Kasey Carmona's guest appearances

Kasey Carmona

The Heart of Hospice Podcast

Stories of Inspiring Joy

Grieving Voices

OwlTail

Pediatric Hospice

Warning: This episode contains a description of the loss of a terminally ill infant. It may not be for all listeners.   Boy mom and advocate Kasey Carmona shares the story of her family’s hospice journey with her son CJ.  Using her voice to advocate for her baby’s healthcare, Kasey and her family created quality of life for CJ.  What they found were moments of joy and pockets of goodness in a difficult journey. Our gratitude goes out to Kasey for her generosity of heart in sharing their story.  We’ll forever remember CJ with her.  Connect with Kasey on Instagram (@kaseycarmona) Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers here.  Find more podcast episodes from The Heart of Hospice here: https://theheartofhospice.libsyn.com/ Connect with podcast host Helen Bauer at helen@theheartofhospice.com. Interested in purchasing a GrandPad for a loved one?  Click here. Get information about GrandPad purchases for your facility or agency here.

Warning: This episode contains a description of the loss of a terminally ill infant. It may not be for all listeners.   Boy mom and advocate Kasey Carmona shares the story of her family’s hospice journey with her son CJ.  Using her voice to advocate for her baby’s healthcare, Kasey and her family created quality of life for CJ.  What they found were moments of joy and pockets of goodness in a difficult journey. Our gratitude goes out to Kasey for her generosity of heart in sharing their story.  We’ll forever remember CJ with her.  Connect with Kasey on Instagram (@kaseycarmona) Find more information about hospice philosophy, end-of-life care, and self-care for both personal and professional caregivers <a href="https://www.theheartofhospice.com/" rel="nofollow" target="_blank">here</a>.  Find more podcast episodes from The Heart of Hospice <a href="https://theheartofhospice.libsyn.com/" rel="nofollow" target="_blank">here</a>: <a href="https://theheartofhospice.libsyn.com/" rel="nofollow" target="_blank">https://theheartofhospice.libsyn.com/</a> Connect with podcast host Helen Bauer at <a href="mailto:helen@theheartofhospice.com">helen@theheartofhospice.com</a>. Interested in purchasing a GrandPad for a loved one?  Click <a href="https://www.grandpad.net/" rel="nofollow" target="_blank">here</a>. Get information about GrandPad purchases for your facility or agency <a href="https://www.grandpad.biz/" rel="nofollow" target="_blank">here</a>.

Sharing CJ's Legacy: A Story About Pediatric Hospice With Kasey Carmona, Episode 122

Warning: This episode contains a mother's account of her son, CJ's, final days of life. This may be difficult for some listeners to hear, particularly those who have lost a child. 99 Days. How much life can you squeeze out of 99 precious newborn days? Especially when 84 of those are spent in the hospital? Kabuki, a major theatrical form in Japan for four centuries, became less of a theatrical experience and more of a grieving one. Kabuki Syndrome (a rare genetic syndrome), named in part after facial art depicted in Kabuki theatre, expresses itself with distinct facial features including large eyes and long lashes. CJ would not only fight to stay alive with Kabuki, but due to Kabuki, he was also born with half a heart (hypoplastic left heart syndrome), 3 kidneys, and a cleft palate. The odds were stacked against CJ and his family. Kasey and her husband did whatever they could for their son. However, when it became clear that they were going to have to have procedures done to CJ, that was their sign that they weren't honoring CJ's spirit or his life. They came to accept the truth of their son's young life and decided to take him home with oxygen support only. Kasey could have never anticipated that the day they took CJ home on hospice care would be the first day he would truly be living. For six days, they loved as they had never loved. And, they found peace in their sorrow; believing that the gift of CJ's life was to highlight the abundance in the present moment. We often torture ourselves with questions we will never know the answer to. And, with odds of .032% of this diagnosis, "Why?" is a question with no answer. Scientifically, it comes down to one tiny missing gene. In the contrast, we can recognize the fragility of life and its magnificence, too. "Part of living the abundance of life is experiencing loss." - Kasey Carmona in a Valentine's letter to CJRESOURCES: Kabuki SyndromeHypoplastic Left Heart SyndromeBook, The Invisible StringEp 40 Dr. Chris Kerr NOT MENTIONED BUT HELPFUL: Book, When Children GrieveBook, The Grief Recovery Handbook CONNECT WITH KASEY: InstagramAdditional Links  ______NEED HELP? If you or anyone you know is struggling with grief, substance use disorders, or a mental health challenge, free resources are available HERE and HERE. Enjoying the podcast? You may also enjoy my bi-weekly newsletter, The Unleashed Letters. CONNECT WITH VICTORIA:  InstagramFacebookLinkedIn Support the show

Warning: This episode contains a mother's account of her son, CJ's, final days of life. This may be difficult for some listeners to hear, particularly those who have lost a child. 99 Days. How much life can you squeeze out of 99 precious newborn days? Especially when 84 of those are spent in the hospital? Kabuki, a major theatrical form in Japan for four centuries, became less of a theatrical experience and more of a grieving one. Kabuki Syndrome (a rare genetic syndrome), named in part after facial art depicted in Kabuki theatre, expresses itself with distinct facial features including large eyes and long lashes. CJ would not only fight to stay alive with Kabuki, but due to Kabuki, he was also born with half a heart (hypoplastic left heart syndrome), 3 kidneys, and a cleft palate. The odds were stacked against CJ and his family. Kasey and her husband did whatever they could for their son. However, when it became clear that they were going to have to have procedures done to CJ, that was their sign that they weren't honoring CJ's spirit or his life. They came to accept the truth of their son's young life and decided to take him home with oxygen support only. Kasey could have never anticipated that the day they took CJ home on hospice care would be the first day he would truly be living. For six days, they loved as they had never loved. And, they found peace in their sorrow; believing that the gift of CJ's life was to highlight the abundance in the present moment. We often torture ourselves with questions we will never know the answer to. And, with odds of .032% of this diagnosis, "Why?" is a question with no answer. Scientifically, it comes down to one tiny missing gene. In the contrast, we can recognize the fragility of life and its magnificence, too. "Part of living the abundance of life is experiencing loss." - Kasey Carmona in a Valentine's letter to CJ RESOURCES: <ul><li><a href="https://rarediseases.info.nih.gov/diseases/6810/kabuki-syndrome" rel="nofollow" target="_blank">Kabuki Syndrome</a></li><li><a href="https://www.cdc.gov/ncbddd/heartdefects/hlhs.html" rel="nofollow" target="_blank">Hypoplastic Left Heart Syndrome</a></li><li>Book,<a href="https://amzn.to/3O49M0s" rel="nofollow" target="_blank"> The Invisible String</a></li><li><a href="https://grievingvoices.buzzsprout.com/1081904/8217062-dr-chris-kerr-death-is-but-a-dream-end-of-life-experiences" rel="nofollow" target="_blank">Ep 40 Dr. Chris Kerr</a></li></ul> NOT MENTIONED BUT HELPFUL: <ul><li>Book, <a href="https://amzn.to/3O4aIC0" rel="nofollow" target="_blank">When Children Grieve</a></li><li>Book, <a href="https://amzn.to/3xD4QdG" rel="nofollow" target="_blank">The Grief Recovery Handbook</a></li></ul> CONNECT WITH KASEY: <ul><li><a href="https://www.instagram.com/kaseycarmona/" rel="nofollow" target="_blank">Instagram</a></li><li><a href="https://campsite.bio/kaseycarmona" rel="nofollow" target="_blank">Additional Links</a></li></ul>  ______ NEED HELP? If you or anyone you know is struggling with grief, substance use disorders, or a mental health challenge, free resources are available <a href="https://www.theunleashedheart.com/resources/free-ebooks/" rel="nofollow" target="_blank">HERE</a> and <a href="https://www.theunleashedheart.com/mental-health-resources/" rel="nofollow" target="_blank">HERE</a>. Enjoying the podcast? You may also enjoy my bi-weekly newsletter, <a href="https://mailchi.mp/2cc12488a85d/theunleashedletters" rel="nofollow" target="_blank">The Unleashed Letters</a>. CONNECT WITH VICTORIA:  <ul><li><a href="https://www.instagram.com/theunleashedheart/" rel="nofollow" target="_blank">Instagram</a></li><li><a href="https://www.facebook.com/victoriatheunleashedheart/" rel="nofollow" target="_blank">Facebook</a></li><li><a href="https://www.linkedin.com/in/victoria-volk-a83447187/" rel="nofollow" target="_blank">LinkedIn</a></li></ul> <a href="https://www.buymeacoffee.com/victoriav" rel="payment nofollow" target="_blank">Support the show</a>

Kasey Carmona | 6 Days of Dying and a Masterpiece of Life

Kasey Carmona is a former performing arts teacher turned full-time mom to two boys. When her second son was born with a life-threatening critical illness, Kasey was forced to surrender herself (and her son) into the great big hands of Love. Kasey and her adorable family lives in Atlanta, GA. In today’s episode Kasey shares her story of life and love, and the great life and loss of her second son CJ. In May of 2021, a team of doctors sat on Kasey’s couch to share that it was time to take her son off life support. Kasey’s story and journey captures both joy and suffering, and she so beautifully shares why they’re on the same spectrum and what changes when we see the beauty in all things. When we embrace both joy and suffering we allow ourselves the opportunity to live a fulfilling life. The truth is we don’t know how many moments we have with the ones we love the most. The proverbial “Last Supper” became a reality for her family just a few short months after CJ’s birth, and in those last minutes turned days, they saw life, death and the divine dance in their home and hearts. To connect with Kasey and learn more visit her on Instagram @kaseycarmona and @let.them.be.known Stories of Inspiring Joy is a production of Seek The Joy Media and created by Sydney Weiss. To learn more and submit your story, click here.  *Disclaimer: The views and opinions expressed in this episode are those of the authors and do not necessarily reflect the views of Stories of Inspiring Joy.

Kasey Carmona is a former performing arts teacher turned full-time mom to two boys. When her second son was born with a life-threatening critical illness, Kasey was forced to surrender herself (and her son) into the great big hands of Love. Kasey and her adorable family lives in Atlanta, GA. In today’s episode Kasey shares her story of life and love, and the great life and loss of her second son CJ. In May of 2021, a team of doctors sat on Kasey’s couch to share that it was time to take her son off life support. Kasey’s story and journey captures both joy and suffering, and she so beautifully shares why they’re on the same spectrum and what changes when we see the beauty in all things. When we embrace both joy and suffering we allow ourselves the opportunity to live a fulfilling life. The truth is we don’t know how many moments we have with the ones we love the most. The proverbial “Last Supper” became a reality for her family just a few short months after CJ’s birth, and in those last minutes turned days, they saw life, death and the divine dance in their home and hearts. To connect with Kasey and learn more visit her on Instagram <a href="https://www.instagram.com/kaseycarmona" rel="nofollow" target="_blank">@kaseycarmona</a> and <a href="https://www.instagram.com/let.them.be.known/" rel="nofollow" target="_blank">@let.them.be.known</a> Stories of Inspiring Joy is a production of Seek The Joy Media and created by Sydney Weiss. To learn more and submit your story, click <a href="https://www.storiesofinspiringjoy.com/" rel="nofollow" target="_blank">here</a>. *Disclaimer: The views and opinions expressed in this episode are those of the authors and do not necessarily reflect the views of Stories of Inspiring Joy.