Cyndi Zagieboylo's guest appearances

Cyndi Zagieboylo

RealTalk MS

MS News & Perspectives

Chris Shepherd

Aaron Miller

David Mitchell

Andrew Solomon

Pauline Boss

Karen Jackson

Mark Jensen

Montel Williams

Karen Lee

Jeffrey Cohen

Sarah Quezada

Erin Martin

Damian Washington

Scott Williams

Michelle Mitchell

OwlTail

We're celebrating the 200th episode of RealTalk MS by sitting down with Cyndi Zagieboylo, the President and CEO of the National Multiple Sclerosis Society, and looking at some of the most vital initiatives ever undertaken by the National MS Society, including the launch of the International Progressive MS Alliance, the MS Society's efforts to support diversity, equity, and inclusion throughout the MS movement and in MS clinical research, and the groundbreaking Pathways to Cures blueprint.  Over the span of her 36-year career with the National MS Society, Cyndi had the opportunity to work with the Society's founder, Sylvia Lawry. During our conversation, we look back at the founding of the National MS Society in 1948, Ms. Lawry's founding of the MS International Federation in 1967, and Cyndi shares her insights into what might have been on Ms. Lawry's mind if she were with us today. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to Episode #200!  :18 A toast to each of you who have made this possible  :58 My conversation with Cyndi Zagieboylo  2:57 Share this episode  31:42 Thanks again!  32:02 SHARE THIS EPISODE OF REALTALK MS Just copy this link &amp; paste it into your text or email: https://realtalkms.com/200 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance  Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 200 Guests: Cyndi Zagieboylo Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

We're celebrating the 200th episode of RealTalk MS by sitting down with Cyndi Zagieboylo, the President and CEO of the National Multiple Sclerosis Society, and looking at some of the most vital initiatives ever undertaken by the National MS Society, including the launch of the International Progressive MS Alliance, the MS Society's efforts to support diversity, equity, and inclusion throughout the MS movement and in MS clinical research, and the groundbreaking Pathways to Cures blueprint. Over the span of her 36-year career with the National MS Society, Cyndi had the opportunity to work with the Society's founder, Sylvia Lawry. During our conversation, we look back at the founding of the National MS Society in 1948, Ms. Lawry's founding of the MS International Federation in 1967, and Cyndi shares her insights into what might have been on Ms. Lawry's mind if she were with us today. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to Episode #200!  :18 A toast to each of you who have made this possible  :58 My conversation with Cyndi Zagieboylo  2:57 Share this episode  31:42 Thanks again!  32:02 SHARE THIS EPISODE OF REALTALK MS Just copy this link &amp; paste it into your text or email: <a href="https://realtalkms.com/200" rel="noopener nofollow" target="_blank">https://realtalkms.com/200</a> ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: <a href="mailto:jon@realtalkms..com" rel="noopener noreferrer">jon@realtalkms.com</a>Phone: (310) 526-2283 And don't forget to join us in the <a href="https://facebook.com/groups/realtalkms" rel="nofollow" target="_blank">RealTalk MS Facebook group</a>! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the <a href="https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk" rel="noopener noreferrer nofollow" target="_blank">RealTalk MS app</a> or at <a href="http://www.realtalkms.com" rel="noopener noreferrer nofollow" target="_blank">www.RealTalkMS.com</a> National MS Society COVID-19 Vaccine Guidance for People Living with MS <a href="https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance" rel="noopener nofollow" target="_blank">https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance</a> Join the RealTalk MS Facebook Group <a href="https://facebook.com/groups/realtalkms" rel="noopener nofollow" target="_blank">https://facebook.com/groups/realtalkms</a> Download the RealTalk MS App for iOS <a href="https://itunes.apple.com/us/app/realtalk-ms/id1436917200" rel="nofollow" target="_blank">https://itunes.apple.com/us/app/realtalk-ms/id1436917200</a> Download the RealTalk MS App for Android<a href="https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk" rel="noopener nofollow" target="_blank">https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk</a> Give RealTalk MS a rating and review <a href="https://realtalkms.com/review" rel="noopener nofollow" target="_blank">http://www.realtalkms.com/review</a> Follow RealTalk MS on Twitter, <a href="https://twitter.com/RealTalkMS_jon" rel="noopener noreferrer nofollow" target="_blank">@RealTalkMS_jon</a>, and subscribe to our newsletter at our website, <a href="https://www.realtalkms.com/" rel="noopener noreferrer nofollow" target="_blank">RealTalkMS.com</a>. RealTalk MS Episode 200 Guests: Cyndi Zagieboylo Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS <a href="https://realtalkms.com/privacy-policy" rel="noopener noreferrer nofollow" target="_blank">Privacy Policy</a>

Episode 200: Celebrating 200 Episodes of RealTalk MS with National MS Society CEO Cyndi Zagieboylo

Bruce Bebo

It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results.   The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated.   In this special RealTalk MS episode, we're going to look at MS prevalence from a number of different perspectives. My guests include National MS Society President and CEO, Cyndi Zagieboylo, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and MS Prevalence Study Investigator, Dr. Ruth Ann Marrie.      But what about people who are living with MS? What are their thoughts about being one in a million? We're also talking with MS Activists Tami Ryan, Karen Jackson, and Dan &amp; Jennifer Diggman.   We have a lot to talk about! Are you ready for RealTalk MS?!  __  It's MS Awareness Week  :22 My Interview with National MS Society CEO, Cyndi Zagieboylo  3:40 My Interview with National MS Society Executive Vice-President of Research, Dr. Bruce Bebo  12:32 My Interview with MS Prevalence Study Investigator, Dr. Ruth Ann Marrie  24:18 Comments about the MS Prevalence Study from MS Activists Tami Ryan, Karen Jackson, and Dan &amp; Jennifer Digmann  34:34 Join the RealTalk MS Conversation  38:13 _ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.comPhone: (310) 526-2283 __ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android The Prevalence of MS in the United States: A Population-Based Estimate Using Health Claims Data A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with MS Validation for an Algorithm For Identifying MS Cases in Administrative Health Claims Datasets Give RealTalk MS a Rating &amp; Review   _ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 81 Hosted By: Jon Strum Guests: Cyndi Zagieboylo, Dr. Bruce Bebo, Dr. Ruth Ann Marrie, Tami Ryan, Lisa Jackson, Dan &amp; Jennifer Digmann Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, TwiceAsMany, MSPrevalence, RealTalkMS

It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results.   The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated.   In this special RealTalk MS episode, we're going to look at MS prevalence from a number of different perspectives. My guests include National MS Society President and CEO, Cyndi Zagieboylo, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and MS Prevalence Study Investigator, Dr. Ruth Ann Marrie.   But what about people who are living with MS? What are their thoughts about being one in a million? We're also talking with MS Activists Tami Ryan, Karen Jackson, and Dan &amp; Jennifer Diggman.   We have a lot to talk about! Are you ready for RealTalk MS?!  __ It's MS Awareness Week  :22 My Interview with National MS Society CEO, Cyndi Zagieboylo  3:40 My Interview with National MS Society Executive Vice-President of Research, Dr. Bruce Bebo  12:32 My Interview with MS Prevalence Study Investigator, Dr. Ruth Ann Marrie  24:18 Comments about the MS Prevalence Study from MS Activists Tami Ryan, Karen Jackson, and Dan &amp; Jennifer Digmann  34:34 Join the RealTalk MS Conversation  38:13 _ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: <a href="mailto:jonstrum@RealTalkMS.com">jonstrum@RealTalkMS.com</a>Phone: (310) 526-2283 __ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the <a href="https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk" rel="noopener nofollow" target="_blank">RealTalk MS app</a> or at <a href="http://www.realtalkms.com" rel="noopener nofollow" target="_blank">www.RealTalkMS.com</a> <a href="https://itunes.apple.com/us/app/realtalk-ms/id1436917200" rel="noopener nofollow" target="_blank">Download the RealTalk MS App for iOS</a> <a href="https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk" rel="noopener nofollow" target="_blank">Download the RealTalk MS App for Android</a> <a href="https://n.neurology.org/content/92/10/e1029" rel="noopener nofollow" target="_blank">The Prevalence of MS in the United States: A Population-Based Estimate Using Health Claims Data</a> <a href="https://n.neurology.org/content/92/10/469" rel="noopener nofollow" target="_blank">A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with MS</a> <a href="https://n.neurology.org/content/92/10/e1016" rel="noopener nofollow" target="_blank">Validation for an Algorithm For Identifying MS Cases in Administrative Health Claims Datasets</a> <a href="http://www.realtalkms.com/rating" rel="noopener nofollow" target="_blank">Give RealTalk MS a Rating &amp; Review</a> _ Follow RealTalk MS on Twitter, <a href="https://twitter.com/RealTalkMS_jon" rel="noopener nofollow" target="_blank">@RealTalkMS_jon</a>, and subscribe to our newsletter at our website, <a href="https://www.realtalkms.com/" rel="noopener nofollow" target="_blank">RealTalkMS.com</a>. RealTalk MS Episode 81 Hosted By: Jon Strum Guests: Cyndi Zagieboylo, Dr. Bruce Bebo, Dr. Ruth Ann Marrie, Tami Ryan, Lisa Jackson, Dan &amp; Jennifer Digmann Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, TwiceAsMany, MSPrevalence, RealTalkMS

Episode 81: Almost One Million! The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, & Dr. Ruth Ann Marrie