Nemaline Myopathy's guest appearances

Nemaline Myopathy

The Livin' La Vida Low-Carb Show With Jimmy Moore

Two Rare Mama Bears

James DiNicolantonio

Peter Attia

Paul Saladino

Andy Frisella

Judson Brewer

Richard Johnson

Ken Berry

Mark Pettus

Stephanie Dodier

Scott Nelson

Sam Feltham

Valerie Goldstein

Cara Lloyd

Michelle Dorsey

Arne Bey

OwlTail

Kate Baier

Greta is a typical 11-year-old 6th grader who wants to go to school dances and hang out at her friends’ homes, but what is different for Greta is that these experiences always include a parent or nurse to accompany her. Greta lives with Nemaline Myopathy, cruises in a power chair, breathes via a tracheostomy, and needs suction to ensure her airway isn’t blocked. Greta’s parents, Lyn and Kate, were vulnerable and explored with us some thoughts on secondary grief - the struggle that comes with witnessing grief over limitations, barriers, or independence. While they don’t lament on this grief, they keep a “make it work” attitude to navigate life and even give listeners a few tips on how they have built resilience and independence into life with a medically-fragile pre-teen.Find Two Rare Mama Bears on Facebook, Instagram &amp; Twitter: 2raremamabears

Greta is a typical 11-year-old 6th grader who wants to go to school dances and hang out at her friends’ homes, but what is different for Greta is that these experiences always include a parent or nurse to accompany her. Greta lives with Nemaline Myopathy, cruises in a power chair, breathes via a tracheostomy, and needs suction to ensure her airway isn’t blocked. Greta’s parents, Lyn and Kate, were vulnerable and explored with us some thoughts on secondary grief - the struggle that comes with witnessing grief over limitations, barriers, or independence. While they don’t lament on this grief, they keep a “make it work” attitude to navigate life and even give listeners a few tips on how they have built resilience and independence into life with a medically-fragile pre-teen. Find Two Rare Mama Bears on Facebook, Instagram &amp; Twitter: 2raremamabears

044 - Secondary grief explored, with Lyn & Kate Baier - Nemaline Myopathy community

Richard Wygand

Professional triathlete Richard Wygard is our special interview guest on Episode 1472 of The Livin' La Vida Low-Carb Show. Richard Wygand is the president of The go Luke Wygand Foundation and former professional triathlete. In 2004 Richard lost 100 pounds, quit smoking, and became a professional triathlete. After racing for 12 years Richard became a Dad in 2016 after winning his first full distance triathlon. Richard's son was born with an unexpected muscle condition called nemaline myopathy. Richard retired from racing Ironman to dedicate himself to advocating for his son's cause. So far Richard has done a 24 hours paddle-boarding challenge and is about to do a rowing marathon to raise awareness. Richard recently found a way to carry Luke's breathing machine and they started to run together. Listen in today as Jimmy and Richard discuss: Richards's journey from low-fat vegan to keto Competing in and training for Ironman Racing on Keto His son's rare muscle condition How he changed his son's diet and what that has meant for him The role of fitness Stress and depression and their affects on your health Adjusting to life with a disability His YouTube documentary A dad on a mission- From Ironman to Fatherhood The go Luke Wygand Foundation and more  

Professional triathlete Richard Wygard is our special interview guest on Episode 1472 of The Livin' La Vida Low-Carb Show. Richard Wygand is the president of The go Luke Wygand Foundation and former professional triathlete. In 2004 Richard lost 100 pounds, quit smoking, and became a professional triathlete. After racing for 12 years Richard became a Dad in 2016 after winning his first full distance triathlon. Richard's son was born with an unexpected muscle condition called nemaline myopathy. Richard retired from racing Ironman to dedicate himself to advocating for his son's cause. So far Richard has done a 24 hours paddle-boarding challenge and is about to do a rowing marathon to raise awareness. Richard recently found a way to carry Luke's breathing machine and they started to run together. Listen in today as Jimmy and Richard discuss: Richards's journey from low-fat vegan to keto Competing in and training for Ironman Racing on Keto His son's rare muscle condition How he changed his son's diet and what that has meant for him The role of fitness Stress and depression and their affects on your health Adjusting to life with a disability His YouTube documentary A dad on a mission- From Ironman to Fatherhood The go Luke Wygand Foundation and more

1472: Richard Wygand Is A Dad On A Mission Raising Awareness For Nemaline Myopathy