Louise Vetter's guest appearances

Louise Vetter

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Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to care for those affected by the disease, improve physician understanding of HD, and support scientific exploration to bring new treatments to HD families.Ms. Vetter serves as Secretary of the International Huntington’s Association and is Treasurer of the Board of Directors of the American Brain Coalition. Additionally, she is an active member of the National Health Council and an editorial advisor to the Rare Disease Report.Before coming to HDSA, Ms. Vetter spent nearly 10 years leading the American Lung Association of New York where she advocated for families living with lung diseases, like lung cancer, asthma, cystic fibrosis, emphysema and more, to get the care and support they needed.Earlier in her career, she led national health education and public relations campaigns for Fleishman Hillard International Communications with emphasis on improving the patient-physician dialogue. At the heart of her experience is a firm passion for helping people face health challenges head on, always with dignity, understanding and hope.To join PatientsLikeMe, please visit www.hdsa.org/plm

Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to care for those affected by the disease, improve physician understanding of HD, and support scientific exploration to bring new treatments to HD families. Ms. Vetter serves as Secretary of the International Huntington’s Association and is Treasurer of the Board of Directors of the American Brain Coalition. Additionally, she is an active member of the National Health Council and an editorial advisor to the Rare Disease Report. Before coming to HDSA, Ms. Vetter spent nearly 10 years leading the American Lung Association of New York where she advocated for families living with lung diseases, like lung cancer, asthma, cystic fibrosis, emphysema and more, to get the care and support they needed. Earlier in her career, she led national health education and public relations campaigns for Fleishman Hillard International Communications with emphasis on improving the patient-physician dialogue. At the heart of her experience is a firm passion for helping people face health challenges head on, always with dignity, understanding and hope. To join PatientsLikeMe, please visit <a href="http://www.hdsa.org/plm" rel="nofollow" target="_blank">www.hdsa.org/plm</a>

PatientsLikeMe with Louise Vetter

Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder.  We must broaden awareness of studies and trials for our Huntington's disease population.

Louise Vetter, President and CEO of HDSA:  HD Trial Finder

Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.  We will be discussing the following information:I.             HDSA OverallImplementation of Strategic Plan	guides everything we do with clear goals and practices to support our missionThe result: new advocacy, education and research programs to support HD familiesII.           ResearchHD Human Biology ProjectHDSA Research WebinarsDon King FellowshipsIII.          Education &amp; Community SupportNational Social Worker to staff HelplinePartnership with HDYOResources regarding Caregiving, Longterm Care and Genetic testingNew HDSA Center of Excellence grant programIV.          AdvocacyHD Parity ActSocial Security AdministrationUS Food &amp; Drug AdministrationV.           Importance of Community EngagementMore HDSA Chapters &amp; AffiliatesMore Team Hope WalksMore visibility: Family is Everything as a new way of building awareness of HD to new audiencesMore participation in science:  Endorsement of Enroll-HDVI.          Closing thoughtsThe entire HD community shares a common goal – to end HD.  Together we are stronger!

Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.   We will be discussing the following information: I.             HDSA Overall Implementation of Strategic Plan 	guides everything we do with clear goals and practices to support our missionThe result: new advocacy, education and research programs to support HD families II.           Research HD Human Biology ProjectHDSA Research WebinarsDon King Fellowships III.          Education &amp; Community Support National Social Worker to staff HelplinePartnership with HDYOResources regarding Caregiving, Longterm Care and Genetic testingNew HDSA Center of Excellence grant program IV.          Advocacy HD Parity ActSocial Security AdministrationUS Food &amp; Drug Administration V.           Importance of Community Engagement More HDSA Chapters &amp; AffiliatesMore Team Hope WalksMore visibility: Family is Everything as a new way of building awareness of HD to new audiencesMore participation in science:  Endorsement of Enroll-HD VI.          Closing thoughts The entire HD community shares a common goal – to end HD.  Together we are stronger!

Help 4 HD News Update with Louise Vetter CEO HDSA