discuss the areas they think have been neglected in Parkinson’s research – while sharing insights from their personal experiences of life with the condition. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a> If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

Women and Parkinson's: the research gap

An estimated three million women around the world are living with Parkinson’s. But historically, their specific needs and experiences have been neglected – leading to disparities in diagnosis, treatment and medication. In this episode, Dr Lucía Ferro joins us from Barcelona, Spain. Diagnosed with Parkinson’s three years ago, she has since become passionate about raising awareness of the unique challenges that face women with the condition. Joining her for an open conversation is US-based boxing coach and former engineer Lori DePorter. Referring to her own diagnosis as a “perfect storm of events”, Lori has found ways to help manage Parkinson’s – and its impact on other aspects of her life. Lucía and Lori discuss their personal experiences – from health and work, to family life – and feeling represented in the community.  This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

An estimated three million women around the world are living with Parkinson’s. But historically, their specific needs and experiences have been neglected – leading to disparities in diagnosis, treatment and medication. In this episode, Dr Lucía Ferro joins us from Barcelona, Spain. Diagnosed with Parkinson’s three years ago, she has since become passionate about raising awareness of the unique challenges that face women with the condition. Joining her for an open conversation is US-based boxing coach and former engineer Lori DePorter. Referring to her own diagnosis as a “perfect storm of events”, Lori has found ways to help manage Parkinson’s – and its impact on other aspects of her life. Lucía and Lori discuss their personal experiences – from health and work, to family life – and feeling represented in the community.  This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a> If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

Women and Parkinson's: health and wellness

The more we’ve talked to people living with Parkinson’s, the more we’ve learned about the impact of compulsive and impulsive behaviours. A potential side effect of dopamine agonists (that is, commonly prescribed Parkinson’s medications that mimic dopamine in the brain), these might include compulsive gambling, shopping or hypersexuality. In this episode, UK-based Vicki Dillon shares her own difficult experience of impulsive behaviours, which saw her personality change while her job, finances, reputation and family life suffered. She is joined by Dr Angelo Antonini, an academic neurologist from Italy who has around 30 years of experience supporting people with Parkinson’s. He shares his perspective on approaching dopamine agonists – and treating his patients with care and empathy. In their conversation, Vicki and Angelo discuss the implications of dopamine agonists, how to address compulsive and impulsive behaviours – and why awareness about the issue is key to overcoming stigma and helping people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

The more we’ve talked to people living with Parkinson’s, the more we’ve learned about the impact of compulsive and impulsive behaviours. A potential side effect of dopamine agonists (that is, commonly prescribed Parkinson’s medications that mimic dopamine in the brain), these might include compulsive gambling, shopping or hypersexuality. In this episode, UK-based Vicki Dillon shares her own difficult experience of impulsive behaviours, which saw her personality change while her job, finances, reputation and family life suffered. She is joined by Dr Angelo Antonini, an academic neurologist from Italy who has around 30 years of experience supporting people with Parkinson’s. He shares his perspective on approaching dopamine agonists – and treating his patients with care and empathy. In their conversation, Vicki and Angelo discuss the implications of dopamine agonists, how to address compulsive and impulsive behaviours – and why awareness about the issue is key to overcoming stigma and helping people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a> If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>. Keep a lookout for our next episode and until then, take care!

Breaking the silence on impulsive and compulsive behaviours

In our second episode on deep brain stimulation, two guests discuss what life is like after having DBS surgery – from symptoms and charging the device, to check-ups and body image. Our first guest is Peter Schielzeth, a 58-year-old retired Chief Operating Officer, who now does pro bono work for a start-up. Peter lives in Germany with his husband, as well as his pet dog Basti. Peter was diagnosed with Parkinson’s in 2014 – and says that taking the decision to have DBS four years later has had a significant impact on his experience of tremor. He talks to Louise Ebenezer, a Parkinson’s disease nurse specialist based in Wales, UK. Louise’s role includes meeting with people who’ve been diagnosed with the condition – and discussing referrals for treatments like deep brain stimulation. She describes her job as the best she’s ever had – and says she now can’t imagine working in any other area. This episode was funded by Abbott, who is dedicated to helping people live more fully by transforming the future of healthcare through life-changing technologies and products. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In our second episode on deep brain stimulation, two guests discuss what life is like after having DBS surgery – from symptoms and charging the device, to check-ups and body image. Our first guest is Peter Schielzeth, a 58-year-old retired Chief Operating Officer, who now does pro bono work for a start-up. Peter lives in Germany with his husband, as well as his pet dog Basti. Peter was diagnosed with Parkinson’s in 2014 – and says that taking the decision to have DBS four years later has had a significant impact on his experience of tremor. He talks to Louise Ebenezer, a Parkinson’s disease nurse specialist based in Wales, UK. Louise’s role includes meeting with people who’ve been diagnosed with the condition – and discussing referrals for treatments like deep brain stimulation. She describes her job as the best she’s ever had – and says she now can’t imagine working in any other area. This episode was funded by Abbott, who is dedicated to helping people live more fully by transforming the future of healthcare through life-changing technologies and products. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Everyday life after DBS surgery

In this episode, two guests discuss everything there is to consider when making the decision about deep brain stimulation, or DBS. Here to tell us all about her experience is Cathy Molohan, an Irish-born Parkinson’s campaigner based in Germany. Diagnosed with the condition in 2012, Cathy underwent DBS surgery nearly two years ago to address issues with tremor.  Joining her is neurosurgeon Keyoumars Ashkan from the UK, who is Professor of Neurosurgery at King’s College Hospital in London. With many years’ experience supporting patients through DBS, he shares his own perspective on how to prepare for the surgery.  This episode was funded by Medtronic, a medical device company working on groundbreaking healthcare technology solutions for the most complex and challenging conditions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, two guests discuss everything there is to consider when making the decision about deep brain stimulation, or DBS. Here to tell us all about her experience is Cathy Molohan, an Irish-born Parkinson’s campaigner based in Germany. Diagnosed with the condition in 2012, Cathy underwent DBS surgery nearly two years ago to address issues with tremor.  Joining her is neurosurgeon Keyoumars Ashkan from the UK, who is Professor of Neurosurgery at King’s College Hospital in London. With many years’ experience supporting patients through DBS, he shares his own perspective on how to prepare for the surgery.  This episode was funded by Medtronic, a medical device company working on groundbreaking healthcare technology solutions for the most complex and challenging conditions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Deciding to have DBS surgery

Ever since we first started recording the Parkinson’s Life podcast, we’ve been asking our guests the same three questions, designed to get to the heart of what it’s like to live with Parkinson’s.  Describe Parkinson's in three words. What gets you through the day? What has Parkinson's given you – and what has it taken away?  How would you answer them? In this end of year special, for the first time, we share answers from guests across the series – whose perspectives range from funny to sad to angry, and everything in between.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Ever since we first started recording the Parkinson’s Life podcast, we’ve been asking our guests the same three questions, designed to get to the heart of what it’s like to live with Parkinson’s. Describe Parkinson's in three words. What gets you through the day? What has Parkinson's given you – and what has it taken away? How would you answer them? In this end of year special, for the first time, we share answers from guests across the series – whose perspectives range from funny to sad to angry, and everything in between.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Special episode: three questions on life with Parkinson's 

In this episode, we’re investigating what it means to pursue passions while living with the condition.  Our first guest is Trevor Woollard, who lives in Buckinghamshire, UK. Trevor was inspired by street art and graffiti he saw in New York to pick up a paintbrush – a pursuit that led him to set up a non-profit called ‘Parkinson’s Art’ to support creative projects from people in the community. He says his own artistic style, and what art means to him, has evolved as the condition has progressed.  Trevor is joined by Kitty Fitton, a blogger and comedian based in New Zealand. Kitty took her first steps into stand-up when she was asked to speak at a seminar, and her comedy often focuses on her everyday life, her family and her experience of living with Parkinson’s.   In their conversation, Kitty and Trevor talk about staying motivated in the face of apathy, whether being diagnosed with Parkinson’s has led them to new interests and creative approaches – and how pursuing their passions has helped them forge connections with others.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.   If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. 

In this episode, we’re investigating what it means to pursue passions while living with the condition. Our first guest is Trevor Woollard, who lives in Buckinghamshire, UK. Trevor was inspired by street art and graffiti he saw in New York to pick up a paintbrush – a pursuit that led him to set up a non-profit called ‘Parkinson’s Art’ to support creative projects from people in the community. He says his own artistic style, and what art means to him, has evolved as the condition has progressed. Trevor is joined by Kitty Fitton, a blogger and comedian based in New Zealand. Kitty took her first steps into stand-up when she was asked to speak at a seminar, and her comedy often focuses on her everyday life, her family and her experience of living with Parkinson’s.  In their conversation, Kitty and Trevor talk about staying motivated in the face of apathy, whether being diagnosed with Parkinson’s has led them to new interests and creative approaches – and how pursuing their passions has helped them forge connections with others. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

Pursuing passions with Parkinson's

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons.parkinsonslife.eu

In this episode, four guests join us virtually from around the world to discuss the ways life has changed during the pandemic, how they have managed – and the lessons to be learned from Covid-19. Our first guest is Jens Greve from Germany, who was diagnosed with Parkinson’s in 2013 – and who, despite the challenges of the pandemic, has found solace in “rediscovering” family time.  He is joined by Clare Addison from the UK, who has experienced the pandemic from contrasting angles as a neuroscience-specialised nurse who has herself lived with Parkinson’s since 2016. Alongside them is Fulvio Capitanio, an Italian based in Spain, who has worked hard to overcome  the condition’s obstacles through lockdowns and social distancing mandates. And Maren Neumann-Aukthun, who joins us from Germany, shares why the connections she has seen being made during the pandemic help her to feel optimistic about the future.  This episode was funded by Kyowa Kirin International, the specialty pharmaceutical company engaged in the treatment of unmet therapeutic needs. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.  Date of Preparation: November 2021. KKI/INT/IST/0250

In this episode, four guests join us virtually from around the world to discuss the ways life has changed during the pandemic, how they have managed – and the lessons to be learned from Covid-19. Our first guest is Jens Greve from Germany, who was diagnosed with Parkinson’s in 2013 – and who, despite the challenges of the pandemic, has found solace in “rediscovering” family time.  He is joined by Clare Addison from the UK, who has experienced the pandemic from contrasting angles as a neuroscience-specialised nurse who has herself lived with Parkinson’s since 2016. Alongside them is Fulvio Capitanio, an Italian based in Spain, who has worked hard to overcome  the condition’s obstacles through lockdowns and social distancing mandates. And Maren Neumann-Aukthun, who joins us from Germany, shares why the connections she has seen being made during the pandemic help her to feel optimistic about the future.  This episode was funded by Kyowa Kirin International, the specialty pharmaceutical company engaged in the treatment of unmet therapeutic needs. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.  Date of Preparation: November 2021. KKI/INT/IST/0250

Lessons learned from the pandemic

In this episode, we’re looking at the relationship between Parkinson’s and fitness – and how to keep your body moving with the condition. A host of research highlights the importance of physical activity for people living with Parkinson’s. But as time goes on, the condition can create new obstacles for those looking to keep up an exercise regime. So how can people with Parkinson’s stay fit? Our first guest is Mirjam Holzel from the Netherlands, who was diagnosed with Parkinson’s seven years ago. Since her diagnosis, Mirjam’s relationship to fitness has encompassed a hike up Mount Kilimanjaro and immobility caused by back pain – which she has worked hard to overcome. She is joined by Mariella Graziano, an Argentinian based in Luxembourg who has been a physiotherapist for more than 30 years. Determined to improve the life quality of people with Parkinson’s, she helps her patients to find the exercise routines that work best for them. In this episode, Mirjam and Mariella discuss the importance of fitness for people with Parkinson’s – and share tips to help those with the condition to stay motivated and empowered to exercise. This episode was funded by Bial, whose ‘Keep it on’ website aims to inspire people with Parkinson’s to get active every day.   Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.   If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, we’re looking at the relationship between Parkinson’s and fitness – and how to keep your body moving with the condition. A host of research highlights the importance of physical activity for people living with Parkinson’s. But as time goes on, the condition can create new obstacles for those looking to keep up an exercise regime. So how can people with Parkinson’s stay fit? Our first guest is Mirjam Holzel from the Netherlands, who was diagnosed with Parkinson’s seven years ago. Since her diagnosis, Mirjam’s relationship to fitness has encompassed a hike up Mount Kilimanjaro and immobility caused by back pain – which she has worked hard to overcome. She is joined by Mariella Graziano, an Argentinian based in Luxembourg who has been a physiotherapist for more than 30 years. Determined to improve the life quality of people with Parkinson’s, she helps her patients to find the exercise routines that work best for them. In this episode, Mirjam and Mariella discuss the importance of fitness for people with Parkinson’s – and share tips to help those with the condition to stay motivated and empowered to exercise. This episode was funded by Bial, whose ‘Keep it on’ website aims to inspire people with Parkinson’s to get active every day.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

How to keep moving with Parkinson's

In this episode, we’re focusing on Parkinson’s and food. Food is such a huge part of our lives but how does the way you eat affect Parkinson’s – and does Parkinson’s impact the way you eat? Our first guest is Richelle Flanagan, a dietician based in Dublin, Ireland. Richelle, who was diagnosed with Parkinson’s in 2017, says nutrition is a missing piece of the Parkinson’s puzzle – and believes that most people with the condition don’t know enough about it. She talks to Zarela Martinez, a chef, podcaster and author who was diagnosed in 2005. Zarela was born and raised in Mexico, but has lived in New York, where she opened her restaurant, since 1983. More recently, she has been working on a website called ‘A taste for life with Zarela’, as well as her own podcast ‘Cooking in Mexican From A to Z’, which she hosts with her son. In this episode, Richelle and Zarela discuss their top tips for cooking while dealing with Parkinson’s symptoms, whether nutrition is a neglected part of treatment – and the joys of singing and dancing in the kitchen.  This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.   If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

In this episode, we’re focusing on Parkinson’s and food. Food is such a huge part of our lives but how does the way you eat affect Parkinson’s – and does Parkinson’s impact the way you eat? Our first guest is Richelle Flanagan, a dietician based in Dublin, Ireland. Richelle, who was diagnosed with Parkinson’s in 2017, says nutrition is a missing piece of the Parkinson’s puzzle – and believes that most people with the condition don’t know enough about it. She talks to Zarela Martinez, a chef, podcaster and author who was diagnosed in 2005. Zarela was born and raised in Mexico, but has lived in New York, where she opened her restaurant, since 1983. More recently, she has been working on a website called ‘A taste for life with Zarela’, as well as her own podcast ‘Cooking in Mexican From A to Z’, which she hosts with her son. In this episode, Richelle and Zarela discuss their top tips for cooking while dealing with Parkinson’s symptoms, whether nutrition is a neglected part of treatment – and the joys of singing and dancing in the kitchen. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe.  If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a>.

How to eat well with Parkinson's

In this episode, we’re looking at the impact of Parkinson’s on dating, relationships and breakups. Being in a relationship comes with its own challenges, and these can become even harder to navigate when Parkinson’s is thrown into the mix. When do you tell a potential partner about your condition? How do you handle symptoms that make it difficult to communicate, care or be intimate? Why do some relationships work while others fall apart? In this episode, two guests join us to discuss the highs and lows of looking for love while living with Parkinson’s. Our first guest is musician Robbie Tucker from New Brunswick, Canada, who was diagnosed with young onset Parkinson’s in 2005. Robbie ended a five-year relationship shortly before speaking with us – and is now figuring out how to be alone, but not lonely. He is joined by Heather Kennedy, a writer and Parkinson’s advocate based in Northern California, US. Diagnosed in 2011, Heather says her condition contributed to the end of her marriage – but now appreciates new chances at love. In this episode, Robbie and Heather discuss how Parkinson’s has impacted their approach to dating, the challenges they’ve faced in their relationships and their advice for others with the condition.  Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. For the latest research and information on Parkinson’s, visit EPDA.eu.com.  If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife) and Twitter (https://twitter.com/parkinsons_life).

In this episode, we’re looking at the impact of Parkinson’s on dating, relationships and breakups. Being in a relationship comes with its own challenges, and these can become even harder to navigate when Parkinson’s is thrown into the mix. When do you tell a potential partner about your condition? How do you handle symptoms that make it difficult to communicate, care or be intimate? Why do some relationships work while others fall apart? In this episode, two guests join us to discuss the highs and lows of looking for love while living with Parkinson’s. Our first guest is musician Robbie Tucker from New Brunswick, Canada, who was diagnosed with young onset Parkinson’s in 2005. Robbie ended a five-year relationship shortly before speaking with us – and is now figuring out how to be alone, but not lonely. He is joined by Heather Kennedy, a writer and Parkinson’s advocate based in Northern California, US. Diagnosed in 2011, Heather says her condition contributed to the end of her marriage – but now appreciates new chances at love. In this episode, Robbie and Heather discuss how Parkinson’s has impacted their approach to dating, the challenges they’ve faced in their relationships and their advice for others with the condition. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a> or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife" rel="noreferrer nofollow" target="_blank">https://www.facebook.com/parkinsonslife</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="noreferrer nofollow" target="_blank">https://twitter.com/parkinsons_life</a>).

Love, sex and Parkinson's

In this episode, we’re looking at the relationship between Parkinson’s and loneliness. There are many reasons that people with Parkinson’s might experience feelings of loneliness – these might include isolation because of communication challenges, stigma surrounding symptoms, and difficulties explaining the realities of the condition to anyone who hasn’t experienced it themselves. A lot of this has been exacerbated by the coronavirus pandemic – as social distancing, self-isolation and lockdowns have made it harder to connect. Our first guest is Wytze Russchen, who was diagnosed with Parkinson’s in 2008. Before moving to Spain, Wytze had a fast-paced career as a lobbyist in Belgium – but says that his pace of life has slowed down since diagnosis. He’s experienced mental health symptoms associated with Parkinson’s – and says that it’s been difficult to communicate some of the challenges linked to the condition, even to close friends and family. He is joined by Dr. Indu Subramanian, a movement disorder neurologist based in Los Angeles, US. Indu recently worked on a study which suggested that people with Parkinson’s who experience loneliness may have more severe symptoms and a worse quality of life. She also brings her interest in yoga, mindfulness and other alternative treatments to the discussion. In this episode, Wytze and Indu discuss why connecting with others is so important, how to find ways of coping with loneliness – and why it’s vital to learn to appreciate the little things. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing, using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

In this episode, we’re looking at the relationship between Parkinson’s and loneliness. There are many reasons that people with Parkinson’s might experience feelings of loneliness – these might include isolation because of communication challenges, stigma surrounding symptoms, and difficulties explaining the realities of the condition to anyone who hasn’t experienced it themselves. A lot of this has been exacerbated by the coronavirus pandemic – as social distancing, self-isolation and lockdowns have made it harder to connect. Our first guest is Wytze Russchen, who was diagnosed with Parkinson’s in 2008. Before moving to Spain, Wytze had a fast-paced career as a lobbyist in Belgium – but says that his pace of life has slowed down since diagnosis. He’s experienced mental health symptoms associated with Parkinson’s – and says that it’s been difficult to communicate some of the challenges linked to the condition, even to close friends and family. He is joined by Dr. Indu Subramanian, a movement disorder neurologist based in Los Angeles, US. Indu recently worked on a study which suggested that people with Parkinson’s who experience loneliness may have more severe symptoms and a worse quality of life. She also brings her interest in yoga, mindfulness and other alternative treatments to the discussion. In this episode, Wytze and Indu discuss why connecting with others is so important, how to find ways of coping with loneliness – and why it’s vital to learn to appreciate the little things. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing, using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">https://www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="nofollow" target="_blank">https://twitter.com/parkinsons_life</a>)

Parkinson’s and loneliness

In this episode, which has been initiated and funded by Britannia Pharmaceuticals, we’re looking at what it means to reach an advanced stage of the condition. Because Parkinson’s disease is so individualised, its progression is not black and white. The term ‘advanced’ Parkinson’s generally refers to the stage at which symptoms have a bigger impact on day-to-day life. At this stage, medications may not be as effective and people with the condition may begin to rely more on care. Our first guest is Colin Cheesman, a former local authority chief executive based in Chester, UK, who at 74 has lived with Parkinson’s disease for two decades. Colin has been able to maintain a good quality of life but in the past few years, his Parkinson’s symptoms – such as involuntary movement and loss of balance – have become more challenging. He is joined by Dr Nishantha Silva, a geriatrician based in Grantham, UK, who has specialised in Parkinson’s disease for 10 years. As a doctor, Nishantha is motivated by the experiences of his own father, who lived with the condition – and strongly believes that the right care can ensure long, fulfilling lives for people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife) and Twitter (https://twitter.com/parkinsons_life) Message from our sponsor: The content of this podcast was up to date and accurate at the time of recording in June 2021. The views expressed in this episode represent the speakers’ own opinions and experiences. Speakers may express personal opinions that are not necessarily shared by Britannia Pharmaceuticals. Content from this episode has been reviewed by Britannia to ensure compliance with the ABPI and EFPIA Codes of Practice for the Pharmaceutical Industry. Any adverse events discussed within this podcast have been reported to the regulatory authorities. All adverse events should be reported to the relevant regulatory authority.

In this episode, which has been initiated and funded by Britannia Pharmaceuticals, we’re looking at what it means to reach an advanced stage of the condition. Because Parkinson’s disease is so individualised, its progression is not black and white. The term ‘advanced’ Parkinson’s generally refers to the stage at which symptoms have a bigger impact on day-to-day life. At this stage, medications may not be as effective and people with the condition may begin to rely more on care. Our first guest is Colin Cheesman, a former local authority chief executive based in Chester, UK, who at 74 has lived with Parkinson’s disease for two decades. Colin has been able to maintain a good quality of life but in the past few years, his Parkinson’s symptoms – such as involuntary movement and loss of balance – have become more challenging. He is joined by Dr Nishantha Silva, a geriatrician based in Grantham, UK, who has specialised in Parkinson’s disease for 10 years. As a doctor, Nishantha is motivated by the experiences of his own father, who lived with the condition – and strongly believes that the right care can ensure long, fulfilling lives for people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit <a href="http://EPDA.eu.com" rel="nofollow" target="_blank">EPDA.eu.com</a>. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at <a href="mailto:editor@parkinsonslife.eu" rel="noreferrer">editor@parkinsonslife.eu</a> or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife" rel="noreferrer nofollow" target="_blank">https://www.facebook.com/parkinsonslife</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="noreferrer nofollow" target="_blank">https://twitter.com/parkinsons_life</a>) Message from our sponsor: The content of this podcast was up to date and accurate at the time of recording in June 2021. The views expressed in this episode represent the speakers’ own opinions and experiences. Speakers may express personal opinions that are not necessarily shared by Britannia Pharmaceuticals. Content from this episode has been reviewed by Britannia to ensure compliance with the ABPI and EFPIA Codes of Practice for the Pharmaceutical Industry. Any adverse events discussed within this podcast have been reported to the regulatory authorities. All adverse events should be reported to the relevant regulatory authority.

Living with 'advanced' Parkinson's disease

In this episode, we look at the relationship between Parkinson’s and sleep. We speak to Cormac and Mary Mehigan, a couple based in Limerick, Ireland, who’ve been married for nearly 25 years. Cormac was diagnosed with Parkinson’s two years ago but has experienced active dreaming and sleeplessness for around six years. They are joined by Brian Magennis, a Parkinson’s advanced nurse practitioner in Dublin. Brian is one of only four specialist Parkinson’s nurses in the whole of Ireland – and has a close personal connection to the condition as his father was diagnosed with Parkinson’s at the age of 28. In this open, honest – and sometimes emotional – conversation, Cormac and Mary discuss how these symptoms affect their everyday lives and Brian shares his advice on getting a good night’s sleep. The Parkinson’s Life podcast is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on how to improve your sleep with Parkinson’s, visit EPDA.eu.com/sleepwell. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

In this episode, we look at the relationship between Parkinson’s and sleep. We speak to Cormac and Mary Mehigan, a couple based in Limerick, Ireland, who’ve been married for nearly 25 years. Cormac was diagnosed with Parkinson’s two years ago but has experienced active dreaming and sleeplessness for around six years. They are joined by Brian Magennis, a Parkinson’s advanced nurse practitioner in Dublin. Brian is one of only four specialist Parkinson’s nurses in the whole of Ireland – and has a close personal connection to the condition as his father was diagnosed with Parkinson’s at the age of 28. In this open, honest – and sometimes emotional – conversation, Cormac and Mary discuss how these symptoms affect their everyday lives and Brian shares his advice on getting a good night’s sleep. The Parkinson’s Life podcast is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on how to improve your sleep with Parkinson’s, visit <a href="http://EPDA.eu.com/sleepwell" rel="nofollow" target="_blank">EPDA.eu.com/sleepwell</a>. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">https://www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="nofollow" target="_blank">https://twitter.com/parkinsons_life</a>)

How to sleep well with Parkinson's

What’s the relationship between Parkinson’s and creativity?American film-maker, hip-hop artist and person with Parkinson’s Walter J Archey III and UK composer and musician Amy Mallett join us to discuss the interaction between Parkinson’s and creativity. In a lively and enlightening episode, the two discuss: •	How Parkinson’s affects creativity – Walter discusses how the condition affects his ability to rap and Amy explains how singing can help people with Parkinson’s regain control of their voice.•	Building confidence and community – the guests reflect on how creativity helps people “leave their Parkinson’s at the door”, encourages an active and social lifestyle and benefits mental health. •	Using art to raise awareness – Walter discusses how his single ‘Light Blue Room’ educates people about Parkinson’s and the two consider why artists like Michael J Fox and Billy Connolly serve as inspiration to the community.The Parkinson’s Life podcast is brought to you by Parkinson’s Life (https://parkinsonslife.eu), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(www.epda.eu.com/), the leading voice for Parkinson’s in Europe.Please rate and review us on YouTube – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (en-gb.facebook.com/parkinsonslife/) and Twitter (twitter.com/parkinsons_life)

What’s the relationship between Parkinson’s and creativity? American film-maker, hip-hop artist and person with Parkinson’s Walter J Archey III and UK composer and musician Amy Mallett join us to discuss the interaction between Parkinson’s and creativity. In a lively and enlightening episode, the two discuss: •	How Parkinson’s affects creativity – Walter discusses how the condition affects his ability to rap and Amy explains how singing can help people with Parkinson’s regain control of their voice. •	Building confidence and community – the guests reflect on how creativity helps people “leave their Parkinson’s at the door”, encourages an active and social lifestyle and benefits mental health. •	Using art to raise awareness – Walter discusses how his single ‘Light Blue Room’ educates people about Parkinson’s and the two consider why artists like Michael J Fox and Billy Connolly serve as inspiration to the community. The Parkinson’s Life podcast is brought to you by Parkinson’s Life (<a href="https://parkinsonslife.eu" rel="nofollow" target="_blank">https://parkinsonslife.eu</a>), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(<a href="http://www.epda.eu.com/" rel="nofollow" target="_blank">www.epda.eu.com/</a>), the leading voice for Parkinson’s in Europe. Please rate and review us on YouTube – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="http://en-gb.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">en-gb.facebook.com/parkinsonslife/</a>) and Twitter (<a href="http://twitter.com/parkinsons_life" rel="nofollow" target="_blank">twitter.com/parkinsons_life</a>)

Getting creative with Parkinson’s

How do women experience Parkinson’s differently from men? Join our campaign – #WomenAndParkinsons.Parkinson’s campaigners Omotola Thomas, Sharon Krischer and Mariette Robijn join us for a heartfelt and lively discussion on the particular challenges facing the three million women living with Parkinson’s worldwide.In an enlightening episode the group look at: •	The knowledge gap – most Parkinson’s research has been carried out on men. The panellists consider the consequences of this for women living with the condition, and the significant implications it could have on their diagnosis and treatment.•	“Medication only works three out of four weeks” – Mariette and Omotola discuss how their monthly cycle affects their medication and why “everything will be worse during your period”. Do other women with Parkinson’s have the same experience? •	Motherhood – the guests reflect on family life and how Parkinson’s has changed their role within it, from not being able to look after children and elderly parents as much as they’d like, to helping their children answer the question: “What’s wrong with your mum?”The Parkinson’s Life podcast is brought to you by Parkinson’s Life (https://parkinsonslife.eu), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(www.epda.eu.com/), the leading voice for Parkinson’s in Europe.If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (www.facebook.com/parkinsonslife/) and Twitter (twitter.com/parkinsons_life)

How do women experience Parkinson’s differently from men? Join our campaign – #WomenAndParkinsons. Parkinson’s campaigners Omotola Thomas, Sharon Krischer and Mariette Robijn join us for a heartfelt and lively discussion on the particular challenges facing the three million women living with Parkinson’s worldwide. In an enlightening episode the group look at: •	The knowledge gap – most Parkinson’s research has been carried out on men. The panellists consider the consequences of this for women living with the condition, and the significant implications it could have on their diagnosis and treatment. •	“Medication only works three out of four weeks” – Mariette and Omotola discuss how their monthly cycle affects their medication and why “everything will be worse during your period”. Do other women with Parkinson’s have the same experience? •	Motherhood – the guests reflect on family life and how Parkinson’s has changed their role within it, from not being able to look after children and elderly parents as much as they’d like, to helping their children answer the question: “What’s wrong with your mum?” The Parkinson’s Life podcast is brought to you by Parkinson’s Life (<a href="https://parkinsonslife.eu" rel="nofollow" target="_blank">https://parkinsonslife.eu</a>), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(<a href="http://www.epda.eu.com/" rel="nofollow" target="_blank">www.epda.eu.com/</a>), the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="http://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="http://twitter.com/parkinsons_life" rel="nofollow" target="_blank">twitter.com/parkinsons_life</a>)

Women and Parkinson’s

How can you speak the same language as your healthcare professional?We bring together Josefa Domingos, a physiotherapist who specialises in Parkinson’s and is based in Lisbon, and her patient of three years, Idelta Oliveira, who was diagnosed with the condition at the age of 60. In an informative and heart-warming conversation, they shed light on:•	their strong working relationship, built on trust and good communication•	how that communication has been helped by a new free rating scale – the Parkinson’s Disease Composite Scale – which offers healthcare professionals an overview of all Parkinson’s symptoms, helping them find the best treatments for their patients•	how since using the scale during her appointments with Josefa, Idelta has gone from being unable to “talk about issues like anxiety and depression” to discussing all of her symptoms openly and confidentlyAimed at health professionals and currently being rolled out across Europe, the Parkinson’s Disease Composite Scale (PDCS) offers a comprehensive overview of motor symptoms, non-motor symptoms and therapy complications. Find out more about the PDCS here: https://www.epda.eu.com/get-involved/the-parkinsons-disease-composite-scale/The Parkinson’s Life podcast is brought to you by Parkinson’s Life (https://parkinsonslife.eu/), the online lifestyle magazine for the global Parkinson’s community, and sponsored by the European Parkinson’s Disease Association (EPDA) (https://www.epda.eu.com/), the leading voice for Parkinson’s in Europe.If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

How can you speak the same language as your healthcare professional? We bring together Josefa Domingos, a physiotherapist who specialises in Parkinson’s and is based in Lisbon, and her patient of three years, Idelta Oliveira, who was diagnosed with the condition at the age of 60. In an informative and heart-warming conversation, they shed light on: •	their strong working relationship, built on trust and good communication •	how that communication has been helped by a new free rating scale – the Parkinson’s Disease Composite Scale – which offers healthcare professionals an overview of all Parkinson’s symptoms, helping them find the best treatments for their patients •	how since using the scale during her appointments with Josefa, Idelta has gone from being unable to “talk about issues like anxiety and depression” to discussing all of her symptoms openly and confidently Aimed at health professionals and currently being rolled out across Europe, the Parkinson’s Disease Composite Scale (PDCS) offers a comprehensive overview of motor symptoms, non-motor symptoms and therapy complications. Find out more about the PDCS here: <a href="https://www.epda.eu.com/get-involved/the-parkinsons-disease-composite-scale/" rel="nofollow" target="_blank">https://www.epda.eu.com/get-involved/the-parkinsons-disease-composite-scale/</a> The Parkinson’s Life podcast is brought to you by Parkinson’s Life (<a href="https://parkinsonslife.eu/" rel="nofollow" target="_blank">https://parkinsonslife.eu/</a>), the online lifestyle magazine for the global Parkinson’s community, and sponsored by the European Parkinson’s Disease Association (EPDA) (<a href="https://www.epda.eu.com/" rel="nofollow" target="_blank">https://www.epda.eu.com/</a>), the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">https://www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="nofollow" target="_blank">https://twitter.com/parkinsons_life</a>)

Parkinson’s assessment tools

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons. <a href="http://parkinsonslife.eu" rel="nofollow" target="_blank">parkinsonslife.eu</a>

The Parkinson's Life Podcast

What’s it like managing your working life with Parkinson’s?We bring together Elisabeth Ildal, a politician from Denmark, and Gary Boyle, a former HR manager from Ireland, both of whom have young onset Parkinson’s. In an honest and thought-provoking discussion, they connect over their experiences of:•	feeling too “terrified” to tell employers about their diagnosis – and retreating into the Parkinson’s ‘closet’ •	navigating the workplace, including opening up to their bosses and explaining the condition and symptoms to colleagues •	choosing whether to continue working or take a step back from a career – and the psychological and physical effects of their decisionsThe Parkinson’s Life podcast is brought to you by Parkinson’s Life (www.parkinsonslife.eu/), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(www.epda.eu.com/), the leading voice for Parkinson’s in Europe.If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (www.facebook.com/parkinsonslife/) and Twitter (twitter.com/parkinsons_life)

What’s it like managing your working life with Parkinson’s? We bring together Elisabeth Ildal, a politician from Denmark, and Gary Boyle, a former HR manager from Ireland, both of whom have young onset Parkinson’s. In an honest and thought-provoking discussion, they connect over their experiences of: •	feeling too “terrified” to tell employers about their diagnosis – and retreating into the Parkinson’s ‘closet’ •	navigating the workplace, including opening up to their bosses and explaining the condition and symptoms to colleagues •	choosing whether to continue working or take a step back from a career – and the psychological and physical effects of their decisions The Parkinson’s Life podcast is brought to you by Parkinson’s Life (<a href="http://www.parkinsonslife.eu/" rel="nofollow" target="_blank">www.parkinsonslife.eu/</a>), the online lifestyle magazine for the global Parkinson’s community, and supported by the European Parkinson’s Disease Association (EPDA)(<a href="http://www.epda.eu.com/" rel="nofollow" target="_blank">www.epda.eu.com/</a>), the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="http://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="http://twitter.com/parkinsons_life" rel="nofollow" target="_blank">twitter.com/parkinsons_life</a>)

Parkinson’s and work

What’s it like caring for a parent or partner with Parkinson’s?We bring together Ola Larsson from Sweden, whose wife Eleonor has Parkinson’s, and Ivona Cudova from the Czech Republic, who cared for her mother Milada for six years after her diagnosis. In an open and honest conversation, they talk candidly about the highs and lows, broaching topics including: •	Seeing the person that they care for – and their relationship with that person – change dramatically •	Coping with the “demanding” pressures of the role and seeking solace in hobbies •	The importance of reaching out to people in the same position who “understand how it is” – and not dwelling on the futureThe Parkinson’s Life podcast is brought to you by Parkinson’s Life (https://parkinsonslife.eu/), the online lifestyle magazine for the global Parkinson’s community, and sponsored by the European Parkinson’s Disease Association (EPDA) (https://www.epda.eu.com/), the leading voice for Parkinson’s in Europe.If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (https://www.facebook.com/parkinsonslife/) and Twitter (https://twitter.com/parkinsons_life)

What’s it like caring for a parent or partner with Parkinson’s? We bring together Ola Larsson from Sweden, whose wife Eleonor has Parkinson’s, and Ivona Cudova from the Czech Republic, who cared for her mother Milada for six years after her diagnosis. In an open and honest conversation, they talk candidly about the highs and lows, broaching topics including: •	Seeing the person that they care for – and their relationship with that person – change dramatically •	Coping with the “demanding” pressures of the role and seeking solace in hobbies •	The importance of reaching out to people in the same position who “understand how it is” – and not dwelling on the future The Parkinson’s Life podcast is brought to you by Parkinson’s Life (<a href="https://parkinsonslife.eu/" rel="nofollow" target="_blank">https://parkinsonslife.eu/</a>), the online lifestyle magazine for the global Parkinson’s community, and sponsored by the European Parkinson’s Disease Association (EPDA) (<a href="https://www.epda.eu.com/" rel="nofollow" target="_blank">https://www.epda.eu.com/</a>), the leading voice for Parkinson’s in Europe. If you like what you’ve heard, please do take the time to rate and review – it helps make sure others can find us! And if you’d like to get in touch, email us at editor@parkinsonslife.eu or catch up with us on Facebook (<a href="https://www.facebook.com/parkinsonslife/" rel="nofollow" target="_blank">https://www.facebook.com/parkinsonslife/</a>) and Twitter (<a href="https://twitter.com/parkinsons_life" rel="nofollow" target="_blank">https://twitter.com/parkinsons_life</a>)

Caring for a family member with Parkinson’s

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