Randy Curtis's guest appearances

Randy Curtis

GeriPal

Ask The Expert - A BloodStream Media Podcast

The Men's Advocate Show with Linda Gross

John Newman

Scott Bauer

BJ Miller

Andy Cohen

Aaron Kesselheim

Louise Aronson

Haider Warraich

Lewis Cohen

Stephanie Rogers

Tim Anderson

Jessica Zitter

Susan Block

John Mills

Katie Fitzgerald

John Nelson

OwlTail

Randy Curtis, a paragon of palliative care research, was diagnosed with ALS in March.   Randy is in a unique position as someone who studies and cares for people living with serious illness, who now shares his reflections on being on the other side, to reflect on the process of living with serious illness.  His reflections are illuminating and inspiring. We talk with Randy about his experience being in the patient role, rather than the physician or researcher role.  We ask if knowing the prognosis for his subtype of ALS is helpful to him, and if he’s seeing a palliative care clinician.  We talk with Randy about his legacy, principally his focus on mentoring.  We talk about how his approach to his life, his clinical work, and research has shifted in the face of living with serious illness.  We end by talking about our favorite “Randy Curtis” studies. Thank you Randy for modeling vulnerability and willingness to talk about ALS. Thank you for your mentoring which has nurtured a veritable forest of trainees, and for your research which has improved care for people living with serious illness and their families. And here’s to your song choice: a “good life” indeed, by any measure. Links: -Prior GeriPal podcast with Randy Curtis on an earlier study of the JumpStart patient-priming intervention for goals of care discussion -ICU family meetings: Increased proportion of family speech is associated with increased satisfaction -Alterations in translated ICU family meetings -A communication strategy and brochure for ICU family meetings -Practical guidance for ICU family meetings -Empathy in life support decisions -Cambia Center of Excellence for Palliative Care Research  -Cambia Sojourns Scholars Leadership Program   -@AlexSmithMD

Randy Curtis, a paragon of palliative care research, was diagnosed with ALS in March.   Randy is in a unique position as someone who studies and cares for people living with serious illness, who now shares his reflections on being on the other side, to reflect on the process of living with serious illness.  His reflections are illuminating and inspiring. We talk with Randy about his experience being in the patient role, rather than the physician or researcher role.  We ask if knowing the prognosis for his subtype of ALS is helpful to him, and if he’s seeing a palliative care clinician.  We talk with Randy about his legacy, principally his focus on mentoring.  We talk about how his approach to his life, his clinical work, and research has shifted in the face of living with serious illness.  We end by talking about our favorite “Randy Curtis” studies. Thank you Randy for modeling vulnerability and willingness to talk about ALS. Thank you for your mentoring which has nurtured a veritable forest of trainees, and for your research which has improved care for people living with serious illness and their families. And here’s to your song choice: a “good life” indeed, by any measure. Links: -<a href="https://www.geripal.org/2018/11/priming-patients-and-clinicians-for.html" rel="nofollow" target="_blank">Prior GeriPal podcast with Randy Curtis on an earlier study of the JumpStart patient-priming intervention for goals of care discussion</a> -<a href="https://journals.lww.com/ccmjournal/Abstract/2004/07000/Family_satisfaction_with_family_conferences_about.5.aspx" rel="nofollow" target="_blank">ICU family meetings: Increased proportion of family speech is associated with increased satisfaction</a> -<a href="https://doi.org/10.1378/chest.07-2852" rel="nofollow" target="_blank">Alterations in translated ICU family meetings</a> -<a href="https://www.nejm.org/doi/full/10.1056/nejmoa063446" rel="nofollow" target="_blank">A communication strategy and brochure for ICU family meetings</a> <a href="https://pubmed.ncbi.nlm.nih.gov/18842916/" rel="nofollow" target="_blank">-Practical guidance for ICU family meetings</a> -<a href="https://pubmed.ncbi.nlm.nih.gov/18574641/" rel="nofollow" target="_blank">Empathy in life support decisions</a> <a href="https://cpcce.uw.edu" rel="nofollow" target="_blank">-Cambia Center of Excellence for Palliative Care Research</a> <a href="https://www.cambiahealthfoundation.org/funding-areas/sojourns-scholars-leadership-program.html" rel="nofollow" target="_blank"> -Cambia Sojourns Scholars Leadership Program</a> -@AlexSmithMD

Living with and studying serious illness: Podcast with Randy Curtis

In this week's GeriPal podcast we interview Randy Curtis, Professor of Medicine and Pulmonary Critical Care and Director of the Palliative Care Center of Excellence at the University of Washington. We address the question: how do we get more patients with chronic and serious illness to engage in goals of care conversations with their doctors.

Priming Patients and Clinicians for Goals of Care Conversations: Podcast with Randy Curtis

In this episode Randy Curtis, the Hemophilia Council of California’s Board President and longtime community activist, joins Ask The Expert to answer questions on aging with hemophilia, and the how he and peers in the Baby Boomer and Generation-X populations view this historic point in treatment history. We address that, and more, on Episode 7 of BloodStream Media’s Ask The Expert podcast series!   Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment.   Have a bleeding disorders-related question you’d like to submit to Ask The Expert? Excellent! You can email it to mailbag@bloodstreammedia.com (Subject: Ask The Expert Question), post it on the wall of our Facebook Page, Facebook.com/BloodStreamMedia or tweet it to us @BloodStreamInfo or @pjlynch (host) Randy Curtis’ biography on the Hemophilia Council of California’s website. PROBE-ing Patients with Hemophilia from NHF’s Hemaware. Haemophilia Utilization Group Study: assessment of functional health status in hemophilia.

In this episode Randy Curtis, the Hemophilia Council of California’s Board President and longtime community activist, joins Ask The Expert to answer questions on aging with hemophilia, and the how he and peers in the Baby Boomer and Generation-X populations view this historic point in treatment history. We address that, and more, on Episode 7 of BloodStream Media’s Ask The Expert podcast series! Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment. Have a bleeding disorders-related question you’d like to submit to Ask The Expert? Excellent! You can email it to mailbag@bloodstreammedia.com (Subject: Ask The Expert Question), post it on the wall of our Facebook Page, <a href="http://facebook.com/BloodStreamMedia" rel="nofollow" target="_blank">Facebook.com/BloodStreamMedia</a> or tweet it to us <a href="https://twitter.com/BloodStreamInfo" rel="nofollow" target="_blank">@BloodStreamInfo</a> or <a href="https://twitter.com/pjlynch" rel="nofollow" target="_blank">@pjlynch</a> (host) Randy Curtis’ biography on the Hemophilia Council of California’s <a href="http://www.hemophiliaca.org/" rel="nofollow" target="_blank">website</a>. <a href="https://hemaware.org/probe-ing-patients-hemophilia" rel="nofollow" target="_blank">PROBE-ing Patients with Hemophilia</a> from NHF’s Hemaware. <a href="https://www.ncbi.nlm.nih.gov/pubmed/11952847" rel="nofollow" target="_blank">Haemophilia Utilization Group Study</a>: assessment of functional health status in hemophilia.

Ep. 7: Aging with Hemophilia- w/ Randy Curtis - September 25, 2017