Getting ready for Global Genes, Cannonball Scramble Gala & the SYNGAP1 Conference — #S10e116
Getting ready for Global Genes, Cannonball Scramble Gala & the SYNGAP1 Conference — #S10e116
Congrats to… - Allan Blake on his airborne fundraiser for SRF UK - Aaron and Monica Harding on their Military Lifegive... Read more
19 Sep 2023
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12mins
Katrien Deckers reflects on European 🇪🇺 Epilepsy Conference - #S10e115 (Volume up)
Katrien Deckers reflects on European 🇪🇺 Epilepsy Conference - #S10e115 (Volume up)
Katrien Deckers reflects on European 🇪🇺 Epilepsy Conference - #S10e115 (Volume up) Katrien: https://www.syngapresear... Read more
17 Sep 2023
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12mins
Naya, Pods, ILAE, Warriors, Talking to Pharma, Monica H. is doing Cannonball! Another week in Syngap-land — #S10e114
Naya, Pods, ILAE, Warriors, Talking to Pharma, Monica H. is doing Cannonball! Another week in Syngap-land — #S10e114
Video - Thank you Alexis - https://youtu.be/xPbE0vg33eU - Dads in denial! Could be a good t-shirt. Invitae story - http... Read more
10 Sep 2023
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16mins
Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Super Heroine: Vicky Arteaga Fondo Syngap is tireless: - 2 Congreso en Español on September 23, 2023 https://www.syngapr... Read more
2 Sep 2023
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16mins
Stanford Grant, CSC, UCSF Study, SYNGAP1 Case Report, Conference - #s10e112
Stanford Grant, CSC, UCSF Study, SYNGAP1 Case Report, Conference - #s10e112
Congratulations to Dr. Knowles, read our press release. https://www.syngapresearchfund.org/post/syngap-research-fund-srf... Read more
18 Aug 2023
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12mins
So much news, double catch up episode. #S10e111
So much news, double catch up episode. #S10e111
*Note, we aware part of the video froze; that’s life! RESEARCH! - Dr. Helbig gave a killer presentation today… at Sta... Read more
12 Aug 2023
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23mins
Adam’s Camp is amazing & so are compression vests #S10e110
Adam’s Camp is amazing & so are compression vests #S10e110
Adam's Camp: Get on the mailing list! https://adamscamp.org/ Tony’s Slides! https://docs.google.com/presentation/d/1RVJe... Read more
31 Jul 2023
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9mins
FAQs for SRF’s SYNGAP1 Conference 2023 #SYNGAP1 #SRFconference #Orlando #S10e109
FAQs for SRF’s SYNGAP1 Conference 2023 #SYNGAP1 #SRFconference #Orlando #S10e109
Guest Hosts: Ashley Frye & Lauren Perry THE BASICS Who: Everyone! Families (including extended), caregivers, scien... Read more
20 Jul 2023
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14mins
Happy Birthday SRF! Five years of making the future better! #FasterCures #UCLA #EEG #S10e108
Happy Birthday SRF! Five years of making the future better! #FasterCures #UCLA #EEG #S10e108
Happy 5th Birthday SRF! https://mailchi.mp/syngapresearchfund.org/happy-5th-birthday-srf FASTERCURES See #S10e98 http... Read more
14 Jul 2023
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17mins
Inspiring Events, Family Video & Important Studies. *Note the CINEMAS TRIAL for Epidiolex - #S10e107
Inspiring Events, Family Video & Important Studies. *Note the CINEMAS TRIAL for Epidiolex - #S10e107
Inspiring Events, Family Video & Important Studies. *Note the CINEMAS TRIAL for Epidiolex - #S10e107 RECENT EVENTS... Read more
14 Jun 2023
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8mins