This last episode in the series is right in step with how all good things should conclude and that is with a bit of fun. You are about to listen in on a conversation with plenty of laughter and bad jokes that I had with a man who has been using AAC since the 80’s and who has been living in his own place with hired supports for 20 years. We travel down memory lane recalling accommodations that thankfully have been replaced with better options but also those that have stood the test of time. About the Guest: Tim Jin Tim Jin is a disability rights advocate with cerebral palsy. He is the Assistant Director of Communication Rights for Disability Voices United, an organization focused on improving education and services for those with developmental disabilities. Jin advocates for improving the accessibility of technology-aided communication for those with speech-related disabilities. Jin has been a member of boards for organizations such as Ability Central Philanthropy, CommunicationFIRST, and the Self-Determination Program Local Advisory Committee for Regional Center of Orange County. Jin has been using an augmentative and alternative communication (AAC) device since elementary school. He graduated from California State University, Long Beach, with a bachelor’s degree in speech communication. To contact Tim regarding AAC training and inclusion for your staff or organization, email tim@jinonline.net This episode is the last in a series focusing on expanding the boundaries often placed around AAC use.

This last episode in the series is right in step with how all good things should conclude and that is with a bit of fun. You are about to listen in on a conversation with plenty of laughter and bad jokes that I had with a man who has been using AAC since the 80’s and who has been living in his own place with hired supports for 20 years. We travel down memory lane recalling accommodations that thankfully have been replaced with better options but also those that have stood the test of time. About the Guest: Tim Jin Tim Jin is a disability rights advocate with cerebral palsy. He is the Assistant Director of Communication Rights for Disability Voices United, an organization focused on improving education and services for those with developmental disabilities. Jin advocates for improving the accessibility of technology-aided communication for those with speech-related disabilities. Jin has been a member of boards for organizations such as Ability Central Philanthropy, CommunicationFIRST, and the Self-Determination Program Local Advisory Committee for Regional Center of Orange County. Jin has been using an augmentative and alternative communication (AAC) device since elementary school. He graduated from California State University, Long Beach, with a bachelor’s degree in speech communication. To contact Tim regarding AAC training and inclusion for your staff or organization, email tim@jinonline.net This episode is the last in a series focusing on expanding the boundaries often placed around AAC use.

#171 - 40 Years of AAC Use

AAC users often have to, first, assert authority over their self care staff. Our guest who exclusively communicates via AAC shares tips and tricks she has learned over the years on hiring and training staff. About the Guest Hannah Foley is the Product &amp; Service Development Intern and an Ambassador at PRC-Saltillo, where she develops training and implementation supports for PRC-Saltillo language systems. She also represents PRC-Saltillo at speaking engagements and other events. Hannah presents at school districts across the country on effective inclusion and augmentative and alternative communication (AAC) implementation practices within homes, communities, and schools of those with complex communication needs. She is currently attending the University of Illinois at Chicago to complete her Assistive Technology Certification with a concentration in AAC for education. Hannah aims to pursue a professional career in AAC training and implementation to facilitate collaboration and effective training for implementation of AAC among all members of support teams.

AAC users often have to, first, assert authority over their self care staff. Our guest who exclusively communicates via AAC shares tips and tricks she has learned over the years on hiring and training staff. About the Guest Hannah Foley is the Product &amp; Service Development Intern and an Ambassador at PRC-Saltillo, where she develops training and implementation supports for PRC-Saltillo language systems. She also represents PRC-Saltillo at speaking engagements and other events. Hannah presents at school districts across the country on effective inclusion and augmentative and alternative communication (AAC) implementation practices within homes, communities, and schools of those with complex communication needs. She is currently attending the University of Illinois at Chicago to complete her Assistive Technology Certification with a concentration in AAC for education. Hannah aims to pursue a professional career in AAC training and implementation to facilitate collaboration and effective training for implementation of AAC among all members of support teams.

#170 - Asserting Authority & Directing Care as an AAC User

Communication between provider and patient is a crucial component of quality care which is why extra thought and planning need to be arranged for augmentative and alternative communicators. About the Guest: Jessica Gormley, Ph.D., CCC-SLP of The Patient-Provider Network Jessica Gormley, PhD, CCC-SLP is an Assistant Professor, Speech-Language Pathologist, Research Coordinator and Interim Director in the Department of Speech-Language Pathology at the UNMC Munroe-Meyer Institute. Dr. Gormley earned a Bachelor of Science degree in Speech and Hearing Handicapped from the State University of New York at Geneseo, a Master of Arts in Speech-Language Pathology from the State University of New York at Geneseo, and a PhD in Communication Sciences and Disorders from Pennsylvania State University. She provides inpatient and outpatient augmentative and alternative communication (AAC) services as well as completes AAC research and program development activities. Her research and clinical interests center upon improving interactions among individuals with complex communication needs, their families, and health care providers through the development and evaluation of AAC tools and trainings. Dr. Gormley is a co-organizer for the Patient-Provider Communication Network along with Tami Altschuler and Rachel Santiago. Dr. Gormley has co-authored several peer-reviewed articles and book chapters on the topics of supporting AAC in acute care, personalization of patient-provider communication, and child-parent-provider communication interactions. Links to Mentioned Content:   Patient Provider Communication Network   Bimonthly Zoom Call   Article on Creating a Culture of Communication   Widget Health downloadable resources    Patient Provider Communication Network Downloadables   Patient’s right to access to communication via the Joint Commission and other policies supporting patient communication    Article about system changes in hospitals and other articles on AAC in medical settings  

Communication between provider and patient is a crucial component of quality care which is why extra thought and planning need to be arranged for augmentative and alternative communicators. About the Guest: Jessica Gormley, Ph.D., CCC-SLP of The Patient-Provider Network Jessica Gormley, PhD, CCC-SLP is an Assistant Professor, Speech-Language Pathologist, Research Coordinator and Interim Director in the Department of Speech-Language Pathology at the UNMC Munroe-Meyer Institute. Dr. Gormley earned a Bachelor of Science degree in Speech and Hearing Handicapped from the State University of New York at Geneseo, a Master of Arts in Speech-Language Pathology from the State University of New York at Geneseo, and a PhD in Communication Sciences and Disorders from Pennsylvania State University. She provides inpatient and outpatient augmentative and alternative communication (AAC) services as well as completes AAC research and program development activities. Her research and clinical interests center upon improving interactions among individuals with complex communication needs, their families, and health care providers through the development and evaluation of AAC tools and trainings. Dr. Gormley is a co-organizer for the Patient-Provider Communication Network along with Tami Altschuler and Rachel Santiago. Dr. Gormley has co-authored several peer-reviewed articles and book chapters on the topics of supporting AAC in acute care, personalization of patient-provider communication, and child-parent-provider communication interactions. Links to Mentioned Content: <ul> <li> <a href="https://www.patientprovidercommunication.org/" rel="nofollow" target="_blank">Patient Provider Communication Network</a> </li> <li> <a href="https://www.patientprovidercommunication.org/the-ppc-forum/" rel="nofollow" target="_blank">Bimonthly Zoom Call</a> </li> <li> <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7258081/" rel="nofollow" target="_blank">Article on Creating a Culture of Communication</a> </li> <li> <a href="https://widgit-health.com/downloads/for-professionals.htm" rel="nofollow" target="_blank">Widget Health downloadable resources</a> </li> <li> <a href="https://www.patientprovidercommunication.org/tools-and-resources/communication-tools-and-materials/" rel="nofollow" target="_blank"> Patient Provider Communication Network Downloadables</a> </li> <li> <a href="https://www.patientprovidercommunication.org/policy/" rel="nofollow" target="_blank">Patient’s right to access to communication via the Joint Commission and other policies supporting patient communication</a> </li> <li> <a href="https://www.patientprovidercommunication.org/tools-and-resources/ppc-literature/" rel="nofollow" target="_blank"> Article about system changes in hospitals and other articles on AAC in medical settings</a> </li> </ul>

#169 - AAC in Medical Settings

The internet has swung the door wide open for alternative and augmentative communication users, yet often the creative use of these tools is never introduced. It’s time to expand how AAC users maximize devices as well as how to navigate online communities that they now have access to via AAC. About the Guest: Tiffany Joseph Known as Nigh Functioning Autism on instagram, Tiffany has 3 neurodivergent children and is autistic. Tiffany’s ultimate goal is for nonspeaking individuals to all have early access to full communication and inclusion in educational settings from early childhood and beyond. She is an intern at Reach Every Voice, training to be an instructor and communication and regulation partner for nonspeaking or minimally speaking individuals of all ages. In today’s conversation Tiffany will use a combination of spoken voice and AAC voice. This episode is the 4th in a series of 10 focusing on expanding the boundaries often placed around AAC use.

The internet has swung the door wide open for alternative and augmentative communication users, yet often the creative use of these tools is never introduced. It’s time to expand how AAC users maximize devices as well as how to navigate online communities that they now have access to via AAC. About the Guest: Tiffany Joseph Known as Nigh Functioning Autism on instagram, Tiffany has 3 neurodivergent children and is autistic. Tiffany’s ultimate goal is for nonspeaking individuals to all have early access to full communication and inclusion in educational settings from early childhood and beyond. She is an intern at Reach Every Voice, training to be an instructor and communication and regulation partner for nonspeaking or minimally speaking individuals of all ages. In today’s conversation Tiffany will use a combination of spoken voice and AAC voice. This episode is the 4th in a series of 10 focusing on expanding the boundaries often placed around AAC use.

#168 - Using The Entire AAC Device

Many AAC users are dependent upon others to program language onto their device. Despite what research shows regarding common language in various age groups, it is common practice to censor slang, slurs, and swearing even for adults.   About the Guest: Hali Strickler is an AAC services coordinator for TechOWL at the Institute on Disabilities at Temple University. She received both her Bachelor and Master of Arts in Speech, Language, and Hearing Science from Temple University. Hali is a Pennsylvania and New Jersey licensed and American Speech-Language-Hearing Association certified speech-language pathologist. Links to Mentioned Content:   Article - A Child’s Garden of Curses by Kristin L. Jay and Timothy B. Jay   Relevant Episodes:   #116: Touching of Self and Others from July, 2020 in the Complicated Behaviors Series   #77: Your Body, Your Boundaries from June, 2019 in the Health Series   This episode is the 3rd in a series of 10 focusing on expanding the boundaries often placed around AAC use.

Many AAC users are dependent upon others to program language onto their device. Despite what research shows regarding common language in various age groups, it is common practice to censor slang, slurs, and swearing even for adults.   About the Guest: Hali Strickler is an AAC services coordinator for <a href="https://techowlpa.org/" rel="nofollow" target="_blank">TechOWL</a> at the Institute on Disabilities at Temple University. She received both her Bachelor and Master of Arts in Speech, Language, and Hearing Science from Temple University. Hali is a Pennsylvania and New Jersey licensed and American Speech-Language-Hearing Association certified speech-language pathologist. Links to Mentioned Content: <ul> <li> Article - <a href="https://pubmed.ncbi.nlm.nih.gov/24455812/" rel="nofollow" target="_blank">A Child’s Garden of Curses</a> by Kristin L. Jay and Timothy B. Jay </li> </ul> Relevant Episodes: <ul> <li> #116: <a href="https://www.lomah.org/podcastseason4/116" rel="nofollow" target="_blank">Touching of Self and Others</a> from July, 2020 in the Complicated Behaviors Series </li> <li> #77: <a href="https://www.lomah.org/podcastseason3/77?rq=consent" rel="nofollow" target="_blank">Your Body, Your Boundaries</a> from June, 2019 in the Health Series </li> </ul> This episode is the 3rd in a series of 10 focusing on expanding the boundaries often placed around AAC use.

#167 - AAC Slang, Slurs, Swearing...and Censorship

Brittany Dube is and autistic partial AAC user who shares the stigma she often experiences when choosing AAC over her spoken voice despite how AAC makes her more communicative. Links to Mentioned Content:   Etsy has several sellers creating personalized communication boards. Brittany’s came from the seller  Coatney Creations.     The quote referenced came from an  article about partial AAC use in communicators with speech written by Alyssa Hillary Zisk and Elizabeth Dalton. It was published in April, 2018 edition of The Autism in Adulthood Journal.   This episode is the 2nd in a series of 10 focusing on expanding the boundaries often placed around AAC use.

Brittany Dube is and autistic partial AAC user who shares the stigma she often experiences when choosing AAC over her spoken voice despite how AAC makes her more communicative. Links to Mentioned Content: <ul> <li> Etsy has several sellers creating personalized communication boards. Brittany’s came from the seller <a href="https://www.etsy.com/shop/CoatneyCreations?listing_id=766745671&amp;ref=simple-shop-header-name§ion_id=36433763" rel="nofollow" target="_blank"> Coatney Creations</a>. </li> </ul> <ul> <li> The quote referenced came from an <a href="https://www.liebertpub.com/doi/10.1089/aut.2018.0007?fbclid=IwAR0e4FbCUDqZFrJn5OSJK_9AsOKQCjsVeGMORaXXbg1-fERW_9Z6AtTgQrk" rel="nofollow" target="_blank"> article about partial AAC use in communicators with speech</a> written by Alyssa Hillary Zisk and Elizabeth Dalton. It was published in April, 2018 edition of The Autism in Adulthood Journal. </li> </ul> This episode is the 2nd in a series of 10 focusing on expanding the boundaries often placed around AAC use.

#166 - AAC with Spoken Communication

Often, AAC is used for nothing more than to make requests. While requesting wants and needs is important, AAC can offer much more to complex communicators and those who wish to know them. About the Guest: Kate McLaughlin, M.S., CCC-SLP Kate McLaughlin is a speech-language pathologist specializing in AAC - alternative and augmentative communication for individuals with complex communication needs. She believes that autonomous communication, inclusion, and self-determination are fundamental human rights. She partners with individuals with complex communication needs and their families to support their AAC journey. Kate is a certified member of the American Speech-Language and Hearing Association and holds licensure as a speech language pathologist in the state of Connecticut. She has worked in home, school, and clinic settings with clients of all ages. Kate trains parents and professionals on proven strategies to support their learner’s authentic and autonomous communication. Links to Mentioned Content:   Kate’s website, The AAC Coach   Follow Kate on Instagram and Facebook   Kate’s course “Authentic AAC”   Talking Mats   Kim’s IG live from May 20, 2022 authentically communicating with Miranda   Relevant LOMAH Podcast Episodes :   Literacy Series in Season 5: Episodes 131 - 146 from Spring 2021   Episode 148 from September, 2021: Finding Clarity Among So Many Therapy Options  

Often, AAC is used for nothing more than to make requests. While requesting wants and needs is important, AAC can offer much more to complex communicators and those who wish to know them. About the Guest: Kate McLaughlin, M.S., CCC-SLP <a href="https://www.theaaccoach.com/" rel="nofollow" target="_blank">Kate McLaughlin</a> is a speech-language pathologist specializing in AAC - alternative and augmentative communication for individuals with complex communication needs. She believes that autonomous communication, inclusion, and self-determination are fundamental human rights. She partners with individuals with complex communication needs and their families to support their AAC journey. Kate is a certified member of the American Speech-Language and Hearing Association and holds licensure as a speech language pathologist in the state of Connecticut. She has worked in home, school, and clinic settings with clients of all ages. Kate trains parents and professionals on proven strategies to support their learner’s authentic and autonomous communication. Links to Mentioned Content: <ul> <li> Kate’s website, <a href="https://www.theaaccoach.com/" rel="nofollow" target="_blank">The AAC Coach</a> </li> <li> Follow Kate on <a href="https://www.instagram.com/the.aac.coach/" rel="nofollow" target="_blank">Instagram</a> and <a href="https://www.theaaccoach.com/" rel="nofollow" target="_blank">Facebook</a> </li> <li> Kate’s course <a href="https://www.theaaccoach.com/authentic-aac" rel="nofollow" target="_blank">“Authentic AAC”</a> </li> <li> <a href="https://www.talkingmats.com/" rel="nofollow" target="_blank">Talking Mats</a> </li> <li> Kim’s <a href="https://www.instagram.com/journey2lomah/" rel="nofollow" target="_blank">IG live</a> from May 20, 2022 authentically communicating with Miranda </li> </ul> Relevant LOMAH Podcast Episodes : <ul> <li> Literacy Series in <a href="https://www.lomah.org/season5" rel="nofollow" target="_blank">Season 5</a>: Episodes 131 - 146 from Spring 2021 </li> <li> <a href="https://www.lomah.org/podcast-season-5/148" rel="nofollow" target="_blank">Episode 148</a> from September, 2021: Finding Clarity Among So Many Therapy Options </li> </ul>

165 - More Than Requests: Using AAC for Authentic Communication

The new series will focus on "Doing More With AAC". This episode gives a peek at the topics that will be covered with expert guests, many who are AAC users themselves. The second half shares a few life updates relevant to the LOMAH tagline "Planning the future for our daughter with disabilities and inviting you to fumble through it with us". There has been some great news regarding the next 3 years (Miranda's transition years ages 19-22) as well as an update even closer to home.

The new series will focus on "Doing More With AAC". This episode gives a peek at the topics that will be covered with expert guests, many who are AAC users themselves. The second half shares a few life updates relevant to the LOMAH tagline "Planning the future for our daughter with disabilities and inviting you to fumble through it with us". There has been some great news regarding the next 3 years (Miranda's transition years ages 19-22) as well as an update even closer to home.

164 - AAC Series Intro + A Few Life Updates

Most adult supports are chosen via eligible providers on HCBS waiver lists. However, some states have been toying with a new method that offers more flexibility and choice. In this conversation we explore what families have and have not liked about the newly rolled out Self Determination Program and why our family has decided to move away from provider lists and into this new option of funding supports. About the Guest: Sonni Charness, Founder of Guidelight Group Sonni Bendetson Charness brings over a decade of experience serving teens and adults with developmental disabilities and is an expert in community integration and employment supports. Sonni leads the team at Guidelight Group and also works personally with clients.  Sonni's work on transition-to-adulthood and employment has been published in the Journal of Vocational Rehabilitation and in Research and Practice for Persons with Severe Disabilities. Sonni has been a featured expert on the LOMAH podcast and as a presenter at countless conferences including TASH, the Supported Life Conference, and the Statewide Conference on Self-Determination.  Sonni is a member of the Board of Directors for California APSE, the state chapter of the nation’s leading advocacy organization promoting employment for people with disabilities. Sonni is a Certified Employment Support Professional (CESP), and is trained in Person-Centered Thinking and Independent Facilitation.  Sonni obtained her master's degree in special education at Vanderbilt University, where she specialized in transition-to-adulthood and employment outcomes for students with moderate/severe disabilities. Sonni earned her bachelor's degree in child development from Tufts University. Links to Mentioned Content   Sonni on the LOMAH Podcast for the Transition Series - Episode #95 - School to Adult Services: Filling the Gaps   Disaability Voices United   Self Determination Program Connect Zoom Meetings   Presentations on the San Gabriel / Pamona Regional Center YouTube channel presented by Guidelight Group.  

Most adult supports are chosen via eligible providers on HCBS waiver lists. However, some states have been toying with a new method that offers more flexibility and choice. In this conversation we explore what families have and have not liked about the newly rolled out Self Determination Program and why our family has decided to move away from provider lists and into this new option of funding supports. About the Guest: Sonni Charness, Founder of Guidelight Group Sonni Bendetson Charness brings over a decade of experience serving teens and adults with developmental disabilities and is an expert in community integration and employment supports. Sonni leads the team at <a href="https://www.guidelightgroup.org/" rel="nofollow" target="_blank">Guidelight Group</a> and also works personally with clients.  Sonni's work on transition-to-adulthood and employment has been published in the <a href="http://www.worksupport.com/documents/jvr_transCen_worklink_program.pdf" rel="nofollow" target="_blank">Journal of Vocational Rehabilitation</a> and in <a href="https://journals.sagepub.com/doi/10.1177/1540796918778293" rel="noopener nofollow" target="_blank">Research and Practice for Persons with Severe Disabilities</a>. Sonni has been a featured expert on the LOMAH podcast and as a presenter at countless conferences including TASH, the Supported Life Conference, and the Statewide Conference on Self-Determination.  Sonni is a member of the Board of Directors for California APSE, the state chapter of the nation’s leading advocacy organization promoting employment for people with disabilities. Sonni is a Certified Employment Support Professional (CESP), and is trained in Person-Centered Thinking and Independent Facilitation.  Sonni obtained her master's degree in special education at Vanderbilt University, where she specialized in transition-to-adulthood and employment outcomes for students with moderate/severe disabilities. Sonni earned her bachelor's degree in child development from Tufts University. Links to Mentioned Content <ul> <li> Sonni on the LOMAH Podcast for the Transition Series - <a href="https://www.lomah.org/podcastseason3/95" rel="nofollow" target="_blank">Episode #95 - School to Adult Services: Filling the Gaps</a> </li> <li> <a href="https://disabilityvoicesunited.org/" rel="nofollow" target="_blank">Disaability Voices United</a> </li> <li> <a href="https://disabilityvoicesunited.org/events/upcoming-events/" rel="nofollow" target="_blank">Self Determination Program Connect Zoom Meetings</a> </li> <li> Presentations on the <a href="https://www.youtube.com/channel/UCmhKy5y1LPx8NSxeZjHXz6g/videos" rel="nofollow" target="_blank">San Gabriel / Pamona Regional Center YouTube</a> channel presented by Guidelight Group. </li> </ul>

#163 - A New Way to Find and Fund Adult Services

Conservatorship has long been the route to providing supports to disabled individuals with they turn 18. However, a new option called supported decision is an alternative that supports the person in making their own decisions rather than giving up rights through the conservatorship option. About the Guest: Lauren Butterworth, Esquire PLLC received her Bachelor of Science from Penn State in education and was a teacher prior to returning to school for her law degree. She now owns her own law firm specializing in guardianship, powers of attorney, estate planning, trusts, and educational advocacy. Mentioned Links:  Financial Planning Series - LOMAH Podcast episodes 101 - 112 National Resource Center for Supported Decision Making Special Needs Alliance Laurens FaceBook page 

Conservatorship has long been the route to providing supports to disabled individuals with they turn 18. However, a new option called supported decision is an alternative that supports the person in making their own decisions rather than giving up rights through the conservatorship option. About the Guest: Lauren Butterworth, Esquire PLLC received her Bachelor of Science from Penn State in education and was a teacher prior to returning to school for her law degree. She now owns her own <a href="https://www.laurenpbutterworthesquire.com" rel="nofollow" target="_blank">law firm</a> specializing in guardianship, powers of attorney, estate planning, trusts, and educational advocacy. Mentioned Links: <ul> <li>Financial Planning Series - LOMAH Podcast episodes 101 - 112</li> <li><a href="http://www.supporteddecisionmaking.org" rel="nofollow" target="_blank">National Resource Cente</a>r for Supported Decision Making</li> <li><a href="https://www.specialneedsalliance.org" rel="nofollow" target="_blank">Special Needs Alliance</a></li> <li><a href="https://www.facebook.com/lpbesq/" rel="nofollow" target="_blank">Laurens FaceBook page</a></li> </ul>

#162 - Conservatorship vs Supported Decision Making

The LOMAH Podcast is an award winning show that runs topical series deep diving into an issue for 10-12 episodes with interviews from expert guests, including self advocates. Your host, Kim, has a teenage daughter with level 3 non speaking autism who will require 24/7 support the rest of her life. Like many parents, Kim has a lot of important questions. She does not claim to know the answers for her child nor yours but does promise to search for them and share what she is discovering along the way. You will notice a striking difference in the earlier shows compared to the most recent as she has grown and evolved as a result of listening to expert guests and self advocates.

Kim Tagtmeyer-Albrecht is a fantastic researcher and is providing a wealth of information and heart into each episode. I am personally grateful for all her work and effort. The special needs community needs her podcast!!

A fabulous resource!

So helpful, I listen wrt my 10-year-old to help me plan for his future.

Great podcast!

LOMAH Disability Podcast

Person centered planning is not a system or policy but rather a way of thinking. It asks that we momentarily put aside what is currently offered and focus on what is important to an individual with special needs before thinking about what is important for them to fit in the existing system. Our guest is Erin Sheldon who is the CEO of Integration Action for Inclusion, an organization supporting and empowering inclusion advocates.   Related Episodes: #33 - Homeschooling With a Twist #34- Non-FAPE? 5 Things to Do Before the Next IEP Meeting #29 - College of Adaptive Arts #21 - College &amp; High School - A Student's Perspective

Person centered planning is not a system or policy but rather a way of thinking. It asks that we momentarily put aside what is currently offered and focus on what is important to an individual with special needs before thinking about what is important for them to fit in the existing system. Our guest is Erin Sheldon who is the CEO of <a href="https://www.inclusionontario.ca/our-goals.html" rel="nofollow" target="_blank">Integration Action for Inclusion,</a> an organization supporting and empowering inclusion advocates. Related Episodes: #33 - Homeschooling With a Twist #34- Non-FAPE? 5 Things to Do Before the Next IEP Meeting #29 - College of Adaptive Arts #21 - College &amp; High School - A Student's Perspective

#49 - Person Centered Planning

Individuals with disabilities are 7 times more likely to be victims of sexual assault, yet they typically are not taught about their bodies nor boundaries for themselves and others. How can we begin these much needed conversations? To help us navigate this space is Katie Thune. Katie is an educator, author, and advocate for people with disabilities. She has her Teaching License in Health Education, and Special Education K – 12, as well as her MA in Education and worked as a teacher for Saint Paul Public Schools for 12 years. She has done extensive curriculum writing on relationships and sexuality education that can be found, along with other resources, on the website sexualityforallabilities.com In this episode Katie shares foundational things we can be teaching our loved one such as consent, rules and guidelines around some of the grey areas, public vs private spaces, compliance vs appropriate non compliance, and necessary vs exploitive touch.  Related Episodes: Episode 69: Self Determination with Complex Communication Needs with guest Karrie Shogren, PhD. Episode 66: Advocating Against the Sexual Assault Epidemic with guest Julie Neward of Natalie’s Voice Episode 44: Sexual Assault Risk Reduction with guest Nora Baladerian, PhD, director of the Disability and Abuse Project

Individuals with disabilities are 7 times more likely to be victims of sexual assault, yet they typically are not taught about their bodies nor boundaries for themselves and others. How can we begin these much needed conversations? To help us navigate this space is Katie Thune. Katie is an educator, author, and advocate for people with disabilities. She has her Teaching License in Health Education, and Special Education K – 12, as well as her MA in Education and worked as a teacher for Saint Paul Public Schools for 12 years. She has done extensive curriculum writing on relationships and sexuality education that can be found, along with other resources, on the website <a href="http://sexualityforallabilities.com/" rel="nofollow" target="_blank">sexualityforallabilities.com</a> In this episode Katie shares foundational things we can be teaching our loved one such as consent, rules and guidelines around some of the grey areas, public vs private spaces, compliance vs appropriate non compliance, and necessary vs exploitive touch.  Related Episodes: Episode 69: Self Determination with Complex Communication Needs with guest Karrie Shogren, PhD. Episode 66: Advocating Against the Sexual Assault Epidemic with guest Julie Neward of Natalie’s Voice Episode 44: Sexual Assault Risk Reduction with guest Nora Baladerian, PhD, director of the Disability and Abuse Project

#77 - Your Body Your Boundaries

If you have a loved one with a disability, you may have begun pondering where s/he will live as an adult. It doesn’t take long to realize there are a variety of options but not an abundance of them. Today we go over the models of care, share a must have resource, and suggest next steps to take in planning housing for your adult with special needs.

If you have a loved one with a disability, you may have begun pondering where s/he will live as an adult. It doesn’t take long to realize there are a variety of options but not an abundance of them. Today we go over the models of care, share a must have resource, and suggest next steps to take in planning housing for your adult with special needs.

#11 Housing Models for Adults with Special Needs / Disabilities

When our faith and beliefs about God take a hit, how should we respond? Our guest, Diane Dokko Kim is a disability ministry consultant, national speaker, and author of  Unbroken Faith: Spiritual Recovery for the Special-Needs Parent. As the mother of children with multiple disabilities including autism and ADHD, her two-fold passions include encouraging families, and equipping local churches into becoming inclusive faith communities.  You host, Kim, has read Diane's book three times and her copy is highlighted, underlined, and has margins filled with ink. Diane and Kim chat about swimming upstream in Christian culture and reaccuring faith struggles they both keep trying to shake. They discuss the structure of the book and why and how Diane choose the format. Connect with Diane at dianedokkokim.com where she blogs on being, “wrecked, redeemed and repurposed." Find Kim on Instagram at journey2lomah

When our faith and beliefs about God take a hit, how should we respond? Our guest, Diane Dokko Kim is a disability ministry consultant, national speaker, and author of <a href="https://www.amazon.com/Unbroken-Faith-Spiritual-Recovery-Special/dp/1683971345/?tag=christtoday-20" rel="nofollow" target="_blank"> Unbroken Faith: Spiritual Recovery for the Special-Needs Parent</a>. As the mother of children with multiple disabilities including autism and ADHD, her two-fold passions include encouraging families, and equipping local churches into becoming inclusive faith communities.  You host, Kim, has read Diane's book three times and her copy is highlighted, underlined, and has margins filled with ink. Diane and Kim chat about swimming upstream in Christian culture and reaccuring faith struggles they both keep trying to shake. They discuss the structure of the book and why and how Diane choose the format. Connect with Diane at <a href="https://www.dianedokkokim.com/" rel="nofollow" target="_blank">dianedokkokim.com</a> where she blogs on being, “wrecked, redeemed and repurposed." Find Kim on Instagram at journey2lomah

#81 - When Your Faith Feels Fragile

In this episode, you will get to hear snippets from each guest in the 12 part safety series and the three big takeaways from the host.  Know bad things can and do happen. Know how to tell if something bad is happening. Know what to do.  This episode is a quick listen and one to use if you are just finding the safety series and want to hear from each guest prior to choosing what to listen to next.  The safety series includes episodes #36 - #47

In this episode, you will get to hear snippets from each guest in the 12 part safety series and the three big takeaways from the host. <ol> <li>Know bad things can and do happen.</li> <li>Know how to tell if something bad is happening.</li> <li>Know what to do.</li> </ol> This episode is a quick listen and one to use if you are just finding the safety series and want to hear from each guest prior to choosing what to listen to next.  The safety series includes episodes #36 - #47

#47 - Safety Series Recap & Guest Clips

How is the adult special needs community going to receive adequate supports, maximum independence, and safety with the limited budgets available in most states? Could technology be the answer? Jason Ray from Simply Home joins us for a discussion on how homes customized with technological adaptations are providing dignity and independence for those with disabilities while saving service providers and families thousands of dollars.   Links to items mentioned in this episode are at https://www.lomah.org/podcast2/53

How is the adult special needs community going to receive adequate supports, maximum independence, and safety with the limited budgets available in most states? Could technology be the answer? Jason Ray from <a href="https://www.simply-home.com/" rel="noopener nofollow" target="_blank">Simply Home</a> joins us for a discussion on how homes customized with technological adaptations are providing dignity and independence for those with disabilities while saving service providers and families thousands of dollars. Links to items mentioned in this episode are at <a href="https://www.lomah.org/podcast2/53" rel="nofollow" target="_blank">https://www.lomah.org/podcast2/53</a>

#53-Is Technology the Caregiving Solution?

Dr. Lauren Moskowitz is known for her work with self-injurious behavior in individuals with special needs. In this episode, she helps us understand why SIB is happening and discusses ABA as a method of treatment. Links to items discussed at www.lomah.org/podcast2/45   Related Episodes: #36 Trauma Indicators, #37 Emergency Responder Preparation, #39 Restraint &amp; Seclusion

Dr. Lauren Moskowitz is known for her work with self-injurious behavior in individuals with special needs. In this episode, she helps us understand why SIB is happening and discusses ABA as a method of treatment. Links to items discussed at <a href="https://www.lomah.org/podcast2/45" rel="nofollow" target="_blank">www.lomah.org/podcast2/45</a> Related Episodes: #36 Trauma Indicators, #37 Emergency Responder Preparation, #39 Restraint &amp; Seclusion

#45 - Self Injurious Behavior

For individuals with differing abilities to have paid employment in community settings, there needs to be a culture that believes they are capable. What hurdles must be overcome to shift perspective? Our guest discusses 4 key hurdles keeping parents and IEP teams from believing in the possibility of paid employment in a community setting. We acknowledge these hurdles and learn how to clear them. We also learn what to put in the employment section of the transition plan in the IEP to help students move towards paid employment in a community setting. About the Guest Sean Roy is a Research Associate with TransCen Inc.  In this position he works to provide training and technical assistance to states, employment professionals and schools, leading to improved success for individuals with disabilities who are transitioning from school into the workforce and life in the community.  Roy is an experienced curriculum developer, writer, trainer and presenter, often being asked to speak to professionals and families about issues of employment, accessing postsecondary education, and promoting family involvement in employment and transition planning. Mr. Roy draws from previous experience as Co-Director of PACER’s National Parent Center on Transition and Employment, as well as being a sibling of an adult with autism. Links to content mentioned in this episode can be found at www.lomah.org/podcastseason3/94 Follow LOMAH on Instagram at journey2lomah Related Episodes   Technology Series - Episodes #48 - #59   Self Determination for Complex Communication Users - Episode #89   Transition Planning Series Episodes #86 - #98  

For individuals with differing abilities to have paid employment in community settings, there needs to be a culture that believes they are capable. What hurdles must be overcome to shift perspective? Our guest discusses 4 key hurdles keeping parents and IEP teams from believing in the possibility of paid employment in a community setting. We acknowledge these hurdles and learn how to clear them. We also learn what to put in the employment section of the transition plan in the IEP to help students move towards paid employment in a community setting. About the Guest Sean Roy is a Research Associate with TransCen Inc.  In this position he works to provide training and technical assistance to states, employment professionals and schools, leading to improved success for individuals with disabilities who are transitioning from school into the workforce and life in the community.  Roy is an experienced curriculum developer, writer, trainer and presenter, often being asked to speak to professionals and families about issues of employment, accessing postsecondary education, and promoting family involvement in employment and transition planning. Mr. Roy draws from previous experience as Co-Director of PACER’s National Parent Center on Transition and Employment, as well as being a sibling of an adult with autism. Links to content mentioned in this episode can be found at <a href="https://www.lomah.org/podcastseason3/94" rel="nofollow" target="_blank">www.lomah.org/podcastseason3/94</a> Follow LOMAH on Instagram at <a href="https://www.instagram.com/journey2lomah/" rel="nofollow" target="_blank">journey2lomah</a> Related Episodes <ul> <li> Technology Series - Episodes #48 - #59 </li> <li> Self Determination for Complex Communication Users - Episode #89 </li> <li> Transition Planning Series Episodes #86 - #98 </li> </ul>

#94 - Disability Employment: Is It Really Possible for All?

Clemson University supports one of the first post secondary programs for students with disabilities in the country. There currently are over 200 similar programs across the country and in this episode we use  Clemson Life as a framework to give families and IEP teams a vision of a post secondary college program so they can begin considering necessary requirements to qualify for programs such as Clemson Life and thus begin working toward goals in the middle school and high school years. There are 3 parts to today’s conversation. First we learn about the Clemson Life program. Second we will learn what goals should be going into the 3 federally mandated sections of the IEP Transition Plan to set students up for success in post secondary college programs. We will conclude the conversation looking at the four belief statements of the Clemson Life program and how they are applicable regardless if college is an option for our student. About The Guest: Courtney Dukes became involved with the Clemson Life program as a Clemson student. She is a certified K-12 special education teacher and is in her 5th year as an employee with the Clemson Life program serving as the freshman teacher. Follow Clemson Life on Instagram, Facebook, and Twitter You can find behind the scenes of Kim's journey with her daughter on Instagram as journey2lomah. LOMAH is also on Facebook. 

Clemson University supports one of the first post secondary programs for students with disabilities in the country. There currently are over 200 similar programs across the country and in this episode we use <a href="https://www.clemson.edu/education/research/programs/culife/index.html" rel="nofollow" target="_blank"> Clemson Life</a> as a framework to give families and IEP teams a vision of a post secondary college program so they can begin considering necessary requirements to qualify for programs such as Clemson Life and thus begin working toward goals in the middle school and high school years. There are 3 parts to today’s conversation. First we learn about the Clemson Life program. Second we will learn what goals should be going into the 3 federally mandated sections of the IEP Transition Plan to set students up for success in post secondary college programs. We will conclude the conversation looking at the four belief statements of the Clemson Life program and how they are applicable regardless if college is an option for our student. About The Guest: Courtney Dukes became involved with the Clemson Life program as a Clemson student. She is a certified K-12 special education teacher and is in her 5th year as an employee with the Clemson Life program serving as the freshman teacher. Follow Clemson Life on <a href="https://www.instagram.com/clemsonlife/" rel="nofollow" target="_blank">Instagram</a>, <a href="https://www.facebook.com/ClemsonLIFE/" rel="nofollow" target="_blank">Facebook</a>, and <a href="https://twitter.com/clemsonlife1" rel="nofollow" target="_blank">Twitter</a> You can find behind the scenes of Kim's journey with her daughter on <a href="https://www.instagram.com/journey2lomah/" rel="nofollow" target="_blank">Instagram</a> as journey2lomah. LOMAH is also on <a href="https://www.facebook.com/lomah.org/" rel="nofollow" target="_blank">Facebook</a>.

#92 - Preparing Students with Disabilities for Specialized College Programs

Many individuals with disabilities are dependent on caregivers to present them to society with the dignity they deserve. Some hygiene and care will require creativity, persistence, and continual reminders it matters and our loved one is worth it.  Geege Tayor is widely known in the autism community as a mother who places high standards on the way her son is presented to the world. Geege goes the mile as her son’s dignity surrogate and has several hygiene tips and tricks she has refined over the last 16 years. The first half of the conversation is a discussion about going the extra mile to ensure our loved ones are presented to the world with dignity and why it matters. The second half covers Geege’s tips and tricks for dental hygiene, fashion, acne, shaving, showering, and haircuts.  Watch Geege and Pootie on their reality TV show by searching Planet Poot on Youtube or on Instagram @geegetaylor Kim is on Instagram as @journey2lomah Related Episodes: #10 Dignity and Disability with Nicole Feeney

Many individuals with disabilities are dependent on caregivers to present them to society with the dignity they deserve. Some hygiene and care will require creativity, persistence, and continual reminders it matters and our loved one is worth it.  Geege Tayor is widely known in the autism community as a mother who places high standards on the way her son is presented to the world. Geege goes the mile as her son’s dignity surrogate and has several hygiene tips and tricks she has refined over the last 16 years. The first half of the conversation is a discussion about going the extra mile to ensure our loved ones are presented to the world with dignity and why it matters. The second half covers Geege’s tips and tricks for dental hygiene, fashion, acne, shaving, showering, and haircuts.  Watch Geege and Pootie on their reality TV show by searching Planet Poot on Youtube or on Instagram @geegetaylor Kim is on Instagram as @journey2lomah Related Episodes: #10 Dignity and Disability with Nicole Feeney

#78 - Dignity & Hygiene

What is the connection between autism and epilepsy? Does one cause the other or are other factors at play? When is the first seizure most likely to happen? Are they harmful? Can they be missed? When do we need to call 911?    Our expert guest, Dr. Roberto Tuchman, is chief of the neurology department at Nicklaus Children's Hospital in Miami, Florida. He has explored the autism/epilepsy connection for decades and is a highly sought after resource on the topic.   In Episode 42, Dr. Tuchman shares what he is discovering regarding the autism and epilepsy connection and also speaks to us as a practitioner who has much experience guiding caregivers who have a loved one with autism and/or epilepsy.  Related Episodes: 41 - Assistance Dogs

What is the connection between autism and epilepsy? Does one cause the other or are other factors at play? When is the first seizure most likely to happen? Are they harmful? Can they be missed? When do we need to call 911?    Our expert guest, Dr. Roberto Tuchman, is chief of the neurology department at Nicklaus Children's Hospital in Miami, Florida. He has explored the autism/epilepsy connection for decades and is a highly sought after resource on the topic.   In Episode 42, Dr. Tuchman shares what he is discovering regarding the autism and epilepsy connection and also speaks to us as a practitioner who has much experience guiding caregivers who have a loved one with autism and/or epilepsy.  Related Episodes: 41 - Assistance Dogs

#42 - Autism & Seizures 

Individuals with disabilities have the right to make choices for themselves and for those choices to be honored, but what if it is hard for us to understand what those choices, likes, and dislikes are because of complex communication needs? How do we begin teaching and honoring self determination at a young age? This episodes explores 3 strategies:    Verbal Referencing   Separating what is important to the individual from what is important for the individual   Reframing likes into social rolls   Links to items mentioned in the show are at https://www.lomah.org/podcastseason3/89 About the Guest: Erin Sheldon is mom to Maggie, a 16 year old with severe disabilities. Erin earned her master's degree studying how to support our students with complex needs in the regular classroom. She is CEO of Ontario's parent association for school inclusion (www.inclusionontario.ca). She also works for the assistive technology company, AssistiveWare. Erin has authored articles, book chapters, manuals, online professional learning modules, and more. Related Episodes: Transition Series - Episodes 86 - 97 Episode 77 : Your Body Your Boundaries Episode 50: Keeping AAC Person Centered Episode 49: Self Determination with Complex Communication Needs Episode 48: Augmentative and Alternative Communication Follow Kim on instagram @journey2lomah for an in depth and behind the scenes look at their journey

Individuals with disabilities have the right to make choices for themselves and for those choices to be honored, but what if it is hard for us to understand what those choices, likes, and dislikes are because of complex communication needs? How do we begin teaching and honoring self determination at a young age? This episodes explores 3 strategies:  <ol> <li> Verbal Referencing </li> <li> Separating what is important to the individual from what is important for the individual </li> <li> Reframing likes into social rolls </li> </ol> Links to items mentioned in the show are at <a href="https://www.lomah.org/podcastseason3/89" rel="nofollow" target="_blank">https://www.lomah.org/podcastseason3/89</a> About the Guest: Erin Sheldon is mom to Maggie, a 16 year old with severe disabilities. Erin earned her master's degree studying how to support our students with complex needs in the regular classroom. She is CEO of Ontario's parent association for school inclusion (<a href="http://www.inclusionontario.ca/" rel="nofollow" target="_blank">www.inclusionontario.ca</a>). She also works for the assistive technology company, AssistiveWare. Erin has authored articles, book chapters, manuals, online professional learning modules, and more. Related Episodes: Transition Series - Episodes 86 - 97 Episode 77 : Your Body Your Boundaries Episode 50: Keeping AAC Person Centered Episode 49: Self Determination with Complex Communication Needs Episode 48: Augmentative and Alternative Communication Follow Kim on instagram @journey2lomah for an in depth and behind the scenes look at their journey

#89- Three Self Determination Strategies for Complex Communication Users

Are we expecting too much? Are we expecting too little? Does the team agree on realistic goals? What about your spouse? Is there disagreement over the capabilities of your child? Episode #3 looks at behavior, education, independence, and receptive communication. When is the tendency to overestimate our special needs loved one and when is the tendency to underestimate? How do we know which voice to follow? 

Are we expecting too much? Are we expecting too little? Does the team agree on realistic goals? What about your spouse? Is there disagreement over the capabilities of your child? Episode #3 looks at behavior, education, independence, and receptive communication. When is the tendency to overestimate our special needs loved one and when is the tendency to underestimate? How do we know which voice to follow?

#03-Are we overestimating or underestimating our special needs loved ones?

We know caregiver self care is important but we don’t do it. Why? What is the missing link between knowing what we should be doing and actually doing it? Rose Reif is the owner of Reif Counseling Services. She is a Licensed Professional Counselor Associate, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. She is also Board Certified in providing Telemental Health. Her clients are teens and adults with disabilities and caregivers. In this episode on caregiver mental and emotional health, Kim talks about her own mental and emotional struggles and success the last 15 years as Rose identifies the missing link between knowing the importance of self care and actually taking action. Links to all items discussed can be found at Related Episodes: #51 Aching Joy with Jason Hague #43 Closet Confessions of a Special Needs Parent #26 Trauma Indicators in Individuals with Special Needs

We know caregiver self care is important but we don’t do it. Why? What is the missing link between knowing what we should be doing and actually doing it? Rose Reif is the owner of Reif Counseling Services. She is a Licensed Professional Counselor Associate, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. She is also Board Certified in providing Telemental Health. Her clients are teens and adults with disabilities and caregivers. In this episode on caregiver mental and emotional health, Kim talks about her own mental and emotional struggles and success the last 15 years as Rose identifies the missing link between knowing the importance of self care and actually taking action. Links to all items discussed can be found at Related Episodes: #51 Aching Joy with Jason Hague #43 Closet Confessions of a Special Needs Parent #26 Trauma Indicators in Individuals with Special Needs

#74 - Caregiver Emotional & Mental Health

Assistive technology is an essential lifeline for many students with differing abilities. How do we get it in the IEP and what additional considerations are important? What happens to technology supports after the student ages out of the school system and enters adult services? This episodes covers:   What does federal IDEA says about assistive technology and how you can use the law in your advocacy efforts to get needed technology into the IEP   How to stay current on new assistive technology trends   Verbiage to use in your request to the school district for an assistive technology evaluation   Additional IEP considerations with assistive technology such as who is responsible for damaged euipment, ensuring proper implementation and training of staff, etc.   What happens to technology devices belonging to the school systems after the student ages out and enters adult programs   Who pays for assistive technology for adults   About the Guest: Lisa Lightner is a sought after and trusted resource for parents navigating the IEP process. She hosts the only IEP focused podcast, called Don’t IEP Alone, and her website, A Day in Our Shoes, receives hundreds of thousands of visits per month. She is a professional special education advocate, a former adult vocational program instructor,  and a credentialed lobbyist. She serves on the board of several organizations and has been featured in dozens of mainstream parenting shows and magazines.   Related Episodes: Technology Series: Episodes #48 - #59 in Season 2 Transition Series: Episodes #86 - #98

Assistive technology is an essential lifeline for many students with differing abilities. How do we get it in the IEP and what additional considerations are important? What happens to technology supports after the student ages out of the school system and enters adult services? This episodes covers: <ul> <li> What does federal IDEA says about assistive technology and how you can use the law in your advocacy efforts to get needed technology into the IEP </li> <li> How to stay current on new assistive technology trends </li> <li> Verbiage to use in your request to the school district for an assistive technology evaluation </li> <li> Additional IEP considerations with assistive technology such as who is responsible for damaged euipment, ensuring proper implementation and training of staff, etc. </li> <li> What happens to technology devices belonging to the school systems after the student ages out and enters adult programs </li> <li> Who pays for assistive technology for adults </li> </ul> About the Guest: <a href="https://adayinourshoes.com/influential-philadelphia-mom-blogger/" rel="nofollow" target="_blank">Lisa Lightner</a> is a sought after and trusted resource for parents navigating the IEP process. She hosts the only IEP focused podcast, called <a href="https://adayinourshoes.com/iep-podcast/" rel="nofollow" target="_blank">Don’t IEP Alone</a>, and her website, <a href="https://adayinourshoes.com/" rel="nofollow" target="_blank">A Day in Our Shoes,</a> receives hundreds of thousands of visits per month. She is a professional special education advocate, a former adult vocational program instructor,  and a credentialed lobbyist. She serves on the board of several organizations and has been featured in dozens of mainstream parenting shows and magazines.   Related Episodes: Technology Series: Episodes #48 - #59 in Season 2 Transition Series: Episodes #86 - #98

#93-How to Get Assistive Technology in the IEP

We are pausing the normal flow of expert guest interviews to share a bit a personal story about our daughter’s educational journey and current status of establishing FAPE. I’m sharing how we arrived at the realization we needed to make changes and how we might be making the job hard for our lawyer.

We are pausing the normal flow of expert guest interviews to share a bit a personal story about our daughter’s educational journey and current status of establishing FAPE. I’m sharing how we arrived at the realization we needed to make changes and how we might be making the job hard for our lawyer.

#99 - Advocating FAPE for Our Teen Daughter

The Transition Plan goes into the IEP at the age of 14 or 16. At this time, all IEP goals should point directly to these long term post secondary goals.  Despite the tremendous importance of the Transition Plan, it is often overlooked or approached as a last minute legally required add on. After a few announcements regarding what is next for the LOMAH Podcast, this episode gives an overview of the 13 episode Transition Planning series. Guests in the series educated us on aspects of the transition plan and tips for how to get our school district on board in creating better post secondary goals as well as providing necessary supports to reach those goals. You will hear an overview of each episode as well as a 60 second clip so you can circle back to those of interest and need. Episodes in the series are listed below. Click to be directed to valuable resources in the show notes for each episode. #86 - Transition Planning Series Introduction #87 - IEP Transition Planning: Is It Working? With guest Dr. Mary Susan McConnell of The Mama Bear Podcast #88. - Using Assessments to Guide IEP Transition Goals with guest Dr. Mary Morningstar of the Transition Coalition #89 - Self Determination Strategies for Complex Communication Users with guest Erin Sheldon of Integrated Action for Inclusion #90 - Teen to Adult Transition Insights from a Self Advocate with guest Melissa Crisp Cooper #91 - Diploma, Vocational, and Certificate Tracks for Students with Disabilities with guest Ashley Grant of Advocates for Children of New York #92 - Preparing Students for Specialized College Programs with guest Courtney Dukes of Clemson Life #93 - How to Get Assistive Technology into the IEP with guest Lisa Lightener of a Day in Our Shoes #94 - Disability Employment: Is it Really Possible for All with Guest Sean Roy of Transcen #95 - School to Adult Services: Filling the Gaps with guest Sonni Charness of Guidelight Group #96 - Interagency Collaboration in IEP Transition Planning with guest Dr. Kelli Crane of the Center for Transition and Career Innovation  #97 - Parent Roles in IEP Transition Planning with guest Dr. Dawn Rowe of East Tennessee State University ***Find Kim on instagram as journey2lomah

The Transition Plan goes into the IEP at the age of 14 or 16. At this time, all IEP goals should point directly to these long term post secondary goals.  Despite the tremendous importance of the Transition Plan, it is often overlooked or approached as a last minute legally required add on. After a few announcements regarding what is next for the LOMAH Podcast, this episode gives an overview of the 13 episode Transition Planning series. Guests in the series educated us on aspects of the transition plan and tips for how to get our school district on board in creating better post secondary goals as well as providing necessary supports to reach those goals. You will hear an overview of each episode as well as a 60 second clip so you can circle back to those of interest and need. Episodes in the series are listed below. Click to be directed to valuable resources in the show notes for each episode. <a href="https://www.lomah.org/podcastseason3/86" rel="nofollow" target="_blank">#86 - Transition Planning Series Introduction</a> <a href="https://www.lomah.org/podcastseason3/87" rel="nofollow" target="_blank">#87 - IEP Transition Planning: Is It Working?</a> With guest Dr. Mary Susan McConnell of The Mama Bear Podcast <a href="https://www.lomah.org/podcastseason3/88" rel="nofollow" target="_blank">#88. - Using Assessments to Guide IEP Transition Goals</a> with guest Dr. Mary Morningstar of the Transition Coalition <a href="https://www.lomah.org/podcastseason3/89" rel="nofollow" target="_blank">#89 - Self Determination Strategies for Complex Communication Users</a> with guest Erin Sheldon of Integrated Action for Inclusion <a href="https://www.lomah.org/podcastseason3/90" rel="nofollow" target="_blank">#90 - Teen to Adult Transition Insights from a Self Advocate</a> with guest Melissa Crisp Cooper <a href="https://www.lomah.org/podcastseason3/91" rel="nofollow" target="_blank">#91 - Diploma, Vocational, and Certificate Tracks for Students with Disabilities</a> with guest Ashley Grant of Advocates for Children of New York <a href="https://www.lomah.org/podcastseason3/92" rel="nofollow" target="_blank">#92 - Preparing Students for Specialized College Programs</a> with guest Courtney Dukes of Clemson Life <a href="https://www.lomah.org/podcastseason3/93" rel="nofollow" target="_blank">#93 - How to Get Assistive Technology into the IEP</a> with guest Lisa Lightener of a Day in Our Shoes <a href="https://www.lomah.org/podcastseason3/94" rel="nofollow" target="_blank">#94 - Disability Employment: Is it Really Possible for All</a> with Guest Sean Roy of Transcen <a href="https://www.lomah.org/podcastseason3/95" rel="nofollow" target="_blank">#95 - School to Adult Services: Filling the Gaps</a> with guest Sonni Charness of Guidelight Group <a href="https://www.lomah.org/podcastseason3/96" rel="nofollow" target="_blank">#96 - Interagency Collaboration in IEP Transition Planning</a> with guest Dr. Kelli Crane of the Center for Transition and Career Innovation  <a href="https://www.lomah.org/podcastseason3/97" rel="nofollow" target="_blank">#97 - Parent Roles in IEP Transition Planning</a> with guest Dr. Dawn Rowe of East Tennessee State University ***Find Kim on instagram as <a href="https://www.instagram.com/journey2lomah/" rel="nofollow" target="_blank">journey2lomah</a>

#98 - IEP Transition Planning Series Recap & A Few Announcements

How can we best come alongside individuals with differing abilities? Are we unknowingly offensive or even oppressive? Angela West, self advocate, tells us. Angela is a woman in her 30’s with cerebral palsy. She holds a masters degree, was a Senate Health Education Labor and pensions committee intern, studied at Virginia Partners in Policymaking, and is a former therapeutic recreation activity leader. Using an augmentative communication device as well as her own voice with an interpreter, Angela answers two questions: 1) What are we unknowingly doing as parents, providers, and supporters of individuals with disabilities that may come across as disrespectful? 2) What types of things did Angela’s parents and supporters do well when she was young to bring her to a place of accomplishment as an adult? Related Episodes: Ep. 69: Self Determination with Karrie Shogren from March 2018 Ep. 49 &amp; 50: Person Centered Planning with Erin Sheldon from September 2018 Ep. 28: A Student's Perspective with Jessica from February 2018 

How can we best come alongside individuals with differing abilities? Are we unknowingly offensive or even oppressive? Angela West, self advocate, tells us. Angela is a woman in her 30’s with cerebral palsy. She holds a masters degree, was a Senate Health Education Labor and pensions committee intern, studied at Virginia Partners in Policymaking, and is a former therapeutic recreation activity leader. Using an augmentative communication device as well as her own voice with an interpreter, Angela answers two questions: 1) What are we unknowingly doing as parents, providers, and supporters of individuals with disabilities that may come across as disrespectful? 2) What types of things did Angela’s parents and supporters do well when she was young to bring her to a place of accomplishment as an adult? Related Episodes: Ep. 69: Self Determination with Karrie Shogren from March 2018 Ep. 49 &amp; 50: Person Centered Planning with Erin Sheldon from September 2018 Ep. 28: A Student's Perspective with Jessica from February 2018

#70 - Do This Not That

Patients with disabilities are often misdiagnosed and sent for diagnostic tests that can not be preformed. Operation House Call is a program that trains the medical field to better treat patients with disabilities. Operation House Call is part of the curriculum at the Yale School of Nursing, Boston University Medical School, UMass Medical School, Tufts University, and Simmons University. As of May, 2019 Operation House Call is available nationally for medical programs wishing to offer the curriculum. On the show today is the director of Operation House Call, Maura Sullivan. She is going to share with us the impact the program is having on medical students and nurses who are educated via the 5 components of the curriculum which include an orientation led by self advocates, website courses, a 2 hour immersive visit to the home of a family who has a member with an intellectual or developmental disability, a reflection stage, and feedback from the host family. In addition to discussing operation house call, Maura shares pending legislation that could have a very positive impact on the medical care the disability community is receiving and she also gives us a few tips and tricks to make our next medical visit run smoothly.  *Kim can be found between episodes on instagram at journey2lomah Related Episode: #70 - Do This Not That: Lessons from a Self Advocate

Patients with disabilities are often misdiagnosed and sent for diagnostic tests that can not be preformed. <a href="https://thearcofmass.org/ohc/" rel="noopener nofollow" target="_blank">Operation House Call</a> is a program that trains the medical field to better treat patients with disabilities. <a href="https://thearcofmass.org/ohc/" rel="noopener nofollow" target="_blank">Operation House Call</a> is part of the curriculum at the Yale School of Nursing, Boston University Medical School, UMass Medical School, Tufts University, and Simmons University. As of May, 2019 Operation House Call is available nationally for medical programs wishing to offer the curriculum. On the show today is the director of Operation House Call, Maura Sullivan. She is going to share with us the impact the program is having on medical students and nurses who are educated via the 5 components of the curriculum which include an orientation led by self advocates, website courses, a 2 hour immersive visit to the home of a family who has a member with an intellectual or developmental disability, a reflection stage, and feedback from the host family. In addition to discussing operation house call, Maura shares pending legislation that could have a very positive impact on the medical care the disability community is receiving and she also gives us a few tips and tricks to make our next medical visit run smoothly.  *Kim can be found between episodes on instagram at journey2lomah Related Episode: #70 - Do This Not That: Lessons from a Self Advocate

#79 -Better Doctor Visits for Patients with Disabilities

Most students in special education are tracked to age out of the school system without a degree or direct pathway to employment. What if we believe expectations can be higher for our student? What are the options for exiting the school system and where does each option lead? Who is making these choices? About the Guest Our guest, Ashley Grant is a Supervising Staff Attorney at Advocates for Children of New York, focusing on protecting the rights of middle school and high school students, including students with disabilities, students who are overage and under-credits, and students transitioning out of school. She also coordinates the state-wide Multiple Pathways to a Diploma Coalition and teaches the Special Education Law and Advocacy Field Clinic at Cardozo Law School. Ashley started her career as a special education teacher in Los Angeles. She holds a B.A. in Sociology from the University of California, Los Angeles; a M.A. in Special Education from California State University; and a J.D. from New York University School of Law. Related Episodes: Episodes 86 - 97: Transition Planning Series For behind the scenes of Kim's journey planning the future for and with her daughter follow them on Instagram at journey2lomah

Most students in special education are tracked to age out of the school system without a degree or direct pathway to employment. What if we believe expectations can be higher for our student? What are the options for exiting the school system and where does each option lead? Who is making these choices? About the Guest Our guest, Ashley Grant is a Supervising Staff Attorney at Advocates for Children of New York, focusing on protecting the rights of middle school and high school students, including students with disabilities, students who are overage and under-credits, and students transitioning out of school. She also coordinates the state-wide Multiple Pathways to a Diploma Coalition and teaches the Special Education Law and Advocacy Field Clinic at Cardozo Law School. Ashley started her career as a special education teacher in Los Angeles. She holds a B.A. in Sociology from the University of California, Los Angeles; a M.A. in Special Education from California State University; and a J.D. from New York University School of Law. Related Episodes: Episodes 86 - 97: Transition Planning Series For behind the scenes of Kim's journey planning the future for and with her daughter follow them on Instagram at journey2lomah

#91 - Diploma, Vocational, & Credential Tracks for Special Education Students

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