Geraldine Renton's guest appearances

Geraldine Renton

Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation

The Niall Boylan Show

David Young

Paul Williams

Dermot O'Leary

Prince Andrew

Ivor Cummins

David Maloney

Michael McDowell

Philip Schofield

Peter Tatchell

David Nutt

Van Morrison

Kim Roberts

Eileen Keane

Michael Sheridan

Malcolm Byrne

OwlTail

Listen to RareShare's latest podcast with Geraldine Renton, book author and Irish mother of a Hunter Syndrome child. In this episode, Geraldine tells of her family's journey navigating the challenges of a rare disease that led to the writing of her book Ethan and Me. Hear about their courageous battle with adversity, as they learned of the genetic enzyme deficiency behind the disease and faced its unrelenting consequences, leading to Ethan's passing in late 2020. From learning about Ethan's diagnosis, to locating support and treatments, to just being a mom, the podcast paints a broad perspective about confronting a rare disease. This very candid and detailed account, which includes many lighter enduring moments about life with Ethan, is heartwarming, informative and inspirational.     From the book Ethan and Me:  "You're now in a secret world. You'll see things you never imagined... yet you'll also witness so many everyday miracles. You'll treasure things most wouldn't think twice about. You'll become an advocate, an educator, a specialist and a therapist, but most of all you'll be Mom or Dad to the most wonderful child."

Listen to RareShare's latest podcast with Geraldine Renton, book author and Irish mother of a Hunter Syndrome child. In this episode, Geraldine tells of her family's journey navigating the challenges of a rare disease that led to the writing of her book Ethan and Me. Hear about their courageous battle with adversity, as they learned of the genetic enzyme deficiency behind the disease and faced its unrelenting consequences, leading to Ethan's passing in late 2020. From learning about Ethan's diagnosis, to locating support and treatments, to just being a mom, the podcast paints a broad perspective about confronting a rare disease. This very candid and detailed account, which includes many lighter enduring moments about life with Ethan, is heartwarming, informative and inspirational.   From the book Ethan and Me:  "You're now in a secret world. You'll see things you never imagined... yet you'll also witness so many everyday miracles. You'll treasure things most wouldn't think twice about. You'll become an advocate, an educator, a specialist and a therapist, but most of all you'll be Mom or Dad to the most wonderful child."

Ethan and Me with Geraldine Renton

Niall Boylan

On Monday's show Niall Boylan Spoke to Geraldine about how her carers allowance for her 18 year old son with special needs has been cut because her husband earns €100 over the limit. This conversation brought forward numerous callers to the show who are also carers for their children with special needs. They spoke about how they feel like they have been forgotten by the Government.See omnystudio.com/listener for privacy information.

On Monday's show Niall Boylan Spoke to Geraldine about how her carers allowance for her 18 year old son with special needs has been cut because her husband earns €100 over the limit. This conversation brought forward numerous callers to the show who are also carers for their children with special needs. They spoke about how they feel like they have been forgotten by the Government.See <a href="https://omnystudio.com/listener" rel="nofollow" target="_blank">omnystudio.com/listener</a> for privacy information.

"I want the rights of carers to be acknowledged in this country" Geraldine Renton speaks to Niall Boylan