Holly Roos's guest appearances

Holly Roos

The National Fragile X Foundation Podcast

Talk Fragile X

Kate Swenson

Elizabeth Griffin

Moe Smith

Randi Hagerman

Katie Clapp

OwlTail

On this weeks episode of Talk FX, I’m joined with President &amp; Co-Founder of FRAXA Research Foundation, Katie Clapp! As well as the Community Services Director, Holly Roos! We chat about all things World Fragile X Day 2022, research, the re- naming of the FMR1 gene responsible for Fragile X, and more!

World Fragile X Day with Special Guests: Katie Clapp & Holly Roos with FRAXA Research Foundation 

Supplementary Materials:PDF of Powerpoint Presentation (download) This presentation is designed to give participants the skills and confidence to present the topic of FXS to their child’s classmates.  Reaching out to students is a great way to provide a personal understanding of Fragile X along with facts about what is Fragile X. This understanding of fragile x and disabilities in general will help foster friendships and compassion. Holly Roos is the mother of 2 children, Parker &amp; Allison both affected by Fragile X Syndrome. She is the founder and president of the Central IL Fragile X Resource Group and Board member of Advocates for Access in Peoria Heights, Illinois. In 2007 Holly was the winner of WEEK's 25 women in Leadership for her work in Fragile X. The National Fragile X Foundation recognized Holly’s outstanding contributions to the FX Community with the  Education and Awareness Award at the 11th International Fragile X Conference.

Supplementary Materials: PDF of Powerpoint Presentation (<a href="http://fragilex.org/pdf/Talking_With_Students_About_fragilex_syndrome_powerpoint.pdf" rel="nofollow" target="_blank">download</a>) This presentation is designed to give participants the skills and confidence to present the topic of FXS to their child’s classmates. Reaching out to students is a great way to provide a personal understanding of Fragile X along with facts about what is Fragile X. This understanding of fragile x and disabilities in general will help foster friendships and compassion. Holly Roos is the mother of 2 children, Parker &amp; Allison both affected by Fragile X Syndrome. She is the founder and president of the Central IL Fragile X Resource Group and Board member of Advocates for Access in Peoria Heights, Illinois. In 2007 Holly was the winner of WEEK's 25 women in Leadership for her work in Fragile X. The National Fragile X Foundation recognized Holly’s outstanding contributions to the FX Community with the Education and Awareness Award at the 11th International Fragile X Conference.

Talking with Students (grades K – 5) about Fragile X Syndrome with Holly Roos