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PSPA Podcast

The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pa... Read more

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PSPA Podcast Episode 12 - Carers Week with Jacqui Ede

PSPA Podcast Episode 12 - Carers Week with Jacqui Ede

PSPA Carers Support Group facilitator, Jacqui Ede joins us as we celebrate Carers Week and our podcast being live for on... Read more

8 Jun 2022

49mins

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PSPA Podcast Episode 11 - Relaunching Ed’s Lace with Scott Smith

PSPA Podcast Episode 11 - Relaunching Ed’s Lace with Scott Smith

In this episode we talk to Scott Smith about the inspiration behind his Ed’s Lace Awareness campaign and how he feels ab... Read more

23 May 2022

33mins

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PSPA Podcast Episode 10 - Support for Carers

PSPA Podcast Episode 10 - Support for Carers

In this episode we speak to PSPA’s Director of Engagement, Carol Amirghiasvand, about PSPA’s new carers support groups. ... Read more

29 Apr 2022

21mins

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PSPA PodCast Episode 9 - Taking on a challenge with Katy Butterill

PSPA PodCast Episode 9 - Taking on a challenge with Katy Butterill

Katy Butterill joins us for this episode to share why she chose to take on a walking challenge in honour of her mum, who... Read more

11 Mar 2022

23mins

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PSPA Podcast Episode 8 - Advance Care Planning with Ewan Phillips

PSPA Podcast Episode 8 - Advance Care Planning with Ewan Phillips

Ewan Phillips joins us to share his experience of Advance Care Planning with her mum, who was living with a diagnosis of... Read more

1 Mar 2022

44mins

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PSPA Podcast Episode 7 Home Adaptations

PSPA Podcast Episode 7 Home Adaptations

OT Julie Cummins joins us for the seventh episode of the PSP podcast to advise about making adaptations in your home. Ju... Read more

26 Nov 2021

42mins

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PSPA Podcast Episode 6 Voice Banking

PSPA Podcast Episode 6 Voice Banking

Samanta and Chris join us to chat about their experience of voice banking with SpeakUnique.

27 Oct 2021

22mins

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PSPA Podcast Episode 5 - Explaining PSP to friends and family.

PSPA Podcast Episode 5 - Explaining PSP to friends and family.

In this episode we chat to Sue Wilsea who shares details about her husband Mike, his PSP diagnosis and how they explaine... Read more

27 Sep 2021

15mins

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PSPA Podcast Episode 4 - Caring for a parent

PSPA Podcast Episode 4 - Caring for a parent

In our fourth episode we talking about caring for a parent. Claire Wells joins us to share her experience of her mum’s C... Read more

17 Aug 2021

33mins

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PSPA Podcast - Episode 3

PSPA Podcast - Episode 3

In our third episode we talk about delayed diagnosis. Denise Hunt and Navin Sewak share their experiences of their mums ... Read more

9 Jul 2021

38mins

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