Joe Sooch's guest appearances

Joe Sooch

Two Disabled Dudes - Living with Urgency

The Health Design Podcast

The Sod's Law Podcast

Mind Your Autistic Brain Talk Show

OwlTail

This week I’m talking to Joe Sooch… Joe is a podcaster and YouTuber who lives with an extremely rare genetic condition, called fibrodysplasia ossificans progressiva, or FOP, in which fibrous connective tissue such as muscle, tendons, and ligaments turn into bone tissue. It’s progressive, meaning it gets worse over time, it’s the only known medical condition where one organ system changes into another and it’s so rare that only around 800 cases have been confirmed worldwide. Joe is only 29, but he’s now at the point where most of his major joints have fused, losing 95% of his ability to move. This means he now needs round-the-clock care. Joe hasn’t let living with a progressive, chronic condition stop him live life; he has a growing YouTube channel, a podcast called Two Mics One Joe Sooch and he connects with people all over the world to raise awareness of other disabilities and rare diseases. Joe's YouTube Channel - youtube.com/c/JoeSoochh Joe's Podcast - Two Mics One Joe Sooch Joe's Instagram - @joesoochh -- All episodes are now being released as video, exclusively on the SodsPod YouTube channel - subscribe here - youtube.com/c/TheSodsLawPodcast See podcast.co/privacy for privacy information.

This week I’m talking to Joe Sooch… Joe is a podcaster and YouTuber who lives with an extremely rare genetic condition, called fibrodysplasia ossificans progressiva, or FOP, in which fibrous connective tissue such as muscle, tendons, and ligaments turn into bone tissue. It’s progressive, meaning it gets worse over time, it’s the only known medical condition where one organ system changes into another and it’s so rare that only around 800 cases have been confirmed worldwide. Joe is only 29, but he’s now at the point where most of his major joints have fused, losing 95% of his ability to move. This means he now needs round-the-clock care. Joe hasn’t let living with a progressive, chronic condition stop him live life; he has a growing <a href="YouTube%20channelhttps%3A//www.youtube.com/c/JoeSoochh" rel="nofollow" target="_blank">YouTube channel</a>, a podcast called <a href="https://open.spotify.com/show/7rGS3VWURZLp1Bc8wznWvc?si=cb75401049b348f8" rel="nofollow" target="_blank">Two Mics One Joe Sooch</a> and he connects with people all over the world to raise awareness of other disabilities and rare diseases. Joe's YouTube Channel - <a href="https://www.youtube.com/c/JoeSoochh" rel="nofollow" target="_blank">youtube.com/c/JoeSoochh</a> Joe's Podcast - <a href="https://open.spotify.com/show/7rGS3VWURZLp1Bc8wznWvc?si=cb75401049b348f8" rel="nofollow" target="_blank">Two Mics One Joe Sooch</a> Joe's Instagram - <a href="https://www.instagram.com/joesoochh/" rel="nofollow" target="_blank">@joesoochh</a> -- All episodes are now being released as video, exclusively on the SodsPod YouTube channel - subscribe here - <a href="https://www.youtube.com/c/TheSodsLawPodcast" rel="nofollow" target="_blank">youtube.com/c/TheSodsLawPodcast</a> See <a href="https://www.podcast.co/privacy" rel="nofollow" target="_blank">podcast.co/privacy</a> for privacy information.

Man Turning to Stone w/ Joe Sooch

How would you choose to spend your time and who would you choose to spend your time with if you knew your time was ticking and your body was turning to solid bone? Meet Joe Sooch who has a rare disease called FOP which is slowly turning his body to solid bone.  Joe invests his time in elevating the voices of others who have disabilities and rare conditions too on his YouTube Channel, Two Mics, One Joe Sooch. Joe and I talk relationships, how we view them differently as Neuro-Majority and NeuroDistinct brains, interabled relationships and values, dating and one of Joe’s pet peeves–being on your phone when you go out on a date (Rude or Not?), healthy boundaries and so much more. (Fibrodysplasia ossificans progressiva (FOP) is a very rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present such as the ligaments, tendons, and skeletal muscles.) Mind Your Autistic Brain Talk Show hosted by The Social Autie, that’s me, Carole Jean.  I am a late identified Autistic ADHDer, Mom and Coach and each week I either have a conversation with another late identified autistic, who shares their voice, experiences and journey with you or I am sharing steps from my signature UnVeiling Method to help you go from Struggling Burned Out Autistic to living your best Thriving Authentic Autistic Life.  If you are on the Chronic Cycle Burnout Loop of Death, The UnVeiling Method, is the answer that will give you the process and the structure to live your best life now. I am only one voice among many and I can’t wait to share my incredible friends with you and let you know that you are not alone on this autism journey, we are here with you. Join us each Wednesday on your favorite platform.  Be sure to subscribe so you don’t miss the latest episode and if you are loving the show, please take a moment to give a 5 star rating (If I’ve earned it)  and a review on your listening platform or a comment under the video. Help your friend who is just starting their autism journey and share the show with them too.  We all need a helping hand and a friend looking out for us.  Be that friend. I look forward to hearing what you’ve learned each week. Share in the comments or on Instagram. Visit me on the web at: www.socialautie.com Find me on: Instagram @Mind_Your_Autistic_Brain  GUEST Contact INFO: Joe Sooch https://www.youtube.com/c/JoeSoochh https://www.instagram.com/joesoochh/ https://linktr.ee/joeysooch1 (You can make Joe wear any hat in an episode on his Patreon) #MindYourAutisticBrainTalkShow #SocialAutieTalkShow #ActuallyAutistic #MindYourAutisticBrain #SocialAutie #LateIdentifiedAutistic #AutisticAdults #AutisticWomen #MYAB #NotAboutUsWithoutUs #VoicesOfAutism #AutistcMen #AutisticCommunity #AutismAwareness #AutismAcceptance #AutismDiagnosis #AutismIdentification #AutisticBurnout #AutisticTalkShow #AutisticBurnoutWarningSigns #UnVeilers #CaroleJean #WhatAutismLooksLike #AutisticBurnout #RareDisease #FOP #Relationships--- Support this podcast: https://anchor.fm/mindyourautisticbrain/support

How would you choose to spend your time and who would you choose to spend your time with if you knew your time was ticking and your body was turning to solid bone? Meet Joe Sooch who has a rare disease called FOP which is slowly turning his body to solid bone.  Joe invests his time in elevating the voices of others who have disabilities and rare conditions too on his YouTube Channel, Two Mics, One Joe Sooch. Joe and I talk relationships, how we view them differently as Neuro-Majority and NeuroDistinct brains, interabled relationships and values, dating and one of Joe’s pet peeves–being on your phone when you go out on a date (Rude or Not?), healthy boundaries and so much more. (Fibrodysplasia ossificans progressiva (FOP) is a very rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present such as the ligaments, tendons, and skeletal muscles.) Mind Your Autistic Brain Talk Show hosted by The Social Autie, that’s me, Carole Jean.  I am a late identified Autistic ADHDer, Mom and Coach and each week I either have a conversation with another late identified autistic, who shares their voice, experiences and journey with you or I am sharing steps from my signature UnVeiling Method to help you go from Struggling Burned Out Autistic to living your best Thriving Authentic Autistic Life.  If you are on the Chronic Cycle Burnout Loop of Death, The UnVeiling Method, is the answer that will give you the process and the structure to live your best life now. I am only one voice among many and I can’t wait to share my incredible friends with you and let you know that you are not alone on this autism journey, we are here with you. Join us each Wednesday on your favorite platform.  Be sure to subscribe so you don’t miss the latest episode and if you are loving the show, please take a moment to give a 5 star rating (If I’ve earned it)  and a review on your listening platform or a comment under the video. Help your friend who is just starting their autism journey and <a href="https://anchor.fm/socialautie" rel="nofollow" target="_blank">share the show</a> with them too.  We all need a helping hand and a friend looking out for us.  Be that friend. I look forward to hearing what you’ve learned each week. Share in the comments or on Instagram. Visit me on the web at: <a href="http://www.socialautie.com/" rel="nofollow" target="_blank">www.socialautie.com</a> Find me on: Instagram <a href="https://www.instagram.com/mind_your_autistic_brain/?hl=en" rel="nofollow" target="_blank">@Mind_Your_Autistic_Brain </a> GUEST Contact INFO: Joe Sooch <a href="https://www.youtube.com/c/JoeSoochh" rel="nofollow" target="_blank">https://www.youtube.com/c/JoeSoochh</a> <a href="https://www.instagram.com/joesoochh/" rel="nofollow" target="_blank">https://www.instagram.com/joesoochh/</a> <a href="https://linktr.ee/joeysooch1" rel="nofollow" target="_blank">https://linktr.ee/joeysooch1</a> (You can make Joe wear any hat in an episode on his Patreon) #MindYourAutisticBrainTalkShow #SocialAutieTalkShow #ActuallyAutistic #MindYourAutisticBrain #SocialAutie #LateIdentifiedAutistic #AutisticAdults #AutisticWomen #MYAB #NotAboutUsWithoutUs #VoicesOfAutism #AutistcMen #AutisticCommunity #AutismAwareness #AutismAcceptance #AutismDiagnosis #AutismIdentification #AutisticBurnout #AutisticTalkShow #AutisticBurnoutWarningSigns #UnVeilers #CaroleJean #WhatAutismLooksLike #AutisticBurnout #RareDisease #FOP #Relationships--- Support this podcast: <a href="https://anchor.fm/mindyourautisticbrain/support" rel="payment nofollow" target="_blank">https://anchor.fm/mindyourautisticbrain/support</a>

084- Relationships & Rare Disease with Joe Sooch

Joe Sooch here. I have a rare disease called FOP where my muscles turn into bones literally I was born with all my limbs working normally with free range. As I get older, I’ll get swellings all over my body and bones just start forming the bones grow and locks my body into place permanently. I can get surgery or more bones will grow. My DNA is faulty so there is nothing any doctor can do to help. I am stuck like this permanently and just have to deal with it. https://www.instagram.com/joeysooch/ https://www.youtube.com/watch?v=_5P2U05uTfY&amp;t=524sWedding vloghttps://www.youtube.com/watch?v=L-JLGt1R_RA&amp;t=496sFollow me on instagram!https://www.instagram.com/joeysooch/Proof https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_linkMore proof https://imgur.com/a/8fTzUcZ https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html

Joe Sooch here. I have a rare disease called FOP where my muscles turn into bones literally I was born with all my limbs working normally with free range. As I get older, I’ll get swellings all over my body and bones just start forming the bones grow and locks my body into place permanently. I can get surgery or more bones will grow. My DNA is faulty so there is nothing any doctor can do to help. I am stuck like this permanently and just have to deal with it. <a href="https://www.instagram.com/joeysooch/" rel="nofollow" target="_blank">https://www.instagram.com/joeysooch/</a> <a href="https://www.youtube.com/watch?v=_5P2U05uTfY&amp;t=524s" rel="nofollow" target="_blank">https://www.youtube.com/watch?v=_5P2U05uTfY&amp;t=524s</a> Wedding vlog <a href="https://www.youtube.com/watch?v=L-JLGt1R_RA&amp;t=496s" rel="nofollow" target="_blank">https://www.youtube.com/watch?v=L-JLGt1R_RA&amp;t=496s</a> Follow me on instagram! <a href="https://www.instagram.com/joeysooch/" rel="nofollow" target="_blank">https://www.instagram.com/joeysooch/</a> Proof <a href="https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_link" rel="nofollow" target="_blank">https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_link</a> More proof <a href="https://imgur.com/a/8fTzUcZ" rel="nofollow" target="_blank">https://imgur.com/a/8fTzUcZ</a> <a href="https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html" rel="nofollow" target="_blank">https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html</a>