Cover image of Living While Dying: An ALS Story

Living While Dying: An ALS Story

Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2... Read more

Ranked #1

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6. Shedding skins

6. Shedding skins

Bruce Kramer describes how he adjusts mentally to the changes in his physical capabilities brought on by the progression... Read more

17 Jul 2015

10mins

Ranked #2

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7. Questioning science

7. Questioning science

Bruce Kramer talks about participating in a drug trial, and how it led him to question the bureaucracy of the medical ca... Read more

24 Jul 2015

6mins

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Ranked #3

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24. Prepared for ALS

24. Prepared for ALS

Bruce Kramer tells us that during his childhood, his mother was frequently ill and in the hospital. He says that experie... Read more

25 Nov 2015

9mins

Ranked #4

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11. spirituality

11. spirituality

Bruce Kramer reflects on how having ALS has affected his belief in God. He says it has not shaken his faith. He thinks A... Read more

21 Aug 2015

9mins

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Ranked #5

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20. Life becomes quieter

20. Life becomes quieter

As ALS takes its toll on his body, Bruce Kramer decides that the time and energy required to go out and see friends is t... Read more

23 Oct 2015

13mins

Ranked #6

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15. bucket list?

15. bucket list?

Bruce Kramer faced some important decisions as his ALS progressed. He contemplated whether he should get a diaphragmatic... Read more

18 Sep 2015

14mins

Ranked #7

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10. Drug trial disappointment

10. Drug trial disappointment

Bruce Kramer participated in a drug trial to determine if Dexpramipexole could slow the progression of ALS. Kramer felt ... Read more

14 Aug 2015

10mins

Ranked #8

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25. Being tested

25. Being tested

Bruce Kramer is tired of having the progression of his ALS measured with a number. He has embraced living in the moment.

4 Dec 2015

18mins

Ranked #9

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27. Focus

27. Focus

Bruce Kramer says ALS helped him focus on what is important in life: love and relationships. He also talks about a devic... Read more

24 Dec 2015

24mins

Ranked #10

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8. An Early Retirement

8. An Early Retirement

People who've been hit hard by a very serious health challenge wrestle with a lot of questions right after their diagnos... Read more

31 Jul 2015

9mins

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