4 Podcast Episodes
Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
ONCE UPON A GENE - EPISODE 105Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebas... Read more
21 Oct 2021
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40mins
Facing Batten Disease Head On - Christopher Velona
Facing Batten Disease Head On - Christopher Velona
What would you do if you got news today that your child was going to die? What would that cause you to do, would you dro... Read more
3 Feb 2019
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28mins
SHAIR 176: Against the Odds with Christopher Velona
SHAIR 176: Against the Odds with Christopher Velona
Today we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthu... Read more
26 Jun 2018
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1hr 28mins
SHAIR 176: Against the Odds with Christopher Velona
SHAIR 176: Against the Odds with Christopher Velona
Today we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthu... Read more
26 Jun 2018
•
1hr 28mins