Rich Pezzillo's guest appearances

Rich Pezzillo

BloodStream

Ask The Expert - A BloodStream Media Podcast

Debbie de la Riva

Steven Pipe

Robert Sidonio

Jorge de la Riva

Sharon Meyers

Guy Young

Len Valentino

Justin Levesque

Chris Bombardier

Miriam Goldstein

Damian Washington

James Hunt

Michael Callaghan

Dana Francis

Jeremy Griffin

OwlTail

Patrick catches up with New England Hemophilia Association Executive Director, Rich Pezzillo.     Watch  LIVE on Facebook   Subscribe to  The BloodStream Podcast   Check out all of  BloodStream Media's Podcasts   Thank you to our Presenting Sponsor, Takeda. Visit  bleedingdisorders.com to learn how Takeda’s responding to COVID19.

Patrick catches up with New England Hemophilia Association Executive Director, Rich Pezzillo.   Watch <a href="https://www.facebook.com/BloodStreamMedia/videos/2770623069654094" rel="noopener nofollow" target="_blank"> LIVE</a> on Facebook Subscribe to <a href="https://podcasts.apple.com/us/podcast/bloodstream/id1133574474" rel="noopener nofollow" target="_blank"> The BloodStream Podcast</a> Check out all of <a href="http://bloodstreammedia.com/" rel="noopener nofollow" target="_blank"> BloodStream Media</a>'s Podcasts Thank you to our Presenting Sponsor, Takeda. Visit <a href="http://bleedingdisorders.com/" rel="noopener nofollow" target="_blank"> bleedingdisorders.com</a> to learn how Takeda’s responding to COVID19.

Rich Pezzillo - Blood Brother Catchup - BloodStream LIVE

Advocacy has long been a hot topic in the bleeding disorders community, but beyond office visits with state and federal legislators, what does it actually entail?  If you have ever wondered about how you can become or grow as an advocate, this episode is for you! In this month’s episode of  the Ask The Expert Podcast we catch up with Rich Pezzillo, Executive Director of the New England Hemophilia Association (NEHA) and long-time community advocate, who speaks about the many different ways we can be advocates. Welcome to Episode 12 - or our Community Advocates Episode - of the Ask The Expert Podcast!   Follow the link below and click the ‘Receive our Newsletter’ link to receive updates regarding healthcare updates referenced by Rich Pezzillo http://www.hemophiliafed.org/advocacy/ Registration for the National Hemophilia Foundation's Washington Days:  https://www.hemophilia.org/Events-Educational-Programs/Washington-Days   Connect with BloodStream: BloodStream Facebook Page BloodStream Twitter Account Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Host Patrick James Lynch on Twitter and Instagram.

Advocacy has long been a hot topic in the bleeding disorders community, but beyond office visits with state and federal legislators, what does it actually entail?  If you have ever wondered about how you can become or grow as an advocate, this episode is for you! In this month’s episode of  the Ask The Expert Podcast we catch up with Rich Pezzillo, Executive Director of the New England Hemophilia Association (NEHA) and long-time community advocate, who speaks about the many different ways we can be advocates. Welcome to Episode 12 - or our Community Advocates Episode - of the Ask The Expert Podcast!   Follow the link below and click the ‘Receive our Newsletter’ link to receive updates regarding healthcare updates referenced by Rich Pezzillo <a href="http://www.hemophiliafed.org/advocacy/" rel="nofollow" target="_blank">http://www.hemophiliafed.org/advocacy/</a> Registration for the National Hemophilia Foundation's Washington Days: <a href="https://www.hemophilia.org/Events-Educational-Programs/Washington-Days" rel="nofollow" target="_blank"> https://www.hemophilia.org/Events-Educational-Programs/Washington-Days</a> Connect with BloodStream: <a href="https://www.facebook.com/BloodStreamMedia" rel="noopener nofollow" target="_blank">BloodStream Facebook Page</a> <a href="https://twitter.com/BloodstreamInfo" rel="noopener nofollow" target="_blank">BloodStream Twitter Account</a> Email <a href="mailto:mailbag@bloodstreammedia.com" rel="noopener">mailbag@bloodstreammedia.com</a> Find all of our bleeding disorders podcasts on <a href="http://bloodstreammedia.com/" rel="noopener nofollow" target="_blank">BloodStreamMedia.com</a> BloodStream Host Patrick James Lynch on <a href="https://twitter.com/pjlynch" rel="noopener nofollow" target="_blank">Twitter</a> and <a href="https://www.instagram.com/patrickjameslynch/" rel="noopener nofollow" target="_blank">Instagram</a>.

Ep. 12:  Community Advocates - w/ Rich Pezzillo - February 26, 2018

Michelle Kim

Bob Robinson

In this episode, Patrick reviews some recent headlines in our Trending Topics segment, shares some takeaways from the American Society of Hematology’s 2016 Annual Meeting during our Like, Share, Comment segment, and during a special Sit-Down segment, we hear from with Executive Directors of patient organizations and chapters from around the country on what 2016 was, and what 2017 could be. The good, bad and otherwise. All this and more on Episode 7 of BloodStream. Sponsors for Episode 7:  Presenting Sponsor: Stop The Bleeding! (STB!) Link to STB! Website Supporting Sponsor: Entertainment to Affect Change (E2AC) Link to E2AC Website  Trending Topics:  Hemophilia News Today publishes articles on “Pain and pain management in hemophilia.”  Link. DailyMail.com reports on, “How a blood test could save you [UK Women] from infertility.”  Link Blood Journal publishes, “Patient Reported Outcomes to Assess Quality of Hemophilia Care in North India.” Link MASAC publishes four new recommendations.  Link  Like Share Comment:      My Life, Our Future (MLOF) reaches 5,000 patients enrolled.  Link  MLOF website: Link Video on MLOF: Link   American Society of Hematology (ASH) Headlines of Interest:  Alnylam Pharmaceuticals presents interim results from study of investigational, subcutaneously-administered fitusiran (for patients with hemophilia A or B who also have inhibitors).  Link CSL Behring presents Phase III trial results from IDELVION (long-acting recombinant product for hemophilia B).  Link Novo Nordisk presents data from SMART-7 study of NovoSeven.  Link Sanagmo BioSciences presents data from SB-525, a gene therapy treatment currently being studied in mice and non-human primates.  Link Spark Therapeutics presents preliminary results from investigational, gene therapy agent SPK-9001 intended for the treatment of people with hemophilia B. Link University of Pennsylvania scientists successfully cure mice with hemophilia B using CRISPR.  Link Octapharma announces two clinical trials studying how Wilate may be used to treat people with hemophilia A.  Link   World AIDS Day at the National AIDS Memorial Grove Honors the Hemophilia Community.  Video of Powering Through panel featuring NHF CEO Val Bias, HFA CEO Kimberly Haugstad, COTT President Carl Weixler, and The Grove’s ED John Cunningham. Link NHF CEO Val Bias letter regarding HIV/AIDS Memorial.  Link      Sit-Down Segment:  Jeremy Griffin, from the New York City Hemophilia Chapter Rich Pezzillo, from the  New England Hemophilia Chapter Michelle Kim, from the Southern California Hemophilia Chapter Bob Robinson, from the Bleeding Disorders Alliance of Illinois  BloodStream on Social: BloodStream Facebook Page BloodStream Twitter Account BloodStream Host Patrick James Lynch on Twitter and Instagram.   Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

In this episode, Patrick reviews some recent headlines in our Trending Topics segment, shares some takeaways from the American Society of Hematology’s 2016 Annual Meeting during our Like, Share, Comment segment, and during a special Sit-Down segment, we hear from with Executive Directors of patient organizations and chapters from around the country on what 2016 was, and what 2017 could be. The good, bad and otherwise. All this and more on Episode 7 of BloodStream. Sponsors for Episode 7: <ul> <li>Presenting Sponsor: Stop The Bleeding! (STB!) <a href="http://stbhemo.com" rel="nofollow" target="_blank">Link to STB! Website</a></li> <li>Supporting Sponsor: Entertainment to Affect Change (E2AC) <a href="http://www.e2ac.org/" rel="nofollow" target="_blank">Link to E2AC Website</a></li> </ul> Trending Topics: <ul> <li>Hemophilia News Today publishes articles on “Pain and pain management in hemophilia.” <a href="http://hemophilianewstoday.com/2016/11/30/review-highlights-different-strategies-reduce-hemophilia-joint-pain/" rel="nofollow" target="_blank"> Link</a>.</li> <li><a href="http://DailyMail.com" rel="nofollow" target="_blank">DailyMail.com</a> reports on, “How a blood test could save you [UK Women] from infertility.” <a href="http://www.dailymail.co.uk/health/article-3952546/How-blood-test-save-infertility-Women-spared-surgery-risks-ability-children.html" rel="nofollow" target="_blank"> Link</a></li> <li>Blood Journal publishes, “Patient Reported Outcomes to Assess Quality of Hemophilia Care in North India.” <a href="http://www.bloodjournal.org/content/128/22/3587?sso-checked=true" rel="nofollow" target="_blank">Link</a></li> <li>MASAC publishes four new recommendations. <a href="https://www.hemophilia.org/Newsroom/NHF-Community-News/Four-New-MASAC-Documents-Available" rel="nofollow" target="_blank"> Link</a></li> </ul> Like Share Comment:     <ul> <li>My Life, Our Future (MLOF) reaches 5,000 patients enrolled. <a href="https://www.hemophilia.org/Newsroom/NHF-Community-News/We-Did-It-My-Life-Our-Future-Enrolls-5000-Participants-in-Research-Repository" rel="nofollow" target="_blank"> Link</a> <ul> <li>MLOF website: <a href="http://www.mylifeourfuture.org/" rel="nofollow" target="_blank">Link</a></li> <li>Video on MLOF: <a href="https://www.youtube.com/watch?v=1DcbzNGWZRY" rel="nofollow" target="_blank">Link</a></li> </ul> </li> <li>American Society of Hematology (ASH) Headlines of Interest: <ul> <li>Alnylam Pharmaceuticals presents interim results from study of investigational, subcutaneously-administered fitusiran (for patients with hemophilia A or B who also have inhibitors). <a href="http://www.businesswire.com/news/home/20161203005046/en/Alnylam-Reports-Positive-Interim-Phase-1-Results" rel="nofollow" target="_blank"> Link</a></li> <li>CSL Behring presents Phase III trial results from IDELVION (long-acting recombinant product for hemophilia B). <a href="http://www.prnewswire.com/news-releases/csl-behring-presents-new-phase-iii-analysis-of-idelvion-for-hemophilia-b-at-the-2016-american-society-of-hematology-annual-meeting-300372509.html" rel="nofollow" target="_blank"> Link</a></li> <li>Novo Nordisk presents data from SMART-7 study of NovoSeven. <a href="http://www.ots.at/presseaussendung/OTE_20161203_OTE0001/novoseven-resolved-965-of-bleeds-when-initiated-within-one-hour-after-bleed-onset-in-people-with-haemophilia-a-or-b-with-inhibitors" rel="nofollow" target="_blank"> Link</a></li> <li>Sanagmo BioSciences presents data from SB-525, a gene therapy treatment currently being studied in mice and non-human primates. <a href="https://www.hemophilia.org/Newsroom/Industry-News/Sangamo-BioSciences-Reports-Progress-in-Hemophilia-A-Gene-Therapy-at-ASH" rel="nofollow" target="_blank"> Link</a></li> <li>Spark Therapeutics presents preliminary results from investigational, gene therapy agent SPK-9001 intended for the treatment of people with hemophilia B. <a href="http://www.medpagetoday.com/meetingcoverage/ashhematology/61863" rel="nofollow" target="_blank">Link</a></li> <li>University of Pennsylvania scientists successfully cure mice with hemophilia B using CRISPR. <a href="http://www.news-medical.net/news/20161201/Penn-researchers-use-CRISPRCas9-gene-targeting-approach-to-treat-hemophilia-B-in-mice.aspx" rel="nofollow" target="_blank"> Link</a></li> <li>Octapharma announces two clinical trials studying how Wilate may be used to treat people with hemophilia A. <a href="http://hemophilianewstoday.com/2016/11/21/octapharma-announces-two-hemophilia-a-clinical-trials-to-utilize-wilate/" rel="nofollow" target="_blank"> Link</a></li> </ul> </li> <li>World AIDS Day at the National AIDS Memorial Grove Honors the Hemophilia Community. <ul> <li>Video of Powering Through panel featuring NHF CEO Val Bias, HFA CEO Kimberly Haugstad, COTT President Carl Weixler, and The Grove’s ED John Cunningham. <a href="https://youtu.be/_XKe1hefik4" rel="nofollow" target="_blank">Link</a></li> <li>NHF CEO Val Bias letter regarding HIV/AIDS Memorial. <a href="https://www.hemophilia.org/Newsroom/NHF-Community-News/Message-from-Val-Bias-Regarding-HIVAIDS-Memorial" rel="nofollow" target="_blank"> Link</a></li> </ul> </li> </ul> Sit-Down Segment: <ul> <li>Jeremy Griffin, from the <a href="http://www.nyhemophilia.org/" rel="nofollow" target="_blank">New York City Hemophilia Chapter</a></li> <li>Rich Pezzillo, from the <a href="http://www.newenglandhemophilia.org/main.html" rel="nofollow" target="_blank"> New England Hemophilia Chapter</a></li> <li>Michelle Kim, from the <a href="http://www.hemosocal.org/" rel="nofollow" target="_blank">Southern California Hemophilia Chapter</a></li> <li>Bob Robinson, from the <a href="http://www.bdai.org/" rel="nofollow" target="_blank">Bleeding Disorders Alliance of Illinois</a></li> </ul> BloodStream on Social: <a href="https://www.facebook.com/BloodStreamPod/" rel="nofollow" target="_blank">BloodStream Facebook Page</a> <a href="https://twitter.com/BloodstreamInfo" rel="nofollow" target="_blank">BloodStream Twitter Account</a> BloodStream Host Patrick James Lynch on <a href="https://twitter.com/pjlynch" rel="nofollow" target="_blank">Twitter</a> and <a href="https://www.instagram.com/patrickjameslynch/" rel="nofollow" target="_blank">Instagram</a>. Subscribe to BloodStream: iTunes: <a href="http://bit.ly/bloodstreamitunes" rel="nofollow" target="_blank">http://bit.ly/bloodstreamitunes</a> Stitcher: <a href="http://bit.ly/bloodstreamstitcher" rel="nofollow" target="_blank">http://bit.ly/bloodstreamstitcher</a> LibSyn: <a href="http://bit.ly/bloodstreamlibsyn" rel="nofollow" target="_blank">http://bit.ly/bloodstreamlibsyn</a> SoundCloud: <a href="http://bit.ly/bloodstreamSC" rel="nofollow" target="_blank">http://bit.ly/bloodstreamSC</a> TuneIn: <a href="http://bit.ly/bloodstreamtunein" rel="nofollow" target="_blank">http://bit.ly/bloodstreamtunein</a> Google Play: <a href="http://bit.ly/bloodstreamPlay" rel="nofollow" target="_blank">http://bit.ly/bloodstreamPlay</a>

Ep. 7: December 19th, 2016 - w/ special guests Jeremy Griffin, Rich Pezzillo, Michelle Kim & Bob Robinson