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Being Rare Podcast

Being Rare is an online resource hub and community conversations platform. We'll have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, a... Read more

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One Minute Mondays: Distractions - When "Your" Distractions Cause Someone Else Harm

One Minute Mondays: Distractions - When "Your" Distractions Cause Someone Else Harm

This One Minute Monday is about distractions. One of my biggest pet peeves is folks on their phones while driving. Distr... Read more

28 Jun 2022

1min

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One Minute Monday: Patience - When Traditional Timelines Don't Accurately Measure Development

One Minute Monday: Patience - When Traditional Timelines Don't Accurately Measure Development

This One Minute Monday is about patience. Traditional timelines don't accurately measure developmental milestones - at l... Read more

20 Jun 2022

1min

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One Minute Monday: Being Delayed - Delay Is Not Denied

One Minute Monday: Being Delayed - Delay Is Not Denied

This One Minute Monday is about being delayed. After traveling several days for business I found myself delayed, strande... Read more

14 Jun 2022

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One Minute Monday: Poop - Finding Joy in Poopisodes

One Minute Monday: Poop - Finding Joy in Poopisodes

This One Minute Monday is about poop, yep, poop! For the past few days, Elijah has kept us in an abundance of poopisodes... Read more

6 Jun 2022

1min

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One Minute Mondays: Perception - Perceiving That Your Kid Is A Burden [to Others]

One Minute Mondays: Perception - Perceiving That Your Kid Is A Burden [to Others]

This One Minute Monday is about perception. Having a kid who requires a lot of hands-on care can be hard. One of the wor... Read more

23 May 2022

1min

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Moms & Mental Health: The Importance of Self Care

Moms & Mental Health: The Importance of Self Care

Today’s conversation is a collaboration between the E.WE Foundation's LEAP Program and Being Rare Podcast. We're talking... Read more

22 May 2022

1hr

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One Minute Mondays: Shared Spaces - There's Enough Room For Us All

One Minute Mondays: Shared Spaces - There's Enough Room For Us All

In this One Minute Monday Sarita talks about shared spaces. Many of us started foundations, podcasts, and blogs because ... Read more

16 May 2022

1min

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One Minute Monday: Trust - Learning How to Trust Those Responsible For Your Nonverbal Child

One Minute Monday: Trust - Learning How to Trust Those Responsible For Your Nonverbal Child

In this One Minute Monday Sarita talks about trust. Five days a week we send our children to school to be supervised by ... Read more

9 May 2022

1min

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A Special Mother's Day Edition of the Being Rare Podcast

A Special Mother's Day Edition of the Being Rare Podcast

Being Rare Podcast welcomes Kate Hart for this special Mother's Day edition episode. Kate is a Trisomy 18 Mom and advoca... Read more

8 May 2022

41mins

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New Beginnings - Welcome to Season 2 of the Being Rare Podcast!

New Beginnings - Welcome to Season 2 of the Being Rare Podcast!

We all like new things because "new" brings an overwhelming sense of accomplishment. But, sometimes, we shy away from ne... Read more

2 May 2022

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