Microtia Atresia's guest appearances

Microtia Atresia

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Hearing Mamas Tribe

Betsy Miller

Jane Donovan

Julie May

Meredith Howell

Pediatric Rehab

Erin Garcia

Alex Ortega

Rolandic Epilepsy

Kat Harrison

Allison Fors

Brittany Ferri

Maura Senneff

OwlTail

Erica, mom of a son with unilateral microtia atresia Listen as Erica shares about having a son with unilateral microtia atresia. He is now a thriving 8 year old. Find the transcript of the interview here: Episode 18: Hearing Mama  Information about microtia atresia The term "microtia" is intuitive. In Latin, micro means “small”, and otia means “ear.” Microtia is a birth deformity of the ear that occurs in about one in every 10,000 live births. Microtia can occur with other congenital abnormalities, but is most often seen as an isolated, independent deformity and is often associated with a small or absent ear canal. Those who are most commonly affected include Asians, Hispanics and Caucasians. Males and females are affected at approximately the same rates. Microtia is classified into four different types:  Grade I: A slightly small ear with a shape much like a normal ear often accompanies with a small but narrow ear canal. Grade II: A partial or hemi- ear with usually an absent ear canal. Grade III: Absence of most of the external ear with a small "peanut" shaped remnant ear lobule and an absent ear canal and ear drum (atresia).  This is the most common grade of microtia. Grade IV: Total absence of the ear or anotia.  Atresia is absence or underdevelopment of the ear canal and middle ear structures. Microtia is almost always accompanied by atresia because the outer ear and the middle ear develop around the same time during fetal development. Some microtia patients have what appears at first look to be a normal canal, but many of them end in a blind pouch (i.e. no connection into middle ear). Some patients have small ear canals but their middle ear may be normal, and as a result their hearing can be normal or they may have an underdeveloped middle ear resulting in significant conductive hearing loss. Sensorineural function is usually normal as the cochlea and neural elements of hearing are unaffected. Causes of Microtia and Atresia The exact cause of microtia is unknown. Parents who have a child with microtia have an increased risk of 1 in 20 for subsequent children. The risk of a child with microtia eventually having a child of his/her own with microtia is also 1 in 20. https://www.texaschildrens.org/blog/2017/04/microtia-and-atresia-101 Willing to share your story? Apply here: https://forms.gle/8zmsWLk43PyT5C838 Follow us on Instagram @hearing_mamas_tribe This podcast is intended for families to share their own personal journeys without judgment. The stories they share are their own. Their stories are their own personal beliefs. Please respect and honor each family's choices. The professionals and others who share their own opinions. All information presented is educational and should not be misconstrued as personal medical advice  ---   Send in a voice message: https://anchor.fm/gretchen-fors/message Support this podcast: https://anchor.fm/gretchen-fors/support

Erica, mom of a son with unilateral microtia atresia Listen as Erica shares about having a son with unilateral microtia atresia. He is now a thriving 8 year old. Find the transcript of the interview here: <a href="https://docs.google.com/document/d/1n1G4upNAQd-Hx54P4B2M-DNvM7po3hW51J8mK90UWJw/edit?usp=sharing" rel="nofollow" target="_blank">Episode 18: Hearing Mam</a>a Information about microtia atresia The term "microtia" is intuitive. In Latin, micro means “small”, and otia means “ear.” Microtia is a birth deformity of the ear that occurs in about one in every 10,000 live births. Microtia can occur with other congenital abnormalities, but is most often seen as an isolated, independent deformity and is often associated with a small or absent ear canal. Those who are most commonly affected include Asians, Hispanics and Caucasians. Males and females are affected at approximately the same rates. Microtia is classified into <a href="http://www.drderderian.com/ear-reconstruction-surgery/" rel="nofollow" target="_blank">four different</a> types: <ul> <li>Grade I: A slightly small ear with a shape much like a normal ear often accompanies with a small but narrow ear canal.</li> <li>Grade II: A partial or hemi- ear with usually an absent ear canal.</li> <li>Grade III: Absence of most of the external ear with a small "peanut" shaped remnant ear lobule and an absent ear canal and ear drum (atresia).  This is the most common grade of microtia.</li> <li>Grade IV: Total absence of the ear or anotia.</li> </ul> Atresia is absence or underdevelopment of the ear canal and middle ear structures. Microtia is almost always accompanied by atresia because the outer ear and the middle ear develop around the same time during fetal development. Some microtia patients have what appears at first look to be a normal canal, but many of them end in a blind pouch (i.e. no connection into middle ear). Some patients have small ear canals but their middle ear may be normal, and as a result their hearing can be normal or they may have an underdeveloped middle ear resulting in significant conductive hearing loss. Sensorineural function is usually normal as the cochlea and neural elements of hearing are unaffected. <h3>Causes of Microtia and Atresia</h3> The exact cause of microtia is unknown. Parents who have a child with microtia have an increased risk of 1 in 20 for subsequent children. The risk of a child with microtia eventually having a child of his/her own with microtia is also 1 in 20. <a href="https://www.texaschildrens.org/blog/2017/04/microtia-and-atresia-101" rel="nofollow" target="_blank">https://www.texaschildrens.org/blog/2017/04/microtia-and-atresia-101</a> Willing to share your story? Apply here: <a href="https://forms.gle/8zmsWLk43PyT5C838" rel="nofollow" target="_blank">https://forms.gle/8zmsWLk43PyT5C838</a> Follow us on Instagram @hearing_mamas_tribe This podcast is intended for families to share their own personal journeys without judgment. The stories they share are their own. Their stories are their own personal beliefs. Please respect and honor each family's choices. The professionals and others who share their own opinions. All information presented is educational and should not be misconstrued as personal medical advice --- Send in a voice message: <a href="https://anchor.fm/gretchen-fors/message" rel="nofollow" target="_blank">https://anchor.fm/gretchen-fors/message</a> Support this podcast: <a href="https://anchor.fm/gretchen-fors/support" rel="payment nofollow" target="_blank">https://anchor.fm/gretchen-fors/support</a>

Episode 18: Hearing Mama: Erica...mom of a son with unilateral microtia atresia

In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery. Microtia is a congenital deformity where the external ear is underdeveloped, and Atresia is the absence or closure of the external auditory ear canal. The malformation of the middle ear bones may be affected including the narrowing of the ear canal. This is a birth deformity that occurs in about 5,000 to 7,000 births. Kim recommends the following resources:  Microtia.net Earcommunity.org Microtiasurgery.com Pedient.com  If you’d like to connect with Kim, you can do so through her blog, The Hill Country Woman, through social media sites Facebook and Instagram, and she also blogs for Austin Moms Blog. A big thank you to the incredible photographer, Laura Morsman Photography for her beautiful pictures of Kim and her family for this episode. If you live in Austin… book Laura Morsman Photgraphy NOW. Take a look at the world's first swaddle for hospitalized infants, Woombie Med Pods, from Barski Vail Designs.

In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery. Microtia is a congenital deformity where the external ear is underdeveloped, and Atresia is the absence or closure of the external auditory ear canal. The malformation of the middle ear bones may be affected including the narrowing of the ear canal. This is a birth deformity that occurs in about 5,000 to 7,000 births. Kim recommends the following resources: <ul> <li><a href="http://www.microtia.net" rel="nofollow" target="_blank">Microtia.net</a></li> <li><a href="http://www.earcommunity.org" rel="nofollow" target="_blank">Earcommunity.org</a></li> <li><a href="http://www.Microtiasurgery.com" rel="nofollow" target="_blank">Microtiasurgery.com</a></li> <li><a href="http://www.pedient.com" rel="nofollow" target="_blank">Pedient.com</a></li> </ul> If you’d like to connect with Kim, you can do so through her blog, <a href="http://www.thehillcountrywoman.com" rel="nofollow" target="_blank">The Hill Country Woman</a>, through social media sites <a href="https://www.facebook.com/thehillcountrywoman/" rel="nofollow" target="_blank">Facebook</a> and <a href="https://www.instagram.com/thehillcountrywoman/" rel="nofollow" target="_blank">Instagram</a>, and she also blogs for <a href="http://austin.citymomsblog.com/2016/01/17/meet-kimberly-pena/" rel="nofollow" target="_blank">Austin Moms Blog</a>. A big thank you to the incredible photographer, <a href="http://www.lauramorsmanphotography.com" rel="nofollow" target="_blank">Laura Morsman Photography</a> for her beautiful pictures of Kim and her family for this episode. If you live in Austin… book Laura Morsman Photgraphy NOW. Take a look at the world's first swaddle for hospitalized infants, <a href="http://www.barskivaildesigns.com" rel="nofollow" target="_blank">Woombie Med Pods</a>, from Barski Vail Designs.

Episode 3 | Kim's Story - A son born with Microtia Atresia and hearing loss