Christina Kosyla's guest appearances

Christina Kosyla

INTERLUDE

Getting Better

The Vibe With Ky Podcast

Rachel Peterson

Kelly Thomas

Christina Kelly

Samantha Harris

Tamara Smith

Katy Ursta

Meggie Smith

Jess Movold

Abby Bales

Emily Garnett

Kikkan Randall

Kimberly Tronic

George Anthony

Kelly Shanahan

Vanessa Joy

OwlTail

On today’s episode, I am speaking with Christina Kosyla. In 2018, Christina was diagnosed with a very rare tumor called a desmoid tumor (also known as Desmoid-Type Fibromatosis). These are rare tumors that grow from the connective tissue in your body. In her late 20s, Christina noticed a decrease in her range of motion especially when doing yoga and then a friend noticed a lump by her collarbone. Christina sought medical attention and after a work-up, was told it was a lipoma. She then traveled the Camino de Santiago, a 500 mile religious pilgrimage from France to Spain. After her return, surgery for the lipoma revealed “confusing” findings and ultimately, she was diagnosed several months later.  On today’s episode, Christina talks about how hiking the Pyrenees helped frame her mentality and mindset when she returned and had to face this diagnosis what living with a chronic (and invisible) illness and chronic pain is like, and how best to show up for people in an authentic way when they are vulnerable.  You can find more of Christina’s story on her blog.

On today’s episode, I am speaking with Christina Kosyla. In 2018, Christina was diagnosed with a very rare tumor called a desmoid tumor (also known as Desmoid-Type Fibromatosis). These are rare tumors that grow from the connective tissue in your body. In her late 20s, Christina noticed a decrease in her range of motion especially when doing yoga and then a friend noticed a lump by her collarbone. Christina sought medical attention and after a work-up, was told it was a lipoma. She then traveled the Camino de Santiago, a 500 mile religious pilgrimage from France to Spain. After her return, surgery for the lipoma revealed “confusing” findings and ultimately, she was diagnosed several months later. On today’s episode, Christina talks about how hiking the Pyrenees helped frame her mentality and mindset when she returned and had to face this diagnosis what living with a chronic (and invisible) illness and chronic pain is like, and how best to show up for people in an authentic way when they are vulnerable. You can find more of Christina’s story on her <a href="https://girlmeetscancer.com/" rel="noopener nofollow" target="_blank">blog</a>.

102. Christina Kosyla (Living With a Rare Tumor)

Christina Kosyla is a tremendous soul on an extraordinary journey. Join me on Kyrus Has Friends as I chat with Christina about her life’s journey after her diagnosis of desmoid-type fibromatosis, a rare disease which only impacts around 2 – 4 in a million people. This podcast comes as the world commemorates Desmoid Tumor Awareness Month in September. For more Christina, follow her on Instagram @GirlMeetsCancer, or visit her website at www.GirlMeetsCancer.com. For more Kyrus, follow him on Instagram @TheVibeWithKy, or visit his website at www.TheVibeWithKy.com. To learn more about Desmoid Tumors, you can visit the following links below: + Desmoid Tumor Research Foundation &gt; http://dtrf.org/ + American Cancer Society – What Is a Soft Tissue Sarcoma? If you are in a crisis, text HOME to 741741 (USA &amp; Canada), 85258 (UK), or 50808 (Ireland) to connect with a Crisis Counselor. Free 24/7 support at your fingertips. We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you and your loved ones, and best practices for professionals. Call 1-800-273-8255.--- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/thevibewithky/support

Christina Kosyla is a tremendous soul on an extraordinary journey. Join me on Kyrus Has Friends as I chat with Christina about her life’s journey after her diagnosis of desmoid-type fibromatosis, a rare disease which only impacts around 2 – 4 in a million people. This podcast comes as the world commemorates Desmoid Tumor Awareness Month in September. For more Christina, follow her on Instagram <a href="https://www.instagram.com/girlmeetscancer/?hl=en" rel="nofollow" target="_blank">@GirlMeetsCancer</a>, or visit her website at <a href="http://www.girlmeetscancer.com/" rel="nofollow" target="_blank">www.GirlMeetsCancer.com</a>. For more Kyrus, follow him on Instagram <a href="https://www.instagram.com/thevibewithky/?hl=en" rel="nofollow" target="_blank">@TheVibeWithKy</a>, or visit his website at <a href="https://thevibewithky.com/" rel="nofollow" target="_blank">www.TheVibeWithKy.com</a>. To learn more about Desmoid Tumors, you can visit the following links below: + Desmoid Tumor Research Foundation &gt; <a href="http://dtrf.org/" rel="nofollow" target="_blank">http://dtrf.org/</a> + American Cancer Society – <a href="https://www.cancer.org/cancer/soft-tissue-sarcoma/about/soft-tissue-sarcoma.html" rel="nofollow" target="_blank">What Is a Soft Tissue Sarcoma?</a> If you are in a crisis, text HOME to 741741 (USA &amp; Canada), 85258 (UK), or 50808 (Ireland) to connect with a Crisis Counselor. Free 24/7 support at your fingertips. We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you and your loved ones, and best practices for professionals. Call 1-800-273-8255.--- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/thevibewithky/support" rel="payment nofollow" target="_blank">https://anchor.fm/thevibewithky/support</a>

Kyrus Has Friends: Ep. 54: “Girl Meets Cancer” | Ft. Christina Kosyla

Christina and I discuss how her rare cancer has led to her cancer journey being physically almost "invisible" to the outside world. A podcast to encourage and empower the cancer community. Hosted by Jessica Walker, founder of Better + Co. Thank you for listening! A special 10% off discount specifically for podcast subscribers: https://www.betterandcompany.com/discount/GETTINGBETTERPOD

Christina and I discuss how her rare cancer has led to her cancer journey being physically almost "invisible" to the outside world.  A podcast to encourage and empower the cancer community.  Hosted by Jessica Walker, founder of Better + Co.  Thank you for listening! A special 10% off discount specifically for podcast subscribers: <a href="https://www.betterandcompany.com/discount/GETTINGBETTERPOD" rel="nofollow" target="_blank">https://www.betterandcompany.com/discount/GETTINGBETTERPOD</a>

"But you don't look sick..." with guest, Christina Kosyla