Jed PatientsLikeMe's guest appearances

Jed PatientsLikeMe

Empowered Patient Podcast

Mark Allen

David Katz

Rosalind Picard

David Solomon

Matt Murphy

Robin Smith

Thomas Cowan

Greg Miller

Travis Mickle

Justin Miller

Sean Tucker

Matt Wilson

Chris Young

Jim Martin

Robin Zander

OwlTail

Kate Burke

Dr. Kate Burke is Senior Medical Advisor at PatientsLikeMe and Jed is a patient leader, advocate and patient with a range of conditions including ankylosing spondylitis (AS) and Lyme disease. They join me on the podcast to talk about the robust online community PatientsLikeMe and how it helps patients with rare diseases take charge of their health and helps life science organizations better understand patient needs. By integrating medical data from a variety of sources, the site helps patients share that data with their care team and make more informed healthcare choices.  The community also encourages connections amongst those suffering from the same rare disease and facilitates participation in virtual or semi-virtual clinical trials. COVID-19 forced a re-evaluation of the power of online access for this community. Many of the barriers for participating in live group activities have been removed by going online and both Kate and Jed agree the changes are here to stay. @PatientsLikeMe #rarediseases #digitalhealth #ankylosingspondylitis #AS #COVID19 PatientsLikeMe.com Download the transcript here

Dr. Kate Burke is Senior Medical Advisor at PatientsLikeMe and Jed is a patient leader, advocate and patient with a range of conditions including ankylosing spondylitis (AS) and Lyme disease. They join me on the podcast to talk about the robust online community PatientsLikeMe and how it helps patients with rare diseases take charge of their health and helps life science organizations better understand patient needs. By integrating medical data from a variety of sources, the site helps patients share that data with their care team and make more informed healthcare choices.  The community also encourages connections amongst those suffering from the same rare disease and facilitates participation in virtual or semi-virtual clinical trials. COVID-19 forced a re-evaluation of the power of online access for this community. Many of the barriers for participating in live group activities have been removed by going online and both Kate and Jed agree the changes are here to stay. @PatientsLikeMe #rarediseases #digitalhealth #ankylosingspondylitis #AS #COVID19 <a href="http://patientslikeme.com" rel="noopener nofollow" target="_blank">PatientsLikeMe.com</a> <a href="http://empoweredpatientradio.com/dynamic-online-community-and-resources-for-patients-with-rare-diseases-with-dr-kate-burke-and-jed-patientslikeme-transcript" rel="noopener nofollow" target="_blank">Download the transcript here</a>

Dynamic Online Community and Resources for Patients with Rare Diseases with Dr. Kate Burke and Jed PatientsLikeMe