Donna Sullivan's guest appearances

Donna Sullivan

SCICureCast: The Movement to Cure Spinal Cord Injury

Hypermobility Happy Hour

U2FP CureCast

Chris Powell

Jason Stoffer

Michael Lane

Barry Komisaruk

Jimmy Anderson

Sam Schmidt

Paul Brennan

Ethan Perlstein

Quinn Brett

Adam Ferguson

Melissa Miller

David Darrow

Jason Carmel

Kathy Allen

Roy Cho

OwlTail

Content advisory:  This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse.  Please exercise listener discretion.On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain.  She is a graduate of Providence College and has worked for more than two decades in media, communications and marketing with some of the world’s biggest brands.  Donna uses her skills to help TCAPP raise awareness of the needs of children living with complex pain.  She and her husband have three children diagnosed with Ehlers-Danlos Syndrome, POTS, and complex regional pain syndrome.  Donna's goal is to give voice to the real struggles that families with complex pain face in trying to get appropriate care and treatment.Links:TCAPP Website https://tcapp.org/TCAPP Summer Pain Camp https://tcapp.org/summer-pain-camp/Fundraiser for Documentary: https://openeyepictures.com/complicated https://www.pathwaystotrust.org/initiatives https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.htmlWhen the Helping Hand Hurts: How Medical Child Abuse Charges Are Undermining Parents’ Decision Making Rights over Children’s Medical Care  by Maxine Eichner https://aaml.org/wp-content/uploads/MAT102-1.pdf

Content advisory: This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse. Please exercise listener discretion. On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain. She is a graduate of Providence College and has worked for more than two decades in media, communications and marketing with some of the world’s biggest brands. Donna uses her skills to help TCAPP raise awareness of the needs of children living with complex pain. She and her husband have three children diagnosed with Ehlers-Danlos Syndrome, POTS, and complex regional pain syndrome. Donna's goal is to give voice to the real struggles that families with complex pain face in trying to get appropriate care and treatment. Links: TCAPP Website <a href="https://tcapp.org/" rel="nofollow" target="_blank">https://tcapp.org/</a> TCAPP Summer Pain Camp <a href="https://tcapp.org/summer-pain-camp/" rel="nofollow" target="_blank">https://tcapp.org/summer-pain-camp/</a> Fundraiser for Documentary: <a href="https://openeyepictures.com/complicated" rel="nofollow" target="_blank">https://openeyepictures.com/complicated</a> <a href="https://www.pathwaystotrust.org/initiatives" rel="nofollow" target="_blank">https://www.pathwaystotrust.org/initiatives</a> <a href="https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.html" rel="nofollow" target="_blank">https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.html</a> When the Helping Hand Hurts: How Medical Child Abuse Charges Are Undermining Parents’ Decision Making Rights over Children’s Medical Care by Maxine Eichner <a href="https://aaml.org/wp-content/uploads/MAT102-1.pdf" rel="nofollow" target="_blank">https://aaml.org/wp-content/uploads/MAT102-1.pdf</a>

69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More

In this conversation, Matthew and Kate talk with Donna Sullivan, U2FP’s Special Projects Director and Chris Powell, U2FP’s Research Consultant. We discuss their entry into SCI advocacy, what they do at U2FP and the planning for this year’s Working 2 Walk Science and Advocacy Symposium in Miami.

A Conversation with Donna Sullivan and Chris Powell about U2FP and Working 2 Walk (Episode 14)