Christopher Velona

4 Podcast Episodes

Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona

Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona

ONCE UPON A GENE - EPISODE 105Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebas... Read more

21 Oct 2021

40mins

Facing Batten Disease Head On - Christopher Velona

Facing Batten Disease Head On - Christopher Velona

What would you do if you got news today that your child was going to die? What would that cause you to do, would you dro... Read more

3 Feb 2019

28mins

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SHAIR 176: Against the Odds with Christopher Velona

SHAIR 176: Against the Odds with Christopher Velona

Today we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthu... Read more

26 Jun 2018

1hr 28mins

SHAIR 176: Against the Odds with Christopher Velona

SHAIR 176: Against the Odds with Christopher Velona

Today we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthu... Read more

26 Jun 2018

1hr 28mins

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