Janet Freeman-Daily's guest appearances

Janet Freeman-Daily

Lung Cancer Considered

AWAKE: The Sleep Apnea Podcast

John Andrews

Richard Barber

Brian Delaney

Joseph Borelli

Maureen Connelly

Sairam Parthasarathy

Matt Gentry

Janie Seto

Karen Wolk

Ariel Berwaldt

Christina Semonick

Adam Amdur

Eugena Brooks

Gilles Frydman

Azizi Seixas

OwlTail

Seamus Cotter

Host Dr. Narjust Florez engages with three leading lung cancer patient advocates on the importance of patient advocacy groups, how these were formed, challenges when managing large patient advocacy groups and the future of patient advocacy in lung cancer. Janet Freeman-Daily is a cancer patient research advocate and activist who translates the experience and science of cancer for others. She was diagnosed with advanced lung cancer in 2011 and metastatic ROS1+ lung cancer in 2012. She collaborates, writes, and speaks with cancer organizations both internationally and within the USA, and blogs at Gray Connections.   Seamus Cotter is from Ireland and was diagnosed with stage IV NSCLC lung cancer in June 2016 and has shared his experiences with immunotherapy on many global platforms. Since his diagnosis, Seamus has been involved in drug development and the improvement of clinical trials in lung cancer. He is deeply involved in the Irish Lung Cancer Community and is also a Patient Consultant on the lung group in Cancer Trials Ireland. Terri Conneran is one of the founders of the non-profit group “KRAS Kickers.” She was diagnosed with stage IIIa KRAS + lung cancer and has experienced separate recurrences and has persevered through multiple treatments and has dedicated her time to patient advocacy. Terri has shared her story on national and international platforms and created a community beyond lung cancer for all patients with KRAS-driven cancers.

Host Dr. Narjust Florez engages with three leading lung cancer patient advocates on the importance of patient advocacy groups, how these were formed, challenges when managing large patient advocacy groups and the future of patient advocacy in lung cancer. Janet Freeman-Daily is a cancer patient research advocate and activist who translates the experience and science of cancer for others. She was diagnosed with advanced lung cancer in 2011 and metastatic ROS1+ lung cancer in 2012. She collaborates, writes, and speaks with cancer organizations both internationally and within the USA, and blogs at Gray Connections. Seamus Cotter is from Ireland and was diagnosed with stage IV NSCLC lung cancer in June 2016 and has shared his experiences with immunotherapy on many global platforms. Since his diagnosis, Seamus has been involved in drug development and the improvement of clinical trials in lung cancer. He is deeply involved in the Irish Lung Cancer Community and is also a Patient Consultant on the lung group in Cancer Trials Ireland. Terri Conneran is one of the founders of the non-profit group “KRAS Kickers.” She was diagnosed with stage IIIa KRAS + lung cancer and has experienced separate recurrences and has persevered through multiple treatments and has dedicated her time to patient advocacy. Terri has shared her story on national and international platforms and created a community beyond lung cancer for all patients with KRAS-driven cancers.

Patient Advocacy Groups with Janet Freeman-Daily, Seamus Cotter & Terri Conneran

Janet is a very active patient advocate in the Lung Cancer Community and also a Sleep Apnea Patient. She joins Marc Ostrick to discuss the overlapping needs of these communities and shares insight into how Patient Advocacy can be improved and expanded.This panel livestream and many others can be viewed on YouTube, Facebook as well as sleepapnea.org.If you have questions or comments about this (or any episode) we'd like to hear from you. You can reach us at: stories@sleepapnea.org.AWAKE:The Sleep Apnea Podcast,  is (usually) presented on Thursdays by sleepapnea.org, the American Sleep Apnea Association.The podcast is available through Apple Podcasts, Spotify or wherever you get your podcasts, including our podcast archive where every episode is available to stream right from your browser. It is the mission of the American Sleep Apnea Association to improve the lives of sleep apnea patients. We accomplish this mission through education, services, peer-support, research, and advocacy.Sleepapnea.org depends upon donations from people like you to continue its work.  You can help!  Making a tax-deductible donation through our secure server is fast and easy.  When we receive your donation, we will mail you a written acknowledgment  for tax purposes.  Click here to contribute.  Thank you for your support!Theme Music: Deliberate Thought by Kevin MacLeodLink: https://incompetech.filmmusic.io/song/3635-deliberate-thoughtLicense: http://creativecommons.org/licenses/by/4.0/If you, or a loved one has sleep apnea or questions about sleep apnea, go to sleepapnea.org for more information. Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)

Janet is a very active patient advocate in the Lung Cancer Community and also a Sleep Apnea Patient. She joins Marc Ostrick to discuss the overlapping needs of these communities and shares insight into how Patient Advocacy can be improved and expanded. This panel livestream and many others can be viewed on <a href="https://www.youtube.com/channel/UCI_rc835UoOe-r_J7mJYzNA" rel="nofollow" target="_blank">YouTube</a>, <a href="https://www.facebook.com/sleepapneaorg" rel="nofollow" target="_blank">Facebook </a>as well as <a href="http://sleepapnea.org/" rel="nofollow" target="_blank">sleepapnea.org</a>. If you have questions or comments about this (or any episode) we'd like to hear from you. You can reach us at: stories@sleepapnea.org.AWAKE:The Sleep Apnea Podcast,  is (usually) presented on Thursdays by<a href="https://www.sleepapnea.org/" rel="nofollow" target="_blank"> sleepapnea.org, the American Sleep Apnea Association.</a>The podcast is available through Apple Podcasts, Spotify or wherever you get your podcasts, including our<a href="https://www.sleepapnea.org/awake-podcast/" rel="nofollow" target="_blank"> podcast archive</a> where every episode is available to stream right from your browser. It is the mission of the American Sleep Apnea Association to improve the lives of sleep apnea patients. We accomplish this mission through education, services, peer-support, research, and advocacy.<a href="https://www.sleepapnea.org/about/support-american-sleep-apnea-association/support-us/" rel="nofollow" target="_blank">Sleepapnea.org</a> depends upon donations from people like you to continue its work.  You can help!  Making a tax-deductible donation through our secure server is fast and easy.  When we receive your donation, we will mail you a written acknowledgment  for tax purposes. <a href="https://www.sleepapnea.org/about/support-american-sleep-apnea-association/support-us/" rel="nofollow" target="_blank"> Click here to contribute.</a>  Thank you for your support!Theme Music: Deliberate Thought by Kevin MacLeodLink: <a href="https://incompetech.filmmusic.io/song/3635-deliberate-thought" rel="nofollow" target="_blank">https://incompetech.filmmusic.io/song/3635-deliberate-thought</a>License: <a href="http://creativecommons.org/licenses/by/4.0/" rel="nofollow" target="_blank">http://creativecommons.org/licenses/by/4.0/</a> If you, or a loved one has sleep apnea or questions about sleep apnea, go to<a href="https://www.sleepapnea.org/" rel="nofollow" target="_blank"> sleepapnea.org</a> for more information. <a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="nofollow" target="_blank">Support the show</a> (<a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="nofollow" target="_blank">https://www.sleepapnea.org/donations/please-donate-to-asaa/</a>)<a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="nofollow" target="_blank">Support the show</a> (<a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="nofollow" target="_blank">https://www.sleepapnea.org/donations/please-donate-to-asaa/</a>)<a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="payment nofollow" target="_blank">Support the show</a> (<a href="https://www.sleepapnea.org/donations/please-donate-to-asaa/" rel="nofollow" target="_blank">https://www.sleepapnea.org/donations/please-donate-to-asaa/</a>)

Speaker Series: Janet Freeman-Daily, Lung Cancer Patient Advocate