Ranked #1
Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation)
Hospitals, Doctors, Medical Teams: Navigating Barriers of Rare Diseases (Patient Navigation)
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
12 Sep 2016
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22mins
Ranked #2
C.elegans (Nematode worms) as a Research Model in Rare Diseases & Trigeminal Neuralgia (TN) Podcast Series-12/12/2012
C.elegans (Nematode worms) as a Research Model in Rare Diseases & Trigeminal Neuralgia (TN) Podcast Series-12/12/2012
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
13 Apr 2015
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57mins
Ranked #3
Mice as Research Models in Rare Neuro-immunologic Diseases (Transverse Myelitis, Neuromyelitis Optica, Acute Disseminated Encephalomyelitis and Optic Neuritis)-8/13/2013
Mice as Research Models in Rare Neuro-immunologic Diseases (Transverse Myelitis, Neuromyelitis Optica, Acute Disseminated Encephalomyelitis and Optic Neuritis)-8/13/2013
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
13 Apr 2015
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48mins
Ranked #4
Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015)
Chromosome 4q Deletion Syndrome Podcast Series: (08/10/2015)
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
13 Aug 2015
•
56mins
Ranked #5
The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)
The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
6 Mar 2018
•
26mins
Ranked #6
Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)
Receiving a Rare Disease Diagnosis: A Huntington’s Disease Patient Shares His Experience and Advice for Coping with a New Diagnosis (Patient Navigation)
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
14 May 2018
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24mins
Ranked #7
Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017
Antisynthetase Syndrome Ask the Experts Podcast Series, Session II - 11/20/2017
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
20 Nov 2017
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54mins
Ranked #8
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community
Anne Bruns’ son Ethan was diagnosed with Atypical Hemolytic Uremic syndrome (Atypical HUS), when he was just 8 years old... Read more
14 Aug 2018
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33mins
Ranked #9
Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research
Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research
Being born with, and growing up with a rare disease means you don’t necessarily know any other way of life. This month w... Read more
17 Dec 2018
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33mins
Ranked #10
Crigler Najjar Syndrome Ask The Experts Podcast Series (05/25/2016)
Crigler Najjar Syndrome Ask The Experts Podcast Series (05/25/2016)
Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contac... Read more
29 May 2016
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1hr 8mins