NDF Talks: Breaking the Taboo of Disability
NDF Talks: Breaking the Taboo of Disability
A personal and informative interview/podcast with Kam Redlawsk, GNEM patient and advocate who sheds light on the ableism... Read more
26 Jul 2021
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34mins
NDF Talks: The Problems With Ableism In Our Culture
NDF Talks: The Problems With Ableism In Our Culture
The problems with ableism in our culture; A Conversation with Dr. Farid Holakouee, NDF's Emotional Wellness Director, Ca... Read more
27 May 2021
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17mins
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021
NDF Talks with: Carol Gelbard, LCSW about Promoting and Supporting Wellness in 2021
Enjoy this podcast recapping themes covered in our recent patient HUDDLE detailing ways to “hit reset” in support of emo... Read more
16 Apr 2021
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13mins
NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette
NDF Talks with: Mother/Caregiver of GNE Myopathy patients, Antionette
"GNE Myopathy doesn't mean you can't follow your dreams or that your dreams can't change." -Antionette About NDF: Our m... Read more
16 Apr 2021
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5mins
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NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren
NDF Talks with: CEO Lale Welsh Discusses the journey to gene therapy for GNE Myopathy with NDF Board Co-Chair Ralph Loren
For those of you who have been following our journey towards gene therapy for GNE myopathy, here’s a detailed conversati... Read more
16 Apr 2021
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30mins
NDF Talks with: GNE Myopathy Patient, Sabeen
NDF Talks with: GNE Myopathy Patient, Sabeen
“I someone tells me that I can’t go somewhere then I make sure that I go” -Sabeen About NDF: Our mission is to enhance t... Read more
16 Apr 2021
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14mins
NDF Talks with Carol Gelbard, LCSW about stress management
NDF Talks with Carol Gelbard, LCSW about stress management
“So many of us are feeling extreme amounts of anxiety right now...” -Carol Gelbard, LCSW About NDF: Our mission is to en... Read more
16 Apr 2021
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19mins
NDF Talks with: GNE Myopathy Patient, Maya
NDF Talks with: GNE Myopathy Patient, Maya
"NDF is our big community & strength & force to do all these things. If NDF were not there we would not make it.... Read more
16 Apr 2021
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4mins
NDF Talks with: GNE Myopathy Patient, Amy
NDF Talks with: GNE Myopathy Patient, Amy
“It is hard on my family, but we go on this journey together and I think it helps us. We are stronger together as a fami... Read more
16 Apr 2021
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15mins
NDF Talks with GNE Myopathy Patient, Tara
NDF Talks with GNE Myopathy Patient, Tara
"I'm so flabbergasted by GNEM in a good way in a really really good way because it has allowed me to become more of my t... Read more
16 Apr 2021
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12mins
